Hostname: page-component-5c6d5d7d68-tdptf Total loading time: 0 Render date: 2024-08-15T07:33:42.347Z Has data issue: false hasContentIssue false
  • English
  • Français

Managing epilepsy in people with intellectual disabilities – creating capable communities

Published online by Cambridge University Press:  28 April 2023

Rohit Shankar Open the ORCID record for Rohit Shankar [Opens in a new window]
Rohit Shankar*
Affiliation:
Professor of Neuropsychiatry at the University of Plymouth's Peninsula School of Medicine and Director of its Cornwall Intellectual Disability Equitable Research (CIDER) unit, and a consultant neuropsychiatrist with Cornwall Partnership NHS Foundation Trust, Truro, UK.
*
Correspondence Rohit Shankar. Email: rohit.shankar@plymouth.ac.uk
Get access Rights & Permissions [Opens in a new window]

Summary

Almost a quarter of people with intellectual disabilities have epilepsy. This life-long condition adversely affects their health, safety and well-being and carries an increased risk of sudden unexpected death in epilepsy (SUDEP) in this population. This commentary considers what not only health and social services but also communities and people with intellectual disabilities themselves can do to improve outcomes.

Keywords

Intellectual disabilitydevelopmental disordersepilepsyepilepsy mortalitysudden unexpected death in epilepsy
Type
Commentary
Information
BJPsych Advances , Volume 29 , Special Issue 5: Neurodevelopmental disorders including intellectual disability: a Clinical Toolkit for Mental Health Professionals (Part 2) , September 2023 , pp. 305 - 307
Check for updates
Copyright
Copyright © The Author(s), 2023. Published by Cambridge University Press on behalf of the Royal College of Psychiatrists

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

Commentary on… Epilepsy, intellectual disability and the epilepsy care pathway. See this issue.

References

Kerr, M, Goodwin, G, Hanna, J (2023) Epilepsy, intellectual disability and the epilepsy care pathway: improving outcomes. BJPsych Advances, this issue.Google Scholar
Maslen, C, Hodge, R, Tie, K, et al (2022) Constipation in autistic people and people with learning disabilities. British Journal of General Practice, 72: 348–51.CrossRefGoogle ScholarPubMed
Page, R, Shankar, R, McLean, BN, et al (2018) Digital care in epilepsy: a conceptual framework for technological therapies. Frontiers of Neurology, 9: 99.10.3389/fneur.2018.00099CrossRefGoogle ScholarPubMed
Shankar, R, Jory, C, McLean, B, et al (2017) Epilepsy awareness and emergency rescue training: ignorance is bliss! Epilepsy Behavior, 70(Pt A): 212–6.10.1016/j.yebeh.2017.03.010CrossRefGoogle ScholarPubMed
Shankar, R, Rowe, C, Van Hoorn, A, et al (2018) Under representation of people with epilepsy and intellectual disability in research. PLoS ONE, 13(6): e0198261.Google ScholarPubMed
Shankar, R, Mitchell S (2020) Step Together: Integrating Care for People with Epilepsy and a Learning Disability. Step Together (https://www.bild.org.uk/wp-content/uploads/2020/11/Step-Together-17-November-2020-Download-Link-.pdf).Google Scholar
Sun, JJ, Perera, B, Henley, W, et al (2022) Epilepsy related multimorbidity, polypharmacy and risks in adults with intellectual disabilities: a national study. Journal of Neurology, 269: 2750–60.Google ScholarPubMed
Watkins, L, O'Dwyer, M, Kerr, M, et al (2020) Quality improvement in the management of people with epilepsy and intellectual disability: the development of clinical guidance. Expert Opinion on Pharmacotherapy, 21: 173–81.Google ScholarPubMed
Watkins, LV, Linehan, C, Brandt, C, et al (2022) Epilepsy in adults with neurodevelopmental disability - what every neurologist should know. Epileptic Disorders, 24: 9–25.Google ScholarPubMed
Young, C, Shankar, R, Palmer, J, et al (2015) Does intellectual disability increase sudden unexpected death in epilepsy (SUDEP) risk? Seizure, 25: 112–6.10.1016/j.seizure.2014.10.001CrossRefGoogle ScholarPubMed
Submit a response

eLetters

No eLetters have been published for this article.