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The psychological, relational and social impact in adult offspring of parents with hoarding disorder

Published online by Cambridge University Press:  27 August 2020

Fugen Neziroglu*
Affiliation:
Bio Behavioral Institute, Great Neck, NY, USA Department of Psychiatry, Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, USA Department of Psychology, Hofstra University, Hempstead, NY, USA
Michael Upston
Affiliation:
Bio Behavioral Institute, Great Neck, NY, USA
Sony Khemlani-Patel
Affiliation:
Bio Behavioral Institute, Great Neck, NY, USA
*
Author for correspondence: Fugen Neziroglu, Email: neziroglu@biobehavioralinstitute.com

Abstract

Hoarding disorder (HD) is a psychiatric condition that negatively impacts individual sufferers, their families and the larger community. The disorder goes beyond problems with excessive clutter; it also presents with deficits in executive functioning, attachment and affect regulation deficits. This paper focusses on the needs of adult children of parents with HD, who directly experience the consequences of the disorder throughout their life cycle. We explore the existing research on the psychological, relational and social impact of parental hoarding on adult offspring. We discuss the clinical implications of these findings and offer possible psychological interventions that may be of help in this vulnerable population.

Type
Review Article
Copyright
© The Author(s) 2020. Published by Cambridge University Press

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References

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). http://doi.org/10.1176/appi.books.9780890425596 CrossRefGoogle Scholar
Ayers, C. R., Dozier, M. E., Mayes, T. L., Espejo, E. P., Wilson, A., Iqbal, Y., & Strickland, K. (2015). Treatment recruitment and retention of geriatric participants with hoarding disorder. Clinical Gerontologist, 38, 235250.CrossRefGoogle ScholarPubMed
Drury, H., Ajmi, S., Fernandez de la Cruz, L., Nordsletten, A. E., & Mataix-Cols, D. (2014). Caregiver burden, family accommodation, health, and well-being in relatives of individuals with hoarding disorder. Journal of Affective Disorders, 159, 714.10.1016/j.jad.2014.01.023CrossRefGoogle ScholarPubMed
Frost, R. O., & Hartl, T. L. (1996). A cognitive-behavioral model of compulsive hoarding. Behavioral Research and Therapy, 34, 341350.CrossRefGoogle ScholarPubMed
Grisham, J. R., Norberg, M. M., Williams, A. D., Certona, S. P., & Kadib, R. (2010). Categorization and cognitive deficits in compulsive hoarding. Behaviour Research and Therapy, 48, 866872.10.1016/j.brat.2010.05.011CrossRefGoogle ScholarPubMed
Grisham, J. R., Steketee, G., & Frost, R. (2008). Interpersonal problems and emotional intelligence in compulsive hoarding. Depression and Anxiety, 25, E63E71.10.1002/da.20327CrossRefGoogle ScholarPubMed
Hayes, S. C., Strosahl, K. D., & Wilson, K. G. (1999). Acceptance and commitment therapy: An experiential approach to behavior change. Guilford Press.Google Scholar
Johnson, V. (1986). Intervention: How to help someone who doesn’t want help. Johnson Institute Books.Google Scholar
Kim, H., Steketee, G., & Frost, R. O. (2001). Hoarding by elderly people. Health & Social Work, 26, 176184.CrossRefGoogle ScholarPubMed
Linehan, M. M. (1993). Cognitive-behavioral treatment of borderline personality disorder. Guilford Press.Google Scholar
Loneck, B., Garrett, J.A., & Banks, S.M. (2009). A comparison of the Johnson intervention with four other methods of referral to outpatient treatment. The American Journal of Drug and Alcohol Abuse, 22, 233246.CrossRefGoogle Scholar
Mackin, R. S., Vigil, O., Insel, P., Kivowitz, A., Kupferman, E., Hough, C., Fekri, S., Delucchi, K. L., & Matthews, C. A. (2016). Patterns of clinically significant cognitive impairment in hoarding disorder. Depression and Anxiety, 33, 211218.10.1002/da.22439CrossRefGoogle ScholarPubMed
Merlo, L. J., Lehmkuhl, H. D., Geffken, G. R., & Storch, E. A. (2009). Decreased family accommodation associated with improved therapy outcome in pediatric obsessive compulsive disorder. Journal of Consulting and Clinical Psychology, 77, 355360.10.1037/a0012652CrossRefGoogle ScholarPubMed
Miller, W. R., & Rollnick, S. (1991). Motivational interviewing: Preparing people to change addictive behavior. Guilford Press.Google Scholar
