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Patient and public involvement: in theory and in practice

Published online by Cambridge University Press:  15 April 2014

A Robinson
A Robinson*
Affiliation:
Research Design Service North East, National Institute for Health Research, jointly hosted by the Institute of Health and Society, Newcastle University, and the School of Medicine, Pharmacy and Health, Durham University, UK
*
Address for correspondence: Mr A Robinson, North of England Commissioning Support, Teesdale House, Westpoint Road, Thornaby, Stockton-on-Tees TS17 6BL, UK E-mail: andrew.robinson15@nhs.net
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Abstract

Background:

You've probably heard of patient and public involvement by now. You may even have ‘involved’ people in your research. But why involve patients, carers and members of the public at all? Is it just another hoop to jump through when preparing a research funding application for submission, or could it actually add something to your research? Could involving patients and members of the public even help you to design and deliver better research, with outcomes focused directly on the needs of your patient group?

Objective:

This article aims to answer some of these questions. It considers the theory underpinning patient and public involvement. This is followed by practical suggestions and advice to help you develop (or further develop if you already involve people!) patient and public involvement within your own research. There is also a case study to illustrate some of the main points, and extracts written by members of Research Design Service North East Consumer Panels.

Keywords

PatientsCarersPatient And Public InvolvementConsultationCollaborationCommunityCommunity NetworksConsumer Involvement
Type
Review Article
Information
The Journal of Laryngology & Otology , Volume 128 , Issue 4 , April 2014 , pp. 318 - 325
Copyright
Copyright © JLO (1984) Limited 2014 

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