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Caring for People who Die: The Experience of Family and Friends

Published online by Cambridge University Press:  14 November 2008

Clive Seale
Clive Seale
Affiliation:
Senior Lecturer at the Department of Sociology, Polytechnic of East London, Livingstone House, Livingstone Road, London, E15 2LL, UK.
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Abstract

A survey of relatives, friends and others who knew the deceased in a random national sample of adult deaths in England forms the basis of this report. Comparisons of this 1987 sample are made with a similar study carried out in 1969. The sample of deaths was largely one of elderly people, and changes in the family and household compositions of these people reflect changes in the wider population of elderly people. More lived alone, or in smaller family units, and fewer sources of help during their final illness were available from relatives. Women were particularly disadvantaged, both as dependants and carers, who were then bereaved, often themselves left to live alone. The stress and the mixed feelings of carers are described. Nevertheless, a substantial minority were free of serious levels of dependency in their last year of life. Those dying of cancer formed a somewhat younger group, with shorter periods of dependency and greater availability of relatives to look after them. Many of the medical and nursing innovations in the care of the dying have focused exclusively on cancer. This study demonstrates the value of a broader perspective on death and dying that emphasises the needs of older people.

Type
Research Article
Information
Ageing & Society , Volume 10 , Issue 4 , December 1990 , pp. 413 - 428
Copyright
Copyright © Cambridge University Press 1990

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References

NOTES

1 Dale, A., Evandrou, M. and Arber, S., The household structure of the elderly population in Britain. Ageing and Society, 7 (1987), 37–56.CrossRefGoogle Scholar

2 Qureshi, H. and Walker, A., The Caring Relationship: Elderly People and their Families. Macmillan Education Ltd, London, 1989.CrossRefGoogle Scholar

3 Lewis, J. and Meredith, B., Daughters caring for mothers: the experience of caring and its implications for professional helpers. Ageing and Society, 8 (1988), 1–21.CrossRefGoogle Scholar

4 Arber, S., Gilbert, G. N. and Evandrou, M., Gender, household composition and receipt of domiciliary services by elderly disabled people. Journal of Social Policy, 17 (1988), 153–75.CrossRefGoogle Scholar

5 Timaeus, I., Families and households of the elderly population: prospects for those approaching old age. Ageing and Society, 6 (1986), 271–93.CrossRefGoogle Scholar

6 Allan, G., Kinship, responsibility and care for elderly people. Ageing and Society, 8 (1988), 249–68.CrossRefGoogle Scholar

7 Arber, S. and Gilbert, N., Men: the forgotten carers. Sociology, 23, 1 (1988), 111–18.CrossRefGoogle Scholar

8 Office of Population Censuses and Surveys, Mortality Statistics 1986. HMSO, London, 1989.Google Scholar

9 Seale, C. F., What happens in hospices: a review of research evidence. Social Science and Medicine, 28 (1989), 551–9.CrossRefGoogle ScholarPubMed

10 Joint National Cancer Survey Committee, Report on a National Survey Concerning Patients with Cancer Nursed at Home. Marie Curie Memorial, London, 1952.Google Scholar

11 Ward, A. W. M., Home Care Services for the Terminally III: A Report for the Nuffield Foundation. University of Sheffield, Department of Community Medicine, 1985.Google Scholar

12 Cartwright, A., Hockey, L. and Anderson, J. L.Life Before Death. Routledge and Kegan Paul, London and Boston, 1973.Google Scholar

13 Cartwright, A. and Seale, C. F., The Natural History of a Survey: An account of the Methodological Issues Encountered in a Study of Life before Death. King's Fund, London, 1990.Google Scholar

14 Where differences between groups are described in the text, these have been shown to be significant below the 0.05 level using the x2 test, unless stated otherwise.

15 Seale, C. F., Death from cancer and death from other causes: the relevance of the hospice approach. (Submitted for publication.)Google Scholar

16 Cartwright, A., Changes in life and care in the year before death: 1969–1987. Palliative Medicine forthcoming.Google Scholar

17 Wilkes, E., A Source Book of Terminal Care. Sheffield University Press, Sheffield, 1984.Google Scholar

18 West, S. R., Harris, B. J., Warren, A., Wood, H., Montgomery, B. and Belsham, V., A retrospective study of patients with cancer in their terminal year. New Zealand Medical Journal, 99 (1986), 197–200.Google ScholarPubMed

19 Relatives and friends who said they bore the brunt of care are considered in this section, with others excluded except where indicated otherwise.

20 Lewis, J. and Meredith, B., Contested territory in informal care. In Jefferys, M. (ed.), Growing Old in the Twentieth Century. Routledge, London and New York, 1989.Google Scholar

21 Bowling, A., The hospitalisation of death: should more people die at home? Journal of Medical Ethics, 9 (1983), 158–61.CrossRefGoogle ScholarPubMed

22 This section concerns relatives and friends only except where indicated otherwise.

23 Johnson, P., The structured dependency of the elderly: a critical note. In Jefferys, M. (ed.), Growing old in lhe Twentieth Century. Routledge, London and New York, 1989.Google Scholar

24 Saunders, C. and Baines, M., Living with Dying: The Management of Terminal Disease. Oxford University Press, Oxford, New York and Toronto, 1983.Google Scholar