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The legal appearances of dementia in court rulings: mapping the terrain

Published online by Cambridge University Press:  26 January 2017

Israel (Issi) Doron*
Affiliation:
Head of the Department of Gerontology, University of Haifa, 31905, Haifa, Israel
Perla Werner
Affiliation:
Vice-Rector, University of Haifa, 31905, Haifa, Israel
Benny Spanier
Affiliation:
Center for Aging Studies, University of Haifa, 31905, Haifa, Israel
Ori Lazar
Affiliation:
Faculty of Law University of Haifa, 31905, Haifa, Israel
*
Correspondence should be addressed to: Prof. Israel (Issi) Doron, Head of the Department of Gerontology, University of Haifa, 31905, Haifa, Israel. Phone: +972-4-8240815; Fax: +972-4-8240573. Email: idoron@univ.haifa.ac.il.

Abstract

Background:

Individuals with dementia may appear before the court in different roles: as victims, as witnesses, and as those standing up for their rights. While there is growing interest in the rights of older persons with dementia, relatively little empirical data exists regarding their actual interactions in courts. Therefore, the goal of this study was to empirically map this legal terrain.

Methods:

This study used a descriptive quantitative method. A computerized search of a national legal database limited to the period 2004–2014 and a screening process for the results were used to establish a sample of 280 court rulings that directly addressed dementia. All cases were analyzed and categorized into the following four criteria groups: characteristics of the person with dementia; characteristics of the legal procedure; the legal substance of the case; and the legal outcome.

Results:

The majority of cases involved a single, very-elderly (i.e. over 80 years) woman, living in the community, with unspecified dementia. The majority of cases were heard and decided in lower level courts, addressing a broad range of primarily non-criminal legal issues. Finally, in the majority of non-criminal cases, the person with dementia was found to be legally capable, whereas in the majority of criminal cases, the person with dementia was found incapable.

Conclusions:

The legal needs and rights of persons with dementia are much broader than issues of legal capacity or social protection. Deeper knowledge and more research is needed in order to fully understand the contexts in which dementia is constructed under the law.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2017 

