Ethical Problems and Genetics Practice

Michael Parker

doi:10.1017/CBO9781139107792

References

Bibliography

Appadurai, A. ‘Introduction: commodities and the politics of value’, in A. Appadurai (ed.) The Social Life of Things: Commodities in Cultural Perspective (Cambridge University Press, 1986), pp. 3–63 Google Scholar

Appadurai, A.Modernity at Large (Minneapolis: University of Minnesota Press, 1996) Google Scholar

Appadurai, A. (ed.) The Social Life of Things: Commodities in Cultural Perspective (Cambridge University Press, 1986) CrossRef | Google Scholar

Appelbaum, P.S. and Roth, L.H. ‘The therapeutic misconception: informed consent in psychiatric research’ (1982) 5 International Journal of Law and Psychiatry, 319–329 CrossRef | Google Scholar | PubMed

Aristotle, Nicomachean Ethics (London: Penguin, 1976) Google Scholar

Armstrong, D., Michie, S. and Marteau, T. ‘Revealed identity: a study of the process of genetic counselling’ (1998) 47 Social Science and Medicine, 11, 1653–1658 Google Scholar

Ashcroft, R.E. ‘Ethical issues in statistical genetics’, in D.J. Balding, M.J. Bishop and C. Cannings (eds.) Handbook of Statistical Genetics, third edition (Chichester: John Wiley and Sons, 2007), pp. 1325–1345 Google Scholar

Ashcroft, R.E., Lucassen, A., Parker, M., Widdershoven, G. and Verkerk, M. (eds.) Case Analysis in Clinical Ethics (Cambridge University Press, 2005) Google Scholar

Bosk, C.All God’s Mistakes: Genetic Counseling in a Pediatric Hospital (University of Chicago Press, 1992) Google Scholar

Bosk, C. ‘Irony, ethnography, and informed consent’, in B. Hoffmaster (ed.) Bioethics in Social Context (Philadelphia: Temple University Press, 2001), pp. 199–220 Google Scholar

Bosk, C. ‘Professional ethicist available: logical, secular, friendly’ (1999) 128 Daedalus, 47–68 Google Scholar

Bosk, C.What Would You Do? Juggling Bioethics and Ethnography (University of Chicago Press, 2008) Google Scholar

Boulton, M. and Parker, M. ‘Informed consent in a changing environment’ (2007) 65 Social Science and Medicine, 2187–2198 Google Scholar

Bradley-Smith, G., Hope, S., Firth, H.V. and Hurst, J.A.Oxford Handbook of Genetics (Oxford University Press, 2010) Google Scholar

British Society for Human GeneticsGenetic Testing of Children (Birmingham: British Society for Human Genetics, 2010) available at www.bshg.org.uk/GTOC_2010_BSHG.pdf (accessed 1 August 2011) Google Scholar

Brown, N., Rappert, B. and Webster, A. ‘Introducing contested futures: from looking into the future to looking at the future’, in N. Brown, N. Rappertand A. Webster, Contested Futures: A Sociology of Prospective Technoscience (Aldershot: Ashgate, 2000), pp. 3–20 Google Scholar

Burke, B. and Kolker, A. ‘Directiveness in prenatal genetics counselling’ (1994) 22 Women and Health, 31–53 Google Scholar

Burke, S., Bennett, C., Bedward, J. and Fardon, P.The Experiences and Preferences of People Receiving Genetic Information from Healthcare Professionals (Birmingham: NHS National Genetics Education and Development Centre, 2007) Google Scholar

Caplan, A. ‘Neutrality is not morality: the ethics of genetic counseling’, in A. Caplan, B. LeRoy and D. Bartels (eds.) Prescribing our Future: Ethical Challenges in Genetic Counseling (New York: Aldine Press, 1993), pp. 149–165 Google Scholar

Carson, R.A. ‘Interpretive bioethics: the way of discernment’ (1990) 11 Theoretical Medicine and Bioethics, 51–60 CrossRef | Google Scholar | PubMed

Chadwick, R. ‘Genetics, choice and responsibility’ (1999) 1 Health, Risk and Society, 293–300 CrossRef | Google Scholar

Clarke, A.Genetic Counselling: Practice and Principles (London: Routledge, 1994) Google Scholar

Clarke, A. ‘Outcomes and process in genetic counselling’, in P. Harper and A. Clarke, Genetics, Society and Clinical Practice (Oxford: Bios Scientific Publishing, 1997), pp. 165–178 Google Scholar

Clarke, A. ‘The process of genetic counselling: beyond nondirectiveness’, in P. Harper and A. Clarke, Genetics, Society and Clinical Practice (Oxford: Bios Scientific Publishing, 1997), pp. 179–200 Google Scholar

