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Being at Home: A Feminist Phenomenology of Disorientation in Illness

Published online by Cambridge University Press:  01 January 2020

Corinne Lajoie
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Abstract

This article explores the relation among illness, home, and belonging. Through a feminist phenomenological framework, I describe the disorientations of being diagnosed with borderline personality disorder (BPD) and living with mental illness. This research anticipates the consequences of illness and serious (bodily) disorientations for a conception of belonging as seamless body–world compatibility. Instead, this article examines how the (in)stability of bodily dwellings in experiences of disorientation can suggest ways of being in the world that are more attentive to interdependency, unpredictability, and change in human experience. I argue that these types of dwellings function as a more capacious and apposite metaphor to account for variations in belonging. This discussion outlines the ethical importance of building worlds that make room for different ways of being at home in and through our interactions with others. Although my discussion does not supply norms for ethical action, I contend that a feminist phenomenology of illness generates saliences and illuminates sensibilities that can transform our ways of being with others.

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Articles
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Hypatia , Volume 34 , Issue 3 , Summer 2019 , pp. 546 - 569
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Copyright © 2019 by Hypatia, Inc.

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References

Abrams, Thomas. 2014. Is everyone upright? Erwin Straus’ “The Upright Posture” and disabled phenomenology. Human Affairs: Postdisciplinary Humanities and Social Sciences Quarterly 24 (4): 564–73.CrossRefGoogle Scholar
Ahmed, Sara. 2006. Queer phenomenology: Orientations, objects, others. Durham, N.C.: Duke University Press.CrossRefGoogle Scholar
Aho, Kevin. 2018. Existential medicine: Essays on health and illness. Lanham, Md.: Rowman and Littlefield.Google Scholar
Al‐Saji, Alia. 2010. The racialization of Muslim veils: A philosophical analysis. Philosophy and Social Criticism 36 (8): 875–902.CrossRefGoogle Scholar
Alcoff, Linda Martin. 2006. Visible identities: Race, gender, and the self. New York and Oxford: Oxford University Press.CrossRefGoogle Scholar
Anglin, Deidre M., Alberti, Philip M., Link, Bruce G., and Phelan, Jo C. 2008. Racial differences in beliefs about the effectiveness and necessity of mental health treatment. American Journal of Community Psychology 42 (1–2): 17–24.CrossRefGoogle ScholarPubMed
American Psychiatric Association (APA). 2013. Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, Va.: American Psychiatric Publishing.Google Scholar
Aviram, Ron B., Brodsky, Beth S., and Stanley, Barbara. 2006. Borderline personality disorder, stigma, and treatment implications. Harvard Review of Psychiatry 14 (5): 249–56.CrossRefGoogle ScholarPubMed
Barned, Claudia, Lajoie, Corinne, and Racine, Eric. Forthcoming. Addressing the practical implications of intersectionality in clinical medicine: Ethical, embodied, and institutional dimensions. American Journal of Bioethics.Google Scholar
Bartky, Sandra Lee. 1990. Femininity and domination: Studies in the phenomenology of oppression. New York and London: Routledge.Google Scholar
de Beauvoir, Simone. 1949. Le deuxième sexe. Paris: Gallimard.Google Scholar
Berger, Bria. 2014. Power, selfhood and identity: A feminist critique of borderline personality disorder. Advocate's Forum: 1–9.Google Scholar
Carel, Havi. 2007. Can I be ill and be happy? Philosophia 35 (2): 95–110.CrossRefGoogle Scholar
Carel, Havi. 2016a. Phenomenology of illness. Oxford: Oxford University Press.CrossRefGoogle Scholar
Carel, Havi. 2016b. The social world of illness. In Phenomenology of sociality: Discovering the “we”, ed. Moran, Dermot and Szanto, Thomas. London: Routledge.Google Scholar
Crichton, Paul, Carel, Havi, and Kidd, Ian James. 2017. Epistemic injustice in psychiatry. British Journal of Psychiatry 41 (2): 65–70.Google Scholar
Crowe, Maria. 2000. Constructing normality: A discourse analysis of the DSM‐IV. Journal of Psychiatric and Mental Health Nursing 7 (1): 69–77.CrossRefGoogle ScholarPubMed