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References

Boyle, G. (2008). The Mental Capacity Act 2005: promoting the citizenship of people with dementia?. Health and Social Care in the Community, 16, 529537. doi: 10.1111/j.1365-2524.2008.00775.x.Google Scholar
Boyle, G. (2010). Social policy for people with dementia in England: promoting human rights? Health and Social Care in the Community, 18, 511519. doi: 10.1111/j.1365-2524.2010.00928.x Google Scholar
Brookmeyer, R., Johnson, E., Ziegler-Graham, K. and Arrighi, H. M. (2007). Forecasting the global burden of Alzheimer's disease. Alzheimer's and Dementia, 3, 186191. doi: https://doi.org/10.1016/j.jalz.2007.04.381.Google Scholar
Clifford, J. (2011). The UN disability convention and its impact on European equality law. The Equal Rights Review, 6, 1125.Google Scholar
Donnelly, M. (2014). A legal overview. In Foster, C., Herring, J. and Doron, I. (eds.), The Law and Ethics of Dementia (pp. 271281). Oxford: Hart.Google Scholar
Doron, I. (2002). A perspective on ontario's adult guardianship law: the role of law in adjudicating disputes caused by old men marrying young women. The Elder Law Review, 1, 4354.Google Scholar
Doron, I. (2004). Ageing in the shadow of law: elder guardianship in Israel. Journal of Ageing and Social Policy, 16, 5977. doi:10.1300/J031v16n04_04.Google Scholar
Doron, I. (2006). Elder law: current issues and future frontiers. European Journal on Ageing,3, 6066. doi: 10.1007/s10433-006-0019-z.Google Scholar
Doron, I. (2012). A judicial rashomon: on ageism and narrative justice. Journal of Cross-Cultural Gerontology,27, 1728. doi:10.1007/s10823-012-9160-7 Google Scholar
Doron, I. (2013). Older Europeans and the European court of justice. Age and Ageing, 42, 604608. doi: 10.1093/ageing/aft053.CrossRefGoogle ScholarPubMed
Doron, I. (2014). The socio-demographics of dementia. In Foster, C., Herring, J., and Doron, I. (eds.), Dementia, Law and Ethics (pp. 1524). Oxford: Hart.Google Scholar
Doron, I. and Apter, I. (2010). The debate around the need for an international convention on the rights of older persons. The Gerontologist, 50, 586593. doi: 10.1093/geront/gnq016 Google Scholar
Doron, I. and Foster, C. (2016). Is there a duty to respect 'Historical' faith? Christian proselytism of an older Jewish woman with dementia. Journal of Law and Religion, 31, 118129. doi: https://doi.org/10.1017/jlr.2016.16.CrossRefGoogle Scholar
Doron, I. and Hoffman, A. (2005). Time for law: legal literacy and gerontological education. Journal of Gerontological Education, 31, 627642. doi:10.1080/03601270591003373 Google Scholar
Doron, I. and Meenan, H. (2012). Time for geriatric jurisprudence. Gerontology, 58, 193196. doi:10.1159/000335324 CrossRefGoogle ScholarPubMed
Doyle, S. and Flynn, E. (2013). Ireland's ratification of the UN convention on the rights of persons with disabilities: challenges and opportunities. British Journal of Learning Disabilities, 41, 171180. doi: 10.1111/bld.12050 CrossRefGoogle Scholar
Estes, C. L. (2001). Social Policy and Aging. Thousand Oaks, CA: Sage.Google Scholar
Fellows, L. K. (1998). Competency and consent in dementia. Journal of the American Geriatrics Society, 46, 922926. doi: 10.1111/j.1532-5415.1998.tb02734.x Google Scholar
Ferri, C. P. et al. (2006). Global prevalence of dementia: a Delphi consensus study. The Lancet, 366, 21122117. doi: https://doi.org/10.1016/S0140-6736(05)67889-0 CrossRefGoogle Scholar
Foster, C., Herring, J. and Doron, I. (eds.) (2014). The Law and Ethic of Dementia. Oxford: Hart.Google Scholar
Harpur, P. and Bales, R. (2010). The positive impact of the convention on the rights of persons with disabilities: a case study on the South Pacific and lessons from the U.S. experience. Northern Kentucky Law Review, 37, 363388.Google Scholar
Jacoby, R. (2010). Legal issues and dementia. In Ames, D., Burns, A. and O'Brien, J. T. (eds.), Dementia, 4th edn. (pp. 279283). BocaRaton, FL: CRC Press.Google Scholar
Kane, M. N. (2001). Legal guardianship and other alternatives in the care of elders with Alzheimer's disease. American Journal of Alzheimer's Disease and other Dementias, 16, 8996. doi: 10.1177/153331750101600208 Google Scholar
Kanter, A. S. (2009). The United Nations convention on the rights of persons with disabilities and its implications for the rights of elderly people under international law. Georgia State University Law Review, 527–573.Google Scholar
Kapp, M. B. (2008). Legal issues in dementia. International Journal of Risk and Safety in Medicine, 20, 91104. doi: 10.3233/JRS-2008-0429 Google Scholar
Kapp, M. (2002). Legal standards for the medical diagnosis and treatment of dementia. Journal of Legal Medicine, 23, 359402. doi: 10.1080/01947640290050256 Google Scholar
Kapp, M. (2003). The Law and Older Persons: Is Geriatric Jurisprudence Therapeutic?. Durham, NC: Carolina Academic Press.Google Scholar
Kelly, F. and Innes, A. (2013). Human rights, citizenship and dementia care nursing. International Journal of Older People Nursing, 8, 6170. doi: 10.1111/j.1748-3743.2011.00308.x Google Scholar
