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Digging deeper: A critique of the mediation study of spirituality in ALS patients

Published online by Cambridge University Press:  27 September 2024

Hartika Utami Fitri*
Affiliation:
Department of Islamic Guidance and Counselling, Universitas Islam Negeri Raden Fatah Palembang, South Sumatra, Indonesia
Rikas Saputra
Affiliation:
Department of Islamic Guidance and Counselling, Universitas Islam Negeri Raden Fatah Palembang, South Sumatra, Indonesia
Kadek Suhardita
Affiliation:
Department of Guidance and Counselling, Universitas PGRI Mahadewa Indonesia, Denpasar, Indonesia
I Made Suarta
Affiliation:
Department of Guidance and Counselling, Universitas PGRI Mahadewa Indonesia, Denpasar, Indonesia
Maria Oktasari
Affiliation:
Department of Guidance and Counselling, Universitas Negeri Malang, Malang, Indonesia
Siti Aminah
Affiliation:
Department of Guidance and Counselling, Universitas Negeri Yogyakarta, Yogyakarta, Indonesia
Palasara Brahmani Laras
Affiliation:
Department of Guidance and Counselling, Universitas Merca Buana Yogyakarta, Yogyakarta, Indonesia
*
Corresponding author: Hartika Utami Fitri; Email: hartika.uf@radenfatah.ac.id
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Abstract

Type
Letter to the Editor
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
Copyright
© The Author(s), 2024. Published by Cambridge University Press.

Dear Editor,

It was with great enthusiasm that I read the recent article by Fernandez et al. (Reference Fernandez, Guenegou and Corcia2024), which examined the effects of social support on the emotional well-being of amyotrophic lateral sclerosis (ALS) patients with a focus on the role of spirituality as a mediator (Fernandez et al. Reference Fernandez, Guenegou and Corcia2024). With valuable insights into how the interaction between social support and spirituality can influence emotional well-being, this article is a significant contribution to our field (Fernandez et al. Reference Fernandez, Guenegou and Corcia2024). However, I feel the need to address some constructive criticisms to deepen our analysis and understanding of this complex relationship.

First, with its positive relationship between social support, spirituality, and emotional well-being, this study is a testament to the rigorous methodology employed (Labrague Reference Labrague2021). However, the online sampling method used, while innovative, calls into question the accurate representation of the ALS population as a whole. Limited internet access and technology use among patients with significant physical disabilities may have affected the external validity of the results (Rios et al. Reference Rios, Magasi and Novak2016). Therefore, more inclusive and representative recruitment methods are needed for future research.

Second, this study adopted a spiritual well-being scale commonly used for other chronic and terminal illnesses, such as cancer (Rabitti et al. Reference Rabitti, Cavuto and Iani2020). Given that ALS has unique psychosocial dynamics, a more specific scale that can capture the nuances of spirituality in the context of motor neurone disease may be more appropriate.

Third, the mediation analyses conducted, while robust, relied on the assumption that there were no unmeasured confounding variables (Lutz et al. Reference Lutz, Thwing and Schmiege2017). However, this study did not consider factors such as disease severity, pain experience, or medical support that could influence emotional well-being and spirituality (Rawdin et al. Reference Rawdin, Evans and Rabow2013). I believe the addition of these variables in future research will significantly strengthen the proposed theoretical model.

Fourth, this study’s results showed that the “faith” dimension of spirituality did not significantly correlate with emotional well-being, which raises questions about the relevance and interpretation of the different components of spirituality in the context of ALS (Fernandez et al. Reference Fernandez, Guenegou and Corcia2024). It is essential to explore further how the individual components of spirituality contribute to emotional well-being and how interventions targeted at specific dimensions may improve patient outcomes (Chen et al. Reference Chen, Lin and Yan2018).

Fifth, while the analyses were impressive, further research with larger samples and longitudinal methods is needed to understand how the relationship dynamics between social support, spirituality and emotional well-being may change, especially as ALS disease progresses (van Groenestijn et al. Reference van Groenestijn, Kruitwagen-van Reenen and Visser-Meily2016).

In conclusion, although Fernandez et al.’s study makes a valuable contribution, several methodological and theoretical issues must be addressed to enrich our understanding of the interactions between social support, spirituality, and emotional well-being in ALS patients (Harris et al. Reference Harris, Thomas and Thomas2018). Further discussion on this topic will trigger more in-depth and focused research.

Competing interests

The authors declare that they have no known competing financial interests or personal relationships that could have influenced the work reported in this paper.

References

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