Cuffari, Elena. 2011. Habits of transformation. Hypatia 26 (3): 535–53.CrossRefGoogle Scholar
Diedrich, Lisa. 2001. Breaking down: A phenomenology of disability. Literature and Medicine 20 (2): 209–30.CrossRefGoogle ScholarPubMed
Dolezal, Luna. 2017. Feminist reflections on the phenomenological foundations of home. Symposium 21 (2): 101–20.CrossRefGoogle Scholar
Erevelles, Nirmala. 2011. The color of violence: Reflecting on gender, race, and disability. In Feminist disability studies, ed. Hall, Kim Q. Bloomington: Indiana University Press.Google Scholar
Fanon, Frantz. 1970. Black skin, white masks. London: Paladin.Google Scholar
Fernandez, Anthony V. Forthcoming‐a. Merleau‐Ponty and the foundations of psychopathology. In The Bloomsbury Companion to Philosophy of Psychiatry, ed. Tekin, Serife and Bluhm, Robyn. London: Bloomsbury Academic.Google Scholar
Fernandez, Anthony V. Forthcoming‐b. Phenomenological approaches to psychiatric classification. In The Oxford Handbook of Phenomenological Psychopathology, ed. Stanghellini, Giovanni, Broome, Matthew, Fernandez, Anthony V., Fusar‐Poli, Paolo, and Rosfort, René. Oxford: Oxford University Press.Google Scholar
Freeman, Lauren. 2018. Introduction: Feminist phenomenology, medicine, bioethics, and health. International Journal of Feminist Approaches to Bioethics 11 (2): 1–13.CrossRefGoogle Scholar
Gaines, Atwood D. 1992. Ethnopsychiatry: The cultural construction of professional and folk psychiatries. Albany: SUNY Press.Google Scholar
Garland‐Thomson, Rosemarie. 2011a. Integrating disability, transforming feminist theory. In Feminist disability studies, ed. Hall, Kim Q. Bloomington: Indiana University Press.Google Scholar
Garland‐Thomson, Rosemarie. 2011b. Misfits: A feminist materialist disability concept. Hypatia 26 (3): 591–609.CrossRefGoogle Scholar
Grambal, Ales, Prasko, Jan, Kamaradova, Dana, Latalova, Klara, Holubova, Michaela, Marackova, Marketa, Ociskova, Marie, and Slepecky, Milos. 2016. Self‐stigma in borderline personality disorder: Cross‐sectional comparison with schizophrenia spectrum disorder, major depressive disorder, and anxiety disorders. Neuropsychiatric Disease and Treatment 12: 2439–48.Google ScholarPubMed
Guenther, Lisa. 2013. Solitary confinement: Social death and its afterlives. Minneapolis: University of Minnesota Press.CrossRefGoogle Scholar
Hall, Kim Q., ed. 2011. Feminist disability studies. Bloomington: Indiana University Press.Google Scholar
Harbin, Ami. 2012. Bodily disorientation and moral change. Hypatia 27 (2): 261–80.CrossRefGoogle Scholar
Harbin, Ami. 2014. Disorientation and the medicalization of struggle. International Journal of Feminist Approaches to Bioethics 7 (1): 99–121.CrossRefGoogle Scholar
Harbin, Ami. 2016. Disorientation and moral life. New York: Oxford University Press.CrossRefGoogle Scholar
Heinämaa, Sara. 2010. A phenomenology of sexual difference: Types, styles and persons. In Feminist metaphysics: Explorations in the ontology of sex, gender and identity, ed. Witt, Charlotte. New York: Springer.Google Scholar
Heinämaa, Sara. 2014. Transformations of old age: Selfhood, normativity, and time. In Simone de Beauvoir's philosophy of age: Gender, ethics, and time, ed. Stoller, Silvia. Berlin: De Gruyter.Google Scholar
Herndon, April. 2011. Disparate but disabled: Fat embodiment and disability studies. In Feminist disability studies, ed. Hall, Kim Q. Bloomington: Indiana University Press.Google Scholar
Husserl, Edmund. 1989. Ideas pertaining to a pure phenomenology and to a phenomenological philosophy. Trans. R. Rojcewicz and A. Schuwer. Boston and London: Kluwer Academic Publishers.CrossRefGoogle Scholar
Jacobson, Kirsten. 2004. Agoraphobia and hypochondria as disorders of dwelling. International Studies in Philosophy 36 (2): 31–44.CrossRefGoogle Scholar
Jacobson, Kirsten. 2009. A developed nature: A phenomenological account of the experience of home. Continental Philosophy Review 42 (3): 355–373.CrossRefGoogle Scholar
Jansen, Julia, and Wehrle, Maren. 2018. The normal body: Female bodies in changing contexts of normalization and optimization. In New feminist perspectives on embodiment, ed. Dolezal, Luna and Fischer, Clara. New York: Palgrave MacMillan.Google Scholar
