Book contents
- Frontmatter
- Contents
- Contributors
- Preface
- 1 Letter to Patients
- 2 Becoming an Active Member of Your Health Care Team
- 3 Information That Will Help You with Advance Planning for Your Health Care
- 4 Responding to Medical Emergencies
- 5 What You Need to Know about Medical Errors
- 6 Being Informed When You Give Consent to Medical Care
- 7 Beware of Scorecards
- 8 Transplantation 101
- 9 When the Illness Is Psychiatric
- 10 On the Horizon
- 11 To Be or Not to Be – A Research Subject
- 12 Information That Will Help You Make Health Care Decisions for Adult Family Members
- 13 Caring for Individuals with Alzheimer's Disease
- 14 When the Patient Is a Child
- 15 Care of Elders
- 16 Being and Thinking
- 17 A Patient's Guide to Pain Management
- 18 The Hardest Decisions
- 19 What You Need to Know about Disasters
- 20 Making the Internet Work for You
- Appendix: Patient Individual Profile
- Index
- References
13 - Caring for Individuals with Alzheimer's Disease
Ethical Issues along the Way
Published online by Cambridge University Press: 05 June 2012
- Frontmatter
- Contents
- Contributors
- Preface
- 1 Letter to Patients
- 2 Becoming an Active Member of Your Health Care Team
- 3 Information That Will Help You with Advance Planning for Your Health Care
- 4 Responding to Medical Emergencies
- 5 What You Need to Know about Medical Errors
- 6 Being Informed When You Give Consent to Medical Care
- 7 Beware of Scorecards
- 8 Transplantation 101
- 9 When the Illness Is Psychiatric
- 10 On the Horizon
- 11 To Be or Not to Be – A Research Subject
- 12 Information That Will Help You Make Health Care Decisions for Adult Family Members
- 13 Caring for Individuals with Alzheimer's Disease
- 14 When the Patient Is a Child
- 15 Care of Elders
- 16 Being and Thinking
- 17 A Patient's Guide to Pain Management
- 18 The Hardest Decisions
- 19 What You Need to Know about Disasters
- 20 Making the Internet Work for You
- Appendix: Patient Individual Profile
- Index
- References
Summary
A man does not consist of memory alone. He has feeling, will, sensibilities, moral being. … And it is here … that you may find ways to touch him.
– A. R. Luria (from a personal letter to Oliver Sacks)What is the first and most important thing you as a caregiver can do for a patient diagnosed with Alzheimer's disease? Learn everything you can about the disease. This will help you not only in understanding what to expect but also in planning, managing, and making the most of available options.
Chapter Sixteen in this book, “Being and Thinking,” describes the characteristics of dementia, which can have many causes. It is estimated that in industrialized nations around the world, approximately 60% of dementia is attributed to Alzheimer's disease. Every seventy seconds, someone develops Alzheimer's disease; as many as 5.3 million people in the United States are living with it now, and nine million cases are projected by 2040. This prevalent and devastating disease presents numerous challenges not only to patients, but also to caregivers. This chapter discusses a variety of issues that caregivers may confront in different stages of the disease and suggests further reading and useful resources.
Stages of the Disease
Although several scales have been developed to describe the progression of Alzheimer's disease, researchers and health professionals generally refer to three broad stages, characterized by the following usual symptoms:
Mild: The patient has difficulty concentrating and exhibits a diminished ability to plan and carry out household tasks, manage finances, or organize daily living.
- Type
- Chapter
- Information
- Surviving Health CareA Manual for Patients and Their Families, pp. 179 - 190Publisher: Cambridge University PressPrint publication year: 2010