Clarke, A., Richards, M., Kerzin-Storrar, L., et al., ‘Genetic professionals’ reports of nondisclosure of genetic risk information within families’ (2005) 13 European Journal of Human Genetics, 556–562 Google Scholar

Clinical Genetics Society, Guidelines for Pedigree Drawing (Birmingham: Clinical Genetics Society, 2001) available at www.clingensoc.org/Docs/Standards/CGSPedigree.pdf (accessed 29 July 2011) Google Scholar

Cunningham-Burley, S. and Kerr, A. ‘Defining the “social”: towards an understanding of scientific and medical discourses on the social aspects of the new genetics’ (1999) 21 Sociology of Health and Illness, 647–668 CrossRef | Google Scholar

D’Agincourt-Canning, L. ‘Experiences of genetic risk: disclosure and the gendering of responsibility’ (2001) 15 Bioethics, 3, 231–247 Google Scholar

Davis, D.S.Genetic Dilemmas: Reproductive Technology, Parental Choices and Children’s Futures (New York: Routledge, 2001) Google Scholar

Davis, D.S. ‘Rich cases: the ethics of thick description’ (1991) 21 Hastings Center Report, 4, 12–17 CrossRef | Google Scholar

de Vries, R.G. ‘Toward a sociology of bioethics’ (1995) 18 Qualitative Sociology, 1, 119–128 Google Scholar

Dewey, J.Human Nature and Conduct (New York: Prometheus Books, 2002) Google Scholar

Dixon-Woods, M. ‘Why is patient safety so hard? A selective review of ethnographic studies’ (2010) 15 (Suppl. 1) Journal of Health Services Research and Policy, 11–16 Google Scholar

Dolgin, J. ‘Choice, tradition, and the new genetics: the fragmentation of the ideology of family’ (2000) 32 Connecticut Law Review, 523–566 Google Scholar | PubMed

Dunn, M., Sheehan, M., Hope, T. and Parker, M. ‘Towards methodological innovation in empirical ethics research’ (in press) Cambridge Quarterly of Healthcare Ethics Google Scholar

Dzur, A. ‘Democratizing the hospital: deliberative-democratic bioethics’ (2002) 27 Journal of Health Politics, Policy and Law, 2, 177–211 Google Scholar

Edwards, J.Born and Bred: Idioms of Kinship and New Reproductive Technologies in England (Oxford University Press, 2000) CrossRef | Google Scholar

Faden, R. and Beauchamp, T.A History and Theory of Informed Consent (Oxford University Press, 1986) Google Scholar

Featherstone, K., Atkinson, P., Bharadwaj, A. and Clarke, A.Risky Relations: Family, Kinship and the New Genetics (Oxford: Berg, 2006) Google Scholar

Finkler, K.Experiencing the New Genetics: Family and Kinship on the Medical Frontier (Philadelphia: University of Pennsylvania Press, 2000) CrossRef | Google Scholar

Firth, H.V. and Hurst, J.A.Oxford Desk Reference: Clinical Genetics (Oxford University Press, 2005) Google Scholar

Fluehr-Lobban, C.Ethics and the Profession of Anthropology: Dialogue for Ethically Conscious Practice, second edition (Walnut Creek: AltaMira Press, 2003) Google Scholar

Fluehr-Lobban, C. ‘Globalization of research and international standards of ethics in anthropology’ (2000) 925 Annals of the New York Academy of Sciences, 37–44 CrossRef | Google Scholar | PubMed

Fortun, K. and Fortun, M. ‘Scientific imaginaries and ethical plateaus in contemporary U.S. toxicology’ (2005) 107 American Anthropologist, 1, 43–54 Google Scholar

Fortun, M. ‘Experiments in ethnography and its performance’ (posted on Mannvernd website, 2000) available at www.mannvernd.is/english/articles/mfortun.html (accessed 9 February 2007) Google Scholar

Fox, R.C. ‘Advanced medical technology – social and ethical implications’ (1976) 2 Annual Review of Sociology, 231–268 CrossRef | Google Scholar

Fox, R.C. ‘Observations and reflections of a perpetual fieldworker’ (2004) 595 Annals of the American Academy, 309–326 CrossRef | Google Scholar

Fox, R.C. and Swazey, J.P. ‘Examining American bioethics: its problems and prospects’ (2005) 14 Cambridge Quarterly of Healthcare Ethics, 361–373 Google Scholar

Fox, R.C. and Swazey, J.P.Observing Bioethics (Oxford University Press, 2008) Google Scholar

Franklin, S. ‘Re-thinking nature-culture: anthropology and the new genetics’ (2003) 3 Anthropological Theory, 1, 65–85 Google Scholar

