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Reproductive health conversations in adolescents with CHD

Part of: Cardiac Morphology

Published online by Cambridge University Press:  15 February 2021

Shannon M. Lyon Open the ORCID record for Shannon M. Lyon [Opens in a new window] ,
Amy J. Katz ,
Anne G. Farrell  and
Marcia L. Shew
Shannon M. Lyon*
Affiliation:
Division of Pediatric Cardiology, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA
Amy J. Katz
Affiliation:
Division of Adolescent Medicine, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA
Anne G. Farrell
Affiliation:
Division of Pediatric Cardiology, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA
Marcia L. Shew
Affiliation:
Division of Adolescent Medicine, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA
*
Author for correspondence: Dr S. M. Lyon, Division of Pediatric Cardiology, Department of Pediatrics, Indiana University School of Medicine, 705 Riley Hospital Drive, RR 127, Indianapolis, IN46202, USA. Tel: +1 434 962 6400; Fax: 617-730-0600. E-mail: smlyon@alumni.iu.edu
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Abstract

Background:

Reproductive issues as related to CHD must be discussed in the clinic and at home. Providers can ensure that correct information is imparted to the adolescent and encourage mothers to provide support and guidance to the adolescent. The level to which these conversations occur is unknown.

Methods:

A survey distributed to female adolescent/mother dyads assessed self-reported conversations with the healthcare provider and between each other about reproductive health topics. A clinician survey was completed to assess CHD diagnosis, risk of hormonal contraception, and pregnancy risk.

Results:

Among 91 dyads, 33.0% of adolescents and 42.9% of mothers reported discussing recurrence risk of CHD with the provider. In regard to the cardiac lesion affecting a baby, 30.7% of adolescents and 28.7% of mothers reported discussing this with a provider. Significantly less adolescents and mothers reported discussing the risks of hormonal contraception and pregnancy with a provider. In assessing conversations between adolescents and mothers, only 44.2% of adolescents and 52.3% of mothers reported discussing with each other the safety of using birth control and 46.5% of adolescents and 64.0% of mothers reported discussing the safety of pregnancy.

Conclusions:

Adolescents with CHD and their mothers report low rates of reproductive health-related conversations with the healthcare provider, and mothers report low rates of having these conversations with their daughters. These topics should be discussed at each appointment with the cardiologist and must be encouraged to continue at home.

Keywords

CHDreproductive healthcontraceptionpregnancyheart disease
Type
Original Article
Information
Cardiology in the Young , Volume 31 , Issue 8 , August 2021 , pp. 1263 - 1268
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Copyright
© The Author(s), 2021. Published by Cambridge University Press

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