Hostname: page-component-77c89778f8-n9wrp Total loading time: 0 Render date: 2024-07-17T17:34:43.966Z Has data issue: false hasContentIssue false
  • English
  • Français

The Predicament of Patients

Published online by Cambridge University Press:  24 May 2021

Ian James Kidd  and
Havi Carel
Ian James Kidd*
Affiliation:
University of Nottingham
Havi Carel*
Affiliation:
University of Bristol
*
ian.kidd@nottingham.ac.uk
havi.carel@bristol.ac.uk
Get access Rights & Permissions [Opens in a new window]

Abstract

In this paper we propose that our understanding of pathocentric epistemic injustices can be enriched if they are theorised in terms of predicaments. These are the wider socially scaffolded structures of epistemic challenges, dangers, needs, and threats experienced by ill persons due to their particular emplacement within material, social, and epistemic structures. In previous work we have described certain aspects of these predicaments, such as pathocentric epistemic injustices and pathophobia. A wider systematic perspective is needed to integrate these and other concepts. By thinking predicamentally, we can better understand the interrelated social, epistemic, and practical obstacles experienced by ill persons and connect the many concepts available for theorising them (microaggessions, epistemic injustices, and so on).

Type
Papers
Information
Royal Institute of Philosophy Supplements , Volume 89: How Do We Know? The Social Dimension of Knowledge , May 2021 , pp. 65 - 84
Copyright
Copyright © The Royal Institute of Philosophy and the contributors 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Berenstain, Nora, ‘White Feminist Gaslighting’ Hypatia (forthcoming).Google Scholar
Charlotte, Blease, Havi, Carel, and Keith, Geraghty, ‘Epistemic injustice in healthcare encounters: evidence from chronic fatigue syndrome’, Journal of Medical Ethics 43 (2017), 549–57. doi:10.1136/medethics-2016-103691CrossRefGoogle Scholar
Boyer, Ann, The Undying: A Meditation on Modern Illness (London: Penguin, 2019).Google Scholar
Burroughs, Michael D. and Tollefson, Deborah, ‘Learning to Listen: Epistemic Injustice and the Child’, Episteme 13.3 (2016), 359–77.CrossRefGoogle Scholar
Byrne, Eleanor Alexandra, ‘Striking the Balance with Epistemic Injustice in Healthcare: The Case of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis’, Medicine, Health Care and Philosophy (forthcoming).Google Scholar
Carel, Havi, Illness: The Cry of the Flesh, (London: Routledge, 2018).CrossRefGoogle Scholar
Carel, Havi and Kidd, Ian James, ‘Epistemic Injustice in Healthcare: A Philosophical Analysis’, Medicine, Healthcare and Philosophy 17(4) (2014), 529–40.CrossRefGoogle Scholar
Carel, Havi and Gyorffy, Gita, ‘Seen but not heard: children and epistemic injustice’, The Lancet 384 (2014), 1256–57.CrossRefGoogle ScholarPubMed
Carver, L., Morley, S. and Taylor, P., ‘Voices of Deficit: Mental Health, Criminal Victimisation and Epistemic Injustice’, Illness, Crisis and Loss 25 (2016), doi: 10.1177/1054137316675715Google Scholar
Charon, Rita, Narrative Medicine: Honoring the Stories of Illness (Oxford: Oxford University Press, (2006).Google Scholar
Kathyln, Conway, Beyond Words: Illness and the Limits of Expression (Albuquerque: University of New Mexico Press, 2013).Google Scholar
Paul, Crichton, Havi, Carel and Ian, James Kidd, ‘Epistemic Injustice in Psychiatry’, BJPsych Bulletin 41(2016), 65–70.Google Scholar
Crenshaw, Kimbelé, ‘Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics’, University of Chicago Legal Forum 1.8 (1989), 139–67.Google Scholar
