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Patient-reported outcome measures in congenital heart surgery: a systematic review

Published online by Cambridge University Press:  18 January 2023

Jeevan Francis Open the ORCID record for Jeevan Francis [Opens in a new window] ,
Sneha Prothasis ,
Joseph George  and
Serban Stoica
Jeevan Francis*
Affiliation:
Department of Medical Science, 47 Little France Crescent, The University of Edinburgh, Edinburgh EH164TJ, UK
Sneha Prothasis
Affiliation:
Department of Medical Science, Polwarth Building, The University of Aberdeen, Aberdeen AB25 2ZD, UK
Joseph George
Affiliation:
Department of Cardiac Surgery, Great Ormond Street Hospital, London WC1N 3JH, UK
Serban Stoica
Affiliation:
Department of Cardiac Surgery, Bristol Children’s Hospital, Bristol BS2 8BJ, UK
*
Author for correspondence: Jeevan Francis, Department of Medical Science, 47 Little France Crescent, The University of Edinburgh, Edinburgh EH164TJ, UK. E-mail: jeevanfrancis15@gmail.com
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Abstract

Background:

Patient-reported outcome measures are commonly used to evaluate the effectiveness of treatments. CHD remains the most common congenital malformation. There has been a gradual shift in evaluating the outcome of surgery for CHD from mortality to morbidity and now to self-reported outcomes.

Aims:

We aimed to review studies assessing patient-reported outcome measures as a useful marker of outcome for patients, both children and adults, who underwent surgery for CHD.

Methods:

A systematic database search was conducted of original articles that explored the application of patient-reported outcome measures in the CHD surgical setting in PubMed and SCOPUS from inception to February 2022.

Results:

Our search yielded 1511 papers, of which six studies were included in this review after screening abstract and full-text, with a total sample size of 5734 patients. The main areas of discussion were the utility of patient-reported outcome measures, determinants of patient-reported outcome measures, and the need for a congenital cardiac surgery-specific patient-reported outcome measure for paediatric patients and their parents/guardians and adult patients.

Conclusion:

This systematic review reports the use of patient-reported outcome measures to be a useful indicator to gain insight into the patients’ perspective to provide holistic and patient-centred management. However, further studies are required to assess the utility of patient-reported outcome measures in a congenital cardiac surgical setting.

Keywords

Patient-reported outcome measurespatient-reported outcome measuresCHDheart surgery
Type
Review
Information
Cardiology in the Young , Volume 33 , Issue 3 , March 2023 , pp. 337 - 341
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Copyright
© The Author(s), 2023. Published by Cambridge University Press

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