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P-881 - Anxiety, Depression and Quality of Life in Parents of Children Affected by Rare Diseases

Published online by Cambridge University Press:  15 April 2020

R.L. Picci ,
F. Trivelli ,
R. Lala ,
P.M. Furlan ,
C. Marmo  and
F. Oliva
R.L. Picci
Affiliation:
Department of Mental Health, University of Turin ‘San Luigi Gonzaga’, Orbassano
F. Trivelli
Affiliation:
Department of Mental Health, University of Turin ‘San Luigi Gonzaga’, Orbassano
R. Lala
Affiliation:
Specialistic Pediatry, Sant’Anna Obstetric and Gynecological Hospital, Turin, Italy
P.M. Furlan
Affiliation:
Department of Mental Health, University of Turin ‘San Luigi Gonzaga’, Orbassano
C. Marmo
Affiliation:
Department of Mental Health, University of Turin ‘San Luigi Gonzaga’, Orbassano
F. Oliva
Affiliation:
Department of Mental Health, University of Turin ‘San Luigi Gonzaga’, Orbassano

Abstract

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Introduction

Rare diseases are chronically debilitating, possibly impairing the quality of life both of the patient and of his parents.

Aims

To examine the quality of life and the coping strategies of the parents of children affected with rare diseases comparing 30 mothers and 25 fathers of children affected by rare diseases with 30 mothers and 26 fathers of non-rare chronic diseases. Anxiety, depression, coping strategies, satisfaction about their life are assessed.

Methods

All the subjects are interviewed and undergo an evaluation with the self-report tools Satisfaction With Life Scale, Profile of Mood States, COPE, Hamilton Rating Scale for Depression and Hamilton Rating Scale for Anxiety. The data are analyzed using the statistical package SPSS.

Results

Our results show that subjects having children with rare diseases experience more anxiety, but not a more severe depression, worse psychological well-being and have more difficulties to face the daily living. Comparing the mothers and the fathers of children with rare diseases, the first group show higher scores in HRSA.

Conclusions

So the feature of uncertainty of a rare disease in terms of aetiology, course and treatment can be associated with a more severe impact on the parents’ psychological end emotional well-being.

Type
Abstract
Information
European Psychiatry , Volume 27 , Issue S1: Abstracts of the 20th European Congress of Psychiatry , 2012 , pp. 1
Copyright
Copyright © European Psychiatric Association 2012
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