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6 - Relinquishing exclusion

Published online by Cambridge University Press:  15 December 2009

Monica Konrad
Affiliation:
University of Cambridge
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Summary

Let me begin with a little cautionary tale about exclusion testing. As a story within a story, there is a Russian Doll effect. But all is not what it seems. Orientation: we will be circling first of all around a sub-text whose plot prises open the problem of the ‘mock embryo transfer’.

Pre-implanting a story

Novel preconception testing technology such as pre-implantation genetic diagnosis (PGD) offers – the interested patient is told – a treatment procedure for those couples who want to have children without the potential risk of transmitting a pre-diagnosed hereditary condition to their offspring. Parents-to-be who may be considering such ‘treatment’ will be informed further by clinicians that the technique allows them to start a pregnancy with a pre-selected healthy embryo. Prospective PGD patients will be given statistics and risk figures that put the option of pre-implantation diagnosis into context, as against leaving things to nature and having a non-assisted conception. The medical assumption that a single cell diagnosis is ethically preferable to the elective termination of a pregnancy after prenatal diagnosis (or spontaneous termination) – something this group of patients is also likely to be told (or may know intuitively) – is an explanatory narrative that legitimises novel methods of human conception. It is therefore a moral narrative of a kind, framed as it is around certain ‘quality of life’ beliefs and sensibilities.

Type
Chapter
Information
Narrating the New Predictive Genetics
Ethics, Ethnography and Science
, pp. 124 - 145
Publisher: Cambridge University Press
Print publication year: 2005

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  • Relinquishing exclusion
  • Monica Konrad, University of Cambridge
  • Book: Narrating the New Predictive Genetics
  • Online publication: 15 December 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511584183.007
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  • Relinquishing exclusion
  • Monica Konrad, University of Cambridge
  • Book: Narrating the New Predictive Genetics
  • Online publication: 15 December 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511584183.007
Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

  • Relinquishing exclusion
  • Monica Konrad, University of Cambridge
  • Book: Narrating the New Predictive Genetics
  • Online publication: 15 December 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511584183.007
Available formats
×