King, L. and Series, H. (2014). Assessing capacity. In Foster, C., Herring, J. and Doron, I. (eds.), The Law and Ethics of Dementia (pp. 283300). Oxford, UK: Hart.Google Scholar
Larson, J. E. and Corrigan, P. (2008). The stigma of families with mental illness. Academic Psychiatry, 32, 8791. doi:10.1176/appi.ap.32.2.87 Google Scholar
Lee, T. S. and Krishnan, K. R. (2010). Alzheimer's disease – the inexorable epidemic. Annals of the Academy of Medicine, 39, 505506.Google Scholar
Liptzin, B., Peisah, C., Shulman, K. and Finkel, S. (2010). Testamentary capacity and delirium. International Psychogeriatrics, 22, 950956. doi: 10.1017/S1041610210000712.Google Scholar
Lo, B. (1990). Assessing decision-making capacity. Law, Medicine and Health Care, 18, 193201. doi: 10.1111/j.1748-720X.1990.tb00022.x.Google Scholar
Love, H., Kelly, F. and Doron, I. (2013). Age and ageism in sentencing practices: outcomes from a case law review. Canadian Criminal Law Journal, 17, 253280.Google Scholar
Low, L. F. et al. (2010). Recognition, attitudes, and causal beliefs regarding dementia in Italian, Greek and Chinese Australians. Dementia and Geriatric Cognitive Disorders, 30, 499508. doi:10.1159/000321667.Google Scholar
Mäki-Petäjä-Leinonen, A. (2016). Protecting a person with dementia through restrictions of freedom? Notions of autonomy in the theory and practice of elder care. In Griffiths, A., Mustasaari, S. and Mäki-Petäjä-Leinonen, A. (eds.), Subjectivity, Citizenship and Belonging in Law: Identities and Intersections (chapter 8). Oxford: Routledge.Google Scholar
Manthrope, J., Samsi, K. and Rapaport, J. (2012). More of a leg to stand on: view and usage of the Mental Capacity Act 2005 among staff of local Alzheimer's society and carer organizations. Aging and Mental Health, 16, 102109. doi: 10.1080/13607863.2011.628971 Google Scholar
Marson, D. C., Ingram, K. K., Cody, H. A. and Harrell, L. E. (1995). Assessing the competency of patients with Alzheimer's disease under different legal standards: a prototype instrument. Archives of Neurology, 52, 949954. doi:10.1001/archneur.1995.00540340029010.CrossRefGoogle ScholarPubMed
McLeod, R., Philpin, C., Sweeting, A., Joyce, L. and Evans, R. (2010). Court Experience of Adults with Mental Health Conditions, Learning Disabilities, and Limited Mental Capacity – Report 3: At Court. London: Ministry of Justice. Available at: http://www.justice.gov.uk/downloads/publications/research-and-analysis/moj-research/court-experience-adults-3.pdf; last accessed 10 October 2016.Google Scholar
Monaghan, C. and Begley, A. (2004). Dementia diagnosis and disclosure: a dilemma in practice. Journal of Clinical Nursing, 13, 2229. doi: 10.1111/j.1365-2702.2004.00922.x CrossRefGoogle ScholarPubMed
Navot, S. (2007). The Constitutional Law of Israel. The Netherlands: Kluwer.Google Scholar
O'Neill, N. and Peisah, C. (2011). Capacity and the Law. Sydney, Australia: Sydney University Press.Google Scholar
Peng, F. C. (2003). Is dementia a disease?. Gerontology, 49, 384391. doi: 10.1159/000073767.Google Scholar
Prince, M. and Jackson, J. (2009). World Alzheimer Report. London, UK: Alzheimer's Disease International.Google Scholar
Quinn, G. and Doyle, S. (2012). Taking the UN convention on the rights of persons with disabilities seriously – the past and future of the EU structural funds as a tool to achieve community living. The Equal Rights Review, 9, 6994.Google Scholar
Román, G. C. (2002). Vascular dementia may be the most common form of dementia in the elderly. Journal of the Neurological Sciences, 203, 710.Google Scholar
Shulman, K., Peisah, C., Jacoby, R., Heinik, J. and Finkel, S. (2009). Contemporaneous assessment of testamentary capacity. International Psychogeriatrics, 21, 433–9. doi: 10.1017/S1041610209008874.Google Scholar
Spanier, B., Doron, I. and Milman, F. (2013). Older persons and the European court of human rights. Journal of Cross-Cultural Gerontology, 28, 407. doi: 420.10.1007/s10823-013-9212-7 Google Scholar
Swaffer, K. (2014). Dementia: stigma, language, and dementia-friendly. Dementia, 13, 709716. doi: 10.1177/1471301214548143 Google Scholar
Wagner, W. E. (2010). Using SPSS for Social Statistics and Research Methods. Thousand Oaks, CA: Sage.Google Scholar
Welsh, S., Hassiotis, A., O'mahoney, G. and Deahl, M. (2003). Big brother is watching you – the ethical implications of electronic surveillance measures in the elderly with dementia and in adults with learning difficulties. Aging and Mental Health, 7, 372375. doi: 10.1080/1360786031000150658 Google Scholar
Werner, P. and Doron, I. (2016). Alzheimer's disease and the law: positive and negative consequences of structural stigma and labeling in the legal system. Aging and Mental Health. Epub ahead of print, doi: 10.1080/13607863.2016.1211989 Google Scholar
Werner, P. and Heinik, J. (2008). Stigma by association and Alzheimer's disease. Aging and Mental Health, 12, 9299. doi: 10.1080/13607860701616325 CrossRefGoogle ScholarPubMed
Woods, B. and Pratt, R. (2005). Awareness in dementia: ethical and legal issues in relation to people with dementia. Aging and Mental Health, 9, 423429. doi: 10.1080/13607860500143125.Google Scholar