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International overview of health technology assessment training tools and materials for patients and consumers

Published online by Cambridge University Press:  21 September 2023

Eunice Low*
Affiliation:
Department of Professional Practice Assessment, Haute Autorité de Santé (HAS), Saint-Denis, France
Joëlle André-Vert
Affiliation:
Department of Professional Practice Assessment, Haute Autorité de Santé (HAS), Saint-Denis, France
Gaëlle Fanelli
Affiliation:
Department of Professional Practice Assessment, Haute Autorité de Santé (HAS), Saint-Denis, France
Margaret Galbraith
Affiliation:
Department of Professional Practice Assessment, Haute Autorité de Santé (HAS), Saint-Denis, France
*
Corresponding author: Eunice Low; Email: e.low@has-sante.fr

Abstract

Objectives

The study, conducted by the French National Authority for Health (HAS), aimed to identify available online health technology assessment (HTA) training tools for patients, specifically those used by HTA bodies (HTAbs) and major selected European and international patient and consumer groups (PCGs), to inform an HTA training approach for HAS.

Methods

A literature search, a review of selected websites, semi-structured interviews with HTAbs and patient groups, and discussion within a dedicated working group to help target the needs and preferences of patients and consumers were conducted. Online HTA training tools relating to HTA and patient and public involvement (PPI), published or translated into English or French, were included in the study results.

Results

Eighty-two online HTA training tools for patients and consumers were selected according to the specified inclusion criteria coming from sixteen international HTAbs, nine European and international PCGs, and thirteen other organizations. Two main categories emerged: the first relating to HTA and the second relating to PPI in HTA. The formats of these tools ranged from interactive and non-interactive formats with varying accessibility and assessment methods. No journal articles mentioned explicitly the content and format of PCG training tools.

Conclusions

This research served as a basis for HAS to develop their own HTA training tools and materials for patients and consumers. Two training tools were subsequently developed, guided by the needs and preferences of a patient and consumer working group, and were published on the HAS website in November 2022.

Type
Method
Copyright
© The Author(s), 2023. Published by Cambridge University Press

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References

Facey, KM, Ploug-Hansen, H, Single, ANV. Patient involvement in health technology assessment. Singapore: ADIS; 2017.CrossRefGoogle Scholar
Werkö, SS, Staniszewska, S. Patient and public involvement in health technology assessment: A new dawn? Int J Technol Assess Health Care. 2021;37:e54.CrossRefGoogle ScholarPubMed
Toledo-Chávarri, A, Alvarez-Perez, Y, Triñanes, Y, et al. Toward a strategy to involve patients in Health Technology Assessment in Spain. Int J Technol Assess Health Care. 2019;35:9298.CrossRefGoogle Scholar
Toledo-Chávarri, A, Triñanes Pego, Y, Rodrigo, ER, et al. Evaluation of patient involvement strategies in health technology assessment in Spain: the viewpoint of HTA researchers. Int J Technol Assess Health Care. 2020;37:e25.CrossRefGoogle ScholarPubMed
Norburn, L, Thomas, L. Expertise, experience, and excellence. Twenty years of patient involvement in health technology assessment at NICE: An evolving story. Int J Technol Assess Health Care. 2020;37:e15.CrossRefGoogle ScholarPubMed
Silva, AS, Facey, K, Bryan, S, Galato, D. A framework for action to improve patient and public involvement in health technology assessment. Int J Technol Assess Health Care. 2021;38:e8.CrossRefGoogle ScholarPubMed
Chen, KA, Huang, LY, Gau, CS. Patient Involvement in the Health Technology Assessment Process in Taiwan. Front Med Technol. 2021;3:732160.CrossRefGoogle ScholarPubMed
Gesbert, C, André-Vert, J, Guerrier, M, et al. The contribution of French patient and consumer groups to health technology assessments over a 2-year period: An observational retrospective study. Int J Technol Assess Health Care. 2021;37:e48.CrossRefGoogle Scholar
Haute Autorité de santé. Projet stratégique 2019–2024. Saint-Denis La Plaine: HAS; 2018, p. 28.Google Scholar
Haute Autorité de santé. Coopération entre la HAS et les usagers; 2022.Google Scholar
Haute Autorité de santé. Missions de la HAS; 2018.Google Scholar
Haute Autorité de santé. Renforcer l’engagement des usagers dans l’évaluation des technologies de santé à la HAS. Note de cadrage Saint-Denis La Plaine: HAS; 2021.Google Scholar
Pinho-Gomes, AC, Stone, J, Shaw, T, et al. Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review. Int J Technol Assess Health Care. 2022;38:e46.CrossRefGoogle ScholarPubMed
Hämeen-Anttila, K, Komulainen, J, Enlund, H, et al. Incorporating patient perspectives in health technology assessments and clinical practice guidelines. Res Social Adm Pharm. 2016;12:903913.CrossRefGoogle ScholarPubMed
Abelson, J, Forest, PG, Eyles, J, et al. Deliberations about deliberative methods: Issues in the design and evaluation of public participation processes. Soc Sci Med. 2003;57:239251.CrossRefGoogle ScholarPubMed
Facey, K, Boivin, A, Gracia, J, et al. Patients’ perspectives in health technology assessment: A route to robust evidence and fair deliberation. Int J Technol Assess Health Care. 2010;26:334340.CrossRefGoogle ScholarPubMed
Ten Ham, RMT, Frederix, GWJ, Wu, O, et al. Key considerations in the health technology assessment of advanced therapy medicinal products in Scotland, The Netherlands, and England. Value Health. 2022;25:390399.CrossRefGoogle ScholarPubMed
Vanstone, M, Abelson, J, Bidonde, J, et al. Ethical challenges related to patient involvement in health technology assessment. Int J Technol Assess Health Care. 2019;35:253256.CrossRefGoogle ScholarPubMed
Health Technology Assessment International. Values and quality standards for patient involvement in HTA. Canmore: HTAi; 2014.Google Scholar
Wale, JL, Thomas, S, Hamerlijnck, D, Hollander, R. Patients and public are important stakeholders in health technology assessment but the level of involvement is low - A call to action. Res Involv Engagem. 2021;7:1.CrossRefGoogle Scholar
Rasburn, M, Crosbie, H, Tonkinson, A, et al. Innovative patient involvement during Covid-19: Keeping patients at the heart of HTA. Front Med Technol. 2021;3:793119.CrossRefGoogle ScholarPubMed
Lampa, E, Sonnentheil, B, Tökés, A, Warner, G. What has the COVID-19 pandemic taught us about conducting patient and public involvement remotely? Insights from a series of digital meeting observations. Res Involv Engagem. 2021;7:73.CrossRefGoogle ScholarPubMed
European Parliament & Council of the European Union. Regulation (EU) 2021/2282 of the European Parliament and of the Council of 15 December 2021 on health technology assessment and amending Directive 2011/24/EU (Text with EEA relevance). Official Journal of the European Union; 2021.Google Scholar
Arksey, H, O’Malley, L. Scoping studies: Towards a methodological framework. Int J Soc Res Methodol. 2005;8:1932.CrossRefGoogle Scholar
Haute Autorité de Santé. Comprendre l’évaluation des technologies de santé; 2022.Google Scholar
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