Miller, W. R., & Rollnick, S. (2013). Motivational interviewing: Helping people change. Guilford Press.Google Scholar
Neziroglu, F. A., & Donnelly, K. (2013). Children of hoarders: How to minimize conflict, reduce the clutter & improve your relationship. New Harbinger Publications, Inc.Google Scholar
Neziroglu, F. A., Bubrick, J. B., & Yaryura-Tobias, J. A. (2004). Overcoming compulsive hoarding: Why you save & how you can stop. New Harbinger Publications.Google Scholar
Neziroglu, F. A., Weissman, S., Allen, J., & McKay, D. (2012). Compulsive Hoarders: How do they differ from individuals with OCD? Psychiatric Research, 200(1), 3540.CrossRefGoogle Scholar
Park, J. M., Lewin, A. B., & Storch, E. A. (2014). Adult offspring perspectives on parental hoarding behaviors. Psychiatry Research, 220(1–2), 328334.10.1016/j.psychres.2014.07.061CrossRefGoogle ScholarPubMed
Prochaska, J. O., & DiClemente, C. C. (1983). Stages and processes of self-change of smoking: Toward an integrative model of change. Journal of Consulting and Clinical Psychology, 51(3), 390395.CrossRefGoogle ScholarPubMed
Rees, C. S., Valentine, S., & Anderson, R. A. (2018). The impact of parental hoarding on the lives of children: Interviews with adult offspring of parents with hoarding disorder. Clinical Psychologist, 22, 327335.10.1111/cp.12135CrossRefGoogle Scholar
Resick, P. A., Monson, C. M., & Chard, K. M. (2017). Cognitive processing therapy for PTSD. New York.Google Scholar
Sampson, J. M. (2013). The lived experience of family members of persons who compulsively hoard: A qualitative study. Journal of Marital and Family Therapy, 39, 388402.CrossRefGoogle ScholarPubMed
Shaw, A. M., Timpano, K. R., Steketee, G., Tolin, D. F., & Frost, R. O. (2015). Hoarding and emotional reactivity: The link between negative emotional reactions and hoarding symptomatology. Journal of Psychiatric Research, 63, 8490.CrossRefGoogle ScholarPubMed
Steketee, G., Frost, R. O., & Kyrios, M. (2003). Cognitive aspects of compulsive hoarding. Cognitive Therapy and Research, 27, 463479.CrossRefGoogle Scholar
Tolin, D. F., Fitch, K. E., Frost, R. O., & Steketee, G. (2010). Family informants’ perceptions of insight in compulsive hoarding. Cognitive Therapy and Research, 34, 6981.10.1007/s10608-008-9217-7CrossRefGoogle Scholar
Tolin, D. F., Frost, R. O., & Steketee, G. (2007). An open trial of cognitive behavioral therapy for compulsive hoarding. Behaviour Research and Therapy, 45, 14611470.CrossRefGoogle ScholarPubMed
Tolin, D. F., Frost, R. O., Steketee, G., & Fitch, K. E. (2008). Family burden of compulsive hoarding: Results of an internet survey. Behavioral Research and Therapy, 46, 334344.CrossRefGoogle ScholarPubMed
Tolin, D. F., Hallion, L. S., Wootton, B. M., Levy, H. C., Billingsley, A. L., Das, A., Katz, B. W., & Stevens, M. C. (2018). Subjective cognitive function in hoarding disorder. Psychiatry Research, 265, 215220.CrossRefGoogle ScholarPubMed
Tolin, D. F., Levy, H. C., Wootton, B. M., Hallion, L. S., & Stevens, M. C. (2018). Hoarding disorder and difficulties in emotion regulation. Journal of Obsessive Compulsive and Related Disorders, 16, 98103.CrossRefGoogle ScholarPubMed
Tompkins, M. A. (2011). Working with families of people who hoard: A harm reduction approach. Journal of Clinical Psychology: In session, 67, 497506.CrossRefGoogle Scholar
Turner, K., Steketee, G., & Nauth, L. (2010). Treating elders with compulsive hoarding: A pilot program. Cognitive and Behavioral Practice, 17, 449457.10.1016/j.cbpra.2010.04.001CrossRefGoogle Scholar
Van Noppen, B. (2002). Multifamily behavioral treatment (MFBT) for obsessive compulsive disorder (OCD): A step-by-step model. Brief Treatment and Crisis Intervention, 2, 107122.CrossRefGoogle Scholar
Van Noppen, B., Steketee, G., McCorkle, B. H., & Pato, M. (1997). Group and multifamily behavioral treatment for obsessive compulsive disorder: A pilot study. Journal of Anxiety Disorders, 11, 431460.CrossRefGoogle ScholarPubMed
Wilbram, M., Kellett, S., & Beail, N. (2008). Compulsive hoarding: A qualitative investigation of partner and carer perspectives. British Journal of Clinical Psychology, 47, 5973.10.1348/014466507X240740CrossRefGoogle ScholarPubMed
Woody, S. R., Kellman-McFarlane, K., & Welsted, A. (2014). Review of cognitive performance in hoarding disorder. Clinical Psychology Review, 34, 324336.10.1016/j.cpr.2014.04.002CrossRefGoogle ScholarPubMed