Critchley, Harry, ‘Epistemic Injustice and Medical Neglect in Ontario Jails: The Case of Pregnant Women’, Sherman, Ben and Goguen, Stacey (eds.) Overcoming Epistemic Injustice: Social and Psychological Perspectives (New York: Rowman and Littlefield, 2019), 237–51.Google Scholar
Ian, James Kidd and Havi, Carel, ‘Epistemic Injustice and Illness’, Journal of Applied Philosophy 3 (2016), 172–90.Google Scholar
Dotson, Kristie, ‘Tracking Epistemic Violence, Tracking Practices of Silencing,’ Hypatia 26.2 (2011): 236–57.CrossRefGoogle Scholar
Dusenbery, Maya, Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick (New York: HarperCollins, 2018).Google Scholar
Edwards, Laurie, In the Kingdom of the Sick: A Social History of Chronic Illness in America (London: Bloomsbury, 2013).Google Scholar
Ehrenreich, Barbara, Smile or Die: How Positive Thinking Fooled America and the World (London: Granta, 2009).Google Scholar
Miranda, Fricker, Epistemic Injustice: Power and the Ethics of Knowing, (Oxford: Oxford University Press, 2007).Google Scholar
FitzGerald, C., and Hurst, S., ‘Implicit Bias in Healthcare Professionals: A Systematic Review’, BMC Med Ethics 18, (2017).CrossRefGoogle ScholarPubMed
The Francis Report (2013) ISBN 9780102981476, HC 947 2012-13.Google Scholar
Granger, Kate, The Other Side (Kindle edition, 2014).Google Scholar
Lauren, Freeman and Heather, Stewart, ‘Microaggressions in Clinical Medicine’, Kennedy Institute Ethics Journal, 28, (2018), 411–49.Google Scholar
Heidegger, Martin, Being and Time, (London: Blackwell, (1962 [1927]).Google Scholar
Kidd, Ian James, ‘Pathophobia, Illness, and Vices’, International Journal of Philosophical Studies 27.2 (2019), 286–306.CrossRefGoogle Scholar
Kidd, Ian James and Carel, Havi, ‘Epistemic Injustice and Illness’, Journal of Applied Philosophy 3 (2018), 172–90.Google Scholar
Kidd, Ian James and Carel, Havi, ‘Pathocentric Epistemic Injustice and Conceptions of Health’, Sherman, Benjamin R. and Goguen, Stacey (eds.) Overcoming Epistemic Injustice: Social and Psychological Perspectives (New York: Rowman and Littlefield, 2018), 153–68.Google Scholar
Kidd, Ian James, Medina, José, Pohlhaus, Gaile Jr. (eds.), The Routledge Handbook to Epistemic Injustice, co-edited with (New York: Routledge, 2017).CrossRefGoogle Scholar
Laming Report, The Victoria Climbié Inquiry (London: HMSO, 2003).Google Scholar
Lorde, Audre, The Cancer Journals (San Francisco: Aunt Lute Books, 1997).Google Scholar
Mandell, H.N. and Spiro, H.M. (eds.), When Doctors Get Sick (Dordrecht: Springer, 2013).Google Scholar
José, Medina, The Epistemology of Resistance: Gender and Racial Oppression, Epistemic Injustice, and Resistant Imaginations (Oxford: Oxford University Press, 2012).Google Scholar
Morgen, Sandra, Into Our Own Hands: The Women's Health Movement in the United States, 1969–1990 (New Brunswick: Rutgers University Press, 2002).Google Scholar
Nelson, Jennifer, More Than Medicine: A History of the Feminist Women's Health Movement (New York: New York University Press, 2015).CrossRefGoogle Scholar
Norman, Abby, Ask Me About My Uterus: A Quest to Make Doctor's Believe in Women's Pain, (New York: Nation Books, 2018).Google Scholar
Sontag, Susan, Illness as Metaphor (New York: Farrar, Straus and Giroux, 1978).Google Scholar
Spivak, Gayatri, ‘Can the Subaltern Speak?’, in Nelson, Cary and Grossberg, Lawrence (eds.), Marxism and the Interpretation of Culture (Urbana: University of Illinois Press, 1998), 271–313.Google Scholar
Tremain, Shelley, ‘Knowing Disability, Differently’, Kidd, Ian James, Medina, José, and Pohlhaus, Gaile Jr. (eds.) The Routledge Handbook to Epistemic Injustice (New York: Routledge, 2016), 175–83.Google Scholar