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The willingness to participate in health research studies of individuals with Turkish migration backgrounds: barriers and resources

Published online by Cambridge University Press:  15 April 2020

D. Dingoyan ,
H. Schulz  and
M. Mösko
D. Dingoyan*
Affiliation:
University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Germany
H. Schulz
Affiliation:
University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Germany
M. Mösko
Affiliation:
University Medical Center Hamburg-Eppendorf, Department of Medical Psychology, Germany
*
*Corresponding Author. E-mail address:d.dingoyan@uke.de (D. Dingoyan)
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Abstract

Background

Lower participation rates of ethnic minorities in health research studies and potential participation barriers are commonly reported.

Methods

Four semi-structured focus groups of individuals with Turkish migration backgrounds living in Germany were conducted to identify potential participation barriers. Documented statements and superscripted presentation cards by the participants were evaluated with a qualitative content analysis.

Results

The following eight potential reasons for the lower participation rates were identified: role of women, lack of knowledge, lack of interest, German-Turkish interactions, mistrust, anxiety, data privacy protection and benefits of the study. Additionally, the following recruitment strategies to enhance participation rates were found: public relations, especially word-of-mouth promotion and contacting Turkish key figures, (non-) tangible incentives and trust building through transparent communication of the project and its conditions.

Discussion

The findings provide a wide range of potential participation barriers and implications that should be considered to enhance the participation rates of minority populations.

Conclusion

The willingness to participate in health research studies can be increased through particular efforts, which should be tailored to the recruitment of the underrepresented target population.

Keywords

MigrationUnderrepresentedMinorityParticipationRecruitmentBarriersResearch study
Type
Research Article
Information
European Psychiatry , Volume 27 , Issue S2: Migration and Mental Health , June 2012 , pp. S4 - S9
Copyright
Copyright © 2012 Elsevier Masson SAS

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