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Dying in America — An Examination of Policies that Deter Adequate End-of-life Care in Nursing Homes

Published online by Cambridge University Press:  01 January 2021

Extract

The quality of end-of-life care in this country is often poor. There is abundant literature indicating that dying individuals do not receive adequate pain medication or palliative care, are tethered to machines and tubes in a way that challenges their dignity and autonomy, and are not helped to deal with the emotional grief and psychological angst that may accompany the dying process. While this is true for individuals in many settings, it seems to be especially true for individuals in nursing homes. This is somewhat puzzling given that (1) considerable resources have been devoted to bringing public attention to this problem, (2) we have the knowledge and expertise to provide such care, and (3) we have a government-financed benefit that covers this type of care - the Medicare hospice benefit (MHB).

While utilization of hospice care has increased during the last decade, there is considerable evidence that hospice care remains underutilized particularly in the long term care setting.

Type
Independent
Copyright
Copyright © American Society of Law, Medicine and Ethics 2005

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References

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Those who are not Medicare eligible may have private insurance that covers hospice care or may be eligible for the Medicaid hospice benefit. The majority of state Medicaid programs cover hospice services. Medicaid requires that, if a state does provide hospice services, state programs include “at minimum” the same services covered by Medicare. See Gage, et al., supra note 1, at 13.Google Scholar
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See Publication of OIG Special Fraud Alerts: Fraud and Abuse in Nursing Home Arrangements With Hospices, 63 Fed. Reg. 20,415, 20,416 (April 24, 1998) [hereinafter OIG Special Fraud Alert].Google Scholar
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While many respondents felt that this provision of the fraud alert negatively affected quality of care, it is not clear whether it may have also affected hospice revenue. In order to know whether hospices were actually providing these bridge services out of quality of care concerns or business concerns it would be helpful to know how much hospices expended on these free services compared to how much they subsequently earned from providing covered hospice services for those patients.Google Scholar
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Others have advocated this approach as well referring to it as “Medicaring.” See Wilkinson, A. M. and Lynn, J., “Medicaring: An innovative model of financing and delivery of end-of life care,” Critical Issues in Aging (1998). Available at <http://www.asaging.org/am/cia2/mediCaring.html#annew> (last visited March 29, 2005); see also Wilkinson, A. and Forlini, J., “MediCaring: Quality End-of-life Care,” Journal of Health Care Law & Policy 2 (1999): 286297.Google Scholar
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See Campbell, et al., supra note 1, at 275. But see Medicare Payment Advisory Comm’n, Report to the Congress: New Approaches in Medicare 151 (2004), available at <http://www.medpac.gov/publications/congressional_reports/June04_Entire_Report.pdf> (last visited March 30, 2005), at 142 (stating that a recent increase in hospice average length of stay, while the median remained the same, may be due to increased prevalence of nursing home residents in hospice care). Due to the difficulty of predicting life expectancy for many of the illnesses that are prevalent among the nursing home population, it is possible that there is a bimodal distribution of hospice lengths of stay in nursing homes-with a large group of shorter than average length of stay residents and a small group of greater than average length of stay residents. This latter group, although small, may increase the average length of stay while the median remains approximately the same.+(last+visited+March+30,+2005),+at+142+(stating+that+a+recent+increase+in+hospice+average+length+of+stay,+while+the+median+remained+the+same,+may+be+due+to+increased+prevalence+of+nursing+home+residents+in+hospice+care).+Due+to+the+difficulty+of+predicting+life+expectancy+for+many+of+the+illnesses+that+are+prevalent+among+the+nursing+home+population,+it+is+possible+that+there+is+a+bimodal+distribution+of+hospice+lengths+of+stay+in+nursing+homes-with+a+large+group+of+shorter+than+average+length+of+stay+residents+and+a+small+group+of+greater+than+average+length+of+stay+residents.+This+latter+group,+although+small,+may+increase+the+average+length+of+stay+while+the+median+remains+approximately+the+same.>Google Scholar
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Hospice staff providing care to patients in a nursing home must communicate regularly with both the patient's family and caregivers at the nursing facility and attend regular coordination of care meetings with nursing home staff.Google Scholar
See Social Security Act § 1819(c)(4), 42 U.S.C.A. § 1395i-3(c)(4) and 42 U.S.C.A. § 1396r (c)(4)(A)(West Supp. 2004).Google Scholar
These include the loss of a higher rate of reimbursement if a resident is also eligible for the Medicare skilled nursing benefit.Google Scholar
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Nor is the benefit, which went into effect on January 1, 2005, likely to be widely utilized. According to hospice providers, CMS intends only limited use of the provision and will allow it only “when a patient or his physician contacts a hospice agency requesting the evaluation and counseling services.” Moreover, CMS has stated that only physicians employed by a hospice can receive payment under the new benefit, “physicians under contract with the hospice are ineligible for the payments.” The latter restriction may be a concern by CMS that “[p]ayments by hospice agencies to physicians or others in a position to refer patients…may implicate the Federal anti-kickback statute.” Providers: CMS Intends to Make Limited Use of New Hospice Benefit, Inside CMS (December 16, 2002) available at <www.InsideHealthPolicy.com> (last visited March 30, 2005).+(last+visited+March+30,+2005).>Google Scholar
The suggestion that nursing homes be required to provide needed end-of-life care was recommended by HCFA in its comments to the OIG on its September 1997 report. In its written comments to the OIG, HCFA responded: “We suggest amending this recommendation to require nursing homes to provide needed end-of-life care; an important safeguard for beneficiaries who actually may need hospice care in a nursing home should the benefit undergo the proposed change…. Your report correctly recommends the reduction or elimination of the hospice benefit in nursing homes, but without requiring nursing homes to provide end-of-life care we would be doing a disservice to our beneficiaries.” OIG, Hospice Patients, supra note 71, at C-3. The memo further acknowledged that “while many hospice services may be capable of being provided by nursing home staff, many other hospice services (family counseling, bereavement counseling, etc.) probably are not.” Id. at C-4.Google Scholar
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