Kafai, Shayda. 2012. The mad border body: A political in‐betweenness. Disability Studies Quarterly 33 (1): no pagination.CrossRefGoogle Scholar
Kattari, Shanna K., Olzman, Miranda, and Hanna, Michele D. 2018. “You look fine!” Ableist experiences by people with invisible disabilities. Affilia 33 (4): 477–92.CrossRefGoogle Scholar
Kidd, Ian J., and Carel, Havi. 2017. Epistemic injustice and illness. Journal of Applied Philosophy 34 (2): 172–90.CrossRefGoogle ScholarPubMed
Kidd, Ian J., and Carel, Havi. 2018. Pathocentric epistemic justice and conceptions of health. In Overcoming epistemic injustice: Social and psychological perspectives, ed. Sherman, Benjamin R. and Goguin, Stacey. New York: Rowman and Littlefield.Google Scholar
Kusch, Martin, and Ratcliffe, Matthew. 2018. The world of chronic pain: A dialogue. In Existential medicine: Essays on health and illness, ed. Aho, Kevin. Lanham, Md.: Rowman and Littlefield International.Google Scholar
LaChance Adams, Sarah, and Burcher, Paul. 2014. Communal pushing: Childbirth and intersubjectivity. In Feminist Phenomenology and Medicine, ed. Zeiler, Kristin and Käll, Lisa Folkmarson. Albany: SUNY Press.Google Scholar
Lester, Rebecca J. 2013. Lessons from the borderline: Anthropology, psychiatry, and the risks of being human. Feminism and Psychology 23 (1): 70–77.CrossRefGoogle Scholar
Lewis, Glyn, and Appleby, Louis. 1988. Personality disorder: The patients psychiatrists dislike. British Journal of Psychiatry (July): 44–49.CrossRefGoogle Scholar
Martin, Biddy, and Mohanty, Chandra Talpade. 1986. Feminist politics: What's home got to do with it? In Feminist studies/critical studies, ed. de Lauretis, Teresa. Bloomington: Indiana University Press.Google Scholar
McDonald, Matthew, Pietsch, Tina, and Wilson, John. 2010. Ontological insecurity: A guiding framework for borderline personality disorder. Journal of Phenomenological Psychology 41 (1): 85–105.Google Scholar
Merleau‐Ponty, Maurice. 2012. Phenomenology of perception. Trans. by D. Landes. New York, London: Routledge.Google Scholar
Mingus, Mia. 2011. Changing the Framework: Disability Justice. https://leavingevidence.wordpress.com/2011/02/12/changing-the-framework-disability-justice/ (accessed November 24th, 2018).Google Scholar
Nehls, Nadine. 1998. Borderline personality disorder: Gender stereotypes, stigma, and limited system of care. Issues in Mental Health Nursing, 19 19 (2): 97–112.CrossRefGoogle ScholarPubMed
National Institute of Mental Health (NIMH). 2017. Borderline personality disorder. https://www.nimh.nih.gov/health/topics/borderline-personality-disorder/index.shtml.Google Scholar
North, Carol S. 2015. The classification of hysteria and related disorders: Historical and phenomenological considerations. Behavioral Sciences 5 (4): 496–517.CrossRefGoogle ScholarPubMed
Oksala, Johanna. 2016. Feminist experiences: Foucauldian and phenomenological investigations. Evanston, Ill.: Northwestern University Press.Google Scholar
Ortega, Mariana. 2016. In‐between: Latina feminist phenomenology, multiplicity, and the self. Albany: SUNY Press.Google Scholar
Ratcliffe, Matthew. 2009. Belonging to the world through the feeling body. Philosophy, Psychiatry, and Psychology 16 (2): 205–11.Google Scholar
Ratcliffe, Matthew. 2015. Experiences of depression: A study in phenomenology. Oxford: Oxford University Press.Google Scholar
Ratcliffe, Matthew. 2018. The interpersonal structure of depression. Psychoanalytic Psychotherapy 32 (2): 122–39.CrossRefGoogle Scholar
Reagon, Bernice Johnson. 1983. Coalition politics: Turning the century. In Home girls: A black feminist anthology, ed. Smith, Barbara. New York: Kitchen Table‐Women of Color Press.Google Scholar
Reardon, Sara. 2014. NIH rethinks psychiatry trials. Nature 507: 288.CrossRefGoogle ScholarPubMed
St. Pierre, Joshua. 2015. Distending straight‐masculine time: A phenomenology of the disabled speaking body. Hypatia 30 (1): 49–65.CrossRefGoogle Scholar
Salamon, Gayle. 2012. The phenomenology of rheumatology: Disability, Merleau‐Ponty, and the fallacy of maximal grip. Hypatia 27 (2): 243–60.CrossRefGoogle Scholar
Salamon, Gayle. 2018. The life and death of Latisha King: A critical phenomenology of transphobia. New York: New York University Press.CrossRefGoogle Scholar
Sestito, Mariateresa, Raballo, Andrea, Stanghellini, Giovanni, and Gallese, Vittorio. 2017. Editorial: Embodying the self: Neurophysiological perspectives on the psychopathology of anomalous bodily experiences. Frontiers in Human Neuroscience 11: 1–4.CrossRefGoogle ScholarPubMed
