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What do Kids with Acquired Brain Injury Want? Mapping Neuropsychological Rehabilitation Goals to the International Classification of Functioning, Disability and Health

Published online by Cambridge University Press:  03 May 2019

Robyn Henrietta McCarron Open the ORCID record for Robyn Henrietta McCarron [Opens in a new window] ,
Suzanna Watson  and
Fergus Gracey
Robyn Henrietta McCarron*
Affiliation:
The Cambridge Centre for Paediatric Neuropsychological Rehabilitation, Cambridgeshire and Peterborough NHS Foundation Trust, Cambridge, Cambridgeshire, CB2 8AH, UK Department of Psychiatry, University of Cambridge, Cambridge, Cambridgeshire, CB2 0SZ, UK
Suzanna Watson
Affiliation:
The Cambridge Centre for Paediatric Neuropsychological Rehabilitation, Cambridgeshire and Peterborough NHS Foundation Trust, Cambridge, Cambridgeshire, CB2 8AH, UK Collaborations for Leadership in Applied Health Research and Care East of England Programme, National Institute of Health Research, Cambridge, Cambridgeshire, CB2 8AH, UK
Fergus Gracey
Affiliation:
The Cambridge Centre for Paediatric Neuropsychological Rehabilitation, Cambridgeshire and Peterborough NHS Foundation Trust, Cambridge, Cambridgeshire, CB2 8AH, UK Collaborations for Leadership in Applied Health Research and Care East of England Programme, National Institute of Health Research, Cambridge, Cambridgeshire, CB2 8AH, UK Department of Clinical Psychology, University of East Anglia, Norwich, Norfolk, NR4 7TJ, UK
*
*Correspondence and reprint requests to: Robyn Henrietta McCarron, The Cambridge Centre for Paediatric Neuropsychological Rehabilitation, Brookside Clinic, 18D Trumpington Road, Cambridge CB2 8AH, UK. E-mail: robyn.dudley@cantab.net
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Abstract

Objective: To increase understanding of the community neuropsychological rehabilitation goals of young people with acquired brain injuries (ABIs). Method: Three hundred twenty-six neuropsychological rehabilitation goals were extracted from the clinical records of 98 young people with ABIs. The participants were 59% male, 2–19 years old, and 64% had a traumatic brain injury. Goals were coded using the International Classification of Functioning, Disability and Health: Children and Youth Version (ICF-CY). Descriptive statistical analysis was performed to assess the distribution of goals across the ICF-CY. Chi-squared and Cramer’s V were used to identify demographic and injury-related associations of goal type. Results: The distribution of goals was 52% activities and participation (AP), 28% body functions (BF), 20% environmental factors (EF), and <1% body structures (BS). The number of EF goals increased with age at assessment (V = .14). Non-traumatic causes of ABIs were associated with more EF goals (V = .12). There was no association between sex or time post-injury and the distribution of goals across the ICF-CY. Conclusions: Young people with ABIs have a wide range of community neuropsychological rehabilitation goals that require an individualized, context-sensitive, and interdisciplinary approach. Community neuropsychological rehabilitation services may wish to ensure they are resourced to focus intervention on AP, with increasing consideration for EF as a young person progresses through adolescence. The findings of this research support models of community neuropsychological rehabilitation that enable wellness by combining direct rehabilitative interventions with attention to social context and systemic working across agencies. (JINS, 2019, 25, 403–412)

Keywords

Educationemotionsenvironmentfamilyfriendshipsrelationshipsparticipationsocial
Type
Regular Research
Information
Journal of the International Neuropsychological Society , Volume 25 , Issue 4 , April 2019 , pp. 403 - 412
Copyright
Copyright © The International Neuropsychological Society, 2019. 

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