Shaw, Clare, and Proctor, Gillian. 2005. Women at the margins: A critique of the diagnosis of borderline personality disorder. Feminism and Psychology 15 (4): 483–90.CrossRefGoogle Scholar
Sheehan, Lindsay, Nieweglowski, Katherine, and Corrigan, Patrick. 2016. The stigma of personality disorders. Current Psychiatry Reports 18 (1): 11.CrossRefGoogle ScholarPubMed
Skodol, Andrew E., and Bender, Donna S. 2003. Why are women diagnosed borderline more than men? Psychiatric Quarterly 74 (4): 349–60.CrossRefGoogle ScholarPubMed
Svenaeus, Fredrik. 2015. The phenomenology of chronic pain: Embodiment and alienation. Continental Philosophy Review 48 (2): 107–22.CrossRefGoogle Scholar
Taylor, Ashley. 2015. The discourse of pathology: Reproducing the able mind through bodies of color. Hypatia 30 (1): 181–98.CrossRefGoogle Scholar
Toombs, S. Kay. 1993. The meaning of illness: A phenomenological account of the different perspectives of physician and patient. Dordrecht: Kluwer Academic.Google Scholar
Toombs, S. Kay. 2010. The body in multiple sclerosis: A patient's perspective. In The body in medical thought and practice, ed. Leder, Drew. New York: Springer.Google Scholar
Walton, Jo Ann. 2001. The lived experience of mental illness. In Handbook of phenomenology and medicine, ed. Kay Toombs, S. Dordrecht: Kluwer Academic Publishers.Google Scholar
Wehrle, Maren. 2015. Normality and normativity in experience. In Normativity in perception, ed. Breyer, Thiemo and Doyon, Maxime. Basingstoke, UK: Palgrave Macmillan.Google Scholar
Wehrle, Maren. 2016. Normative embodiment: The role of the body in Foucault's genealogy. A phenomenological re‐reading. Journal of the British Society for Phenomenology 47 (1): 56–71.CrossRefGoogle Scholar
Wehrle, Maren. 2017. The normative body and the embodiment of norms: Bridging the gap between phenomenological and Foucauldian approaches. In Yearbook for eastern and western philosophy, ed. Feger, Hans, Dikun, Xie, and Ge, Wang. Berlin and Boston: De Gruyter.Google Scholar
Weiss, Gail. 2013. Body images: Embodiment as intercorporeality. New York and London: Routledge.CrossRefGoogle Scholar
Weiss, Gail. 2017. The “normal abnormalities” of disability and aging: Merleau‐Ponty and Beauvoir. In Feminist phenomenology futures, ed. Fielding, Helen and Olkowski, Dorothea. Bloomington: Indiana University Press.Google Scholar
Whaley, Arthur L. 1997. Ethnic and racial differences in perceptions of dangerousness of persons with mental illness. Psychiatric Services 48 (10): 1328–30.Google ScholarPubMed
Wolframe, PhebeAnn M. 2013. The madwoman in the academy, or, revealing the invisible straightjacket: Theorizing and teaching saneism and sane privilege. Disability Studies Quarterly 33 (1).Google Scholar
Wong, Eunice C., Collins, Rebecca L., Cerully, Jennifer, Seelam, Rachana, and Roth, Elizabeth. 2017. Racial and ethnic differences in mental illness stigma and discrimination among Californians experiencing mental health challenges. RAND Health Quarterly 6 (2): 1–12.Google ScholarPubMed
Yancy, George. 2016. White embodied gazing, the black body as disgust, and the aesthetics of un‐suturing. In Body Aesthetics, ed. Irvin, Sherri. Oxford: Oxford University Press.Google Scholar
Yancy, George. 2017. The violent weight of whiteness: The existential and psychic price paid by black male bodies. In The Oxford Handbook of Philosophy and Race, ed. Zack, Naomi. Oxford: Oxford University Press.Google Scholar
Young, Iris Marion. 2009. On female body experience: “Throwing like a girl” and other essays. New York: Oxford University Press.Google Scholar
Zeiler, Kristin, and Guntram, Lisa. 2014. Sexed embodiment in atypical pubertal development: Intersubjectivity, excorporation, and the importance of making space for difference. In Feminist phenomenology and medicine, ed. Zeiler, Kristin and Käll, Lisa Folkmarson. Albany: SUNY Press.Google Scholar
Zeiler, Kristin, and Käll, Lisa Folkmarson, eds. 2014. Feminist phenomenology and medicine. Albany: SUNY Press.Google Scholar
Zimmerman, Mark, and Gazarian, Doug. 2014. Is research on borderline personality disorder underfunded by the National Institute of Health? Psychiatry Research 220 (3): 941–44.CrossRefGoogle ScholarPubMed