Franklin, S. and McKinnon, S. ‘Relative values: reconfiguring kinship studies’, in S. Franklin and S. McKinnon (eds.) Relative Values: Reconfiguring Kinship Studies (Durham and London: Duke University Press, 2001), pp. 1–25 Google Scholar

Freidson, F.Profession of Medicine: A Sociology of Applied Knowledge (University of Chicago Press, 1988) Google Scholar

Geertz, C.The Interpretation of Cultures (New York: Basic Books, 1973) Google Scholar

General Medical Council, Confidentiality (London: General Medical Council, 2009) Google Scholar

General Medical Council, Good Medical Practice (London: General Medical Council, 2006) Google Scholar

Gieryn, T.F. ‘Boundary-work and the demarcation of science from non-science: strains and interests in professional ideologies of scientists’ (1983) 48 American Sociological Review, 6, 781–795 CrossRef | Google Scholar

Glover, J.Causing Death and Saving Lives (London: Penguin Books, 1977) Google Scholar

Goethe, J.W. Von, Elective Affinities (London: Penguin Books, 1971 [1809]) Google Scholar

Hallowell, N. ‘Doing the right thing: genetic risk and responsibility’ (1999) 21 Sociology of Health and Illness, 5, 597–621 CrossRef | Google Scholar

Hallowell, N., Cooke, S., Crawford, G., Lucassen, A. and Parker, M. ‘Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies’ (2009) 68 Social Science and Medicine, 2010–2017 Google Scholar

Hallowell, N., Cooke, S., Crawford, G., Parker, M. and Lucassen, A. ‘Defining research and clinical care: health care professionals’ and researchers’ understanding of cancer genetics activities’ (2009) 35 Journal of Medical Ethics, 113–119 Google Scholar

Hammersley, M. and Atkinson, P.Ethnography: Principles in Practice (London: Routledge, 2006) Google Scholar

Harper, P.Practical Genetic Counselling, sixth edition (London: Edward Arnold, 2004) Google Scholar

Harper, P.A Short History of Medical Genetics (Oxford University Press, 2008) Google Scholar

Hoeyer, K. ‘ “Ethics wars”: reflections on the antagonism between bioethicists and social science observers of biomedicine’ (2006) 29 Human Studies, 203–227 Google Scholar

Hoffmaster, B. (ed.) Bioethics in Social Context (Philadelphia: Temple University Press, 2001) Google Scholar

Hoffmaster, B. ‘Can ethnography save the life of medical ethics?’ (1992) 35 Social Science and Medicine, 12, 1421–1432 Google Scholar

Hoffmaster, B. and Hooker, C. ‘How experience confronts ethics’ (2009) 23 Bioethics, 4, 214–225 Google Scholar

Hope, A. ‘Empirical medical ethics’ (1999) Journal of Medical Ethics, 219–220 Google Scholar | PubMed

Human Genetics Commission, Inside Information: Balancing Interests in the Use of Personal Data (London: UK Department of Health, 2002) Google Scholar

Human Genetics Commission, Making Babies: Reproductive Decisions and Genetic Technologies (London: UK Department of Health, 2006) Google Scholar

Jennings, B. (1990) ‘Ethics and ethnography in neonatal intensive care’, in G. Weisz (ed.) Social Science Perspectives on Medical Ethics (Philadelphia: University of Pennsylvania Press, 1990), pp. 261–272 Google Scholar

Joint Committee on Medical Genetics, Consent and Confidentiality in Genetic Practice: Guidance on Genetic Testing and Sharing Genetic Information (London: Royal College of Physicians of London, 2006) Google Scholar

Katz, J.The Silent World of Doctor and Patient (New York: Free Press, 1984) Google Scholar

Katz-Rothman, B.The Tentative Pregnancy (New York: W.W. Norton and Company, 1986) Google Scholar

Kee, F., Tiret, L., Robo, J.Y., Nicaud, V., McCrum, E., Evans, A. and Cambien, F. ‘Reliability of reported family history of myocardial infarction’ (1993) 307 British Medical Journal, 6918, 1528–1530 Google Scholar

Kerr, A. and Cunningham-Burley, S. ‘On ambivalence and risk: reflexive modernity and the new human genetics’ (2000) 34 Sociology, 2, 283–304 CrossRef | Google Scholar

Kerr, A., Cunningham-Burley, S. and Amos, A. ‘Eugenics and the new genetics in Britain: examining contemporary professionals’ accounts’ (1998) 23 Science, Technology and Human Values, 2, 175–198 CrossRef | Google Scholar

Kerr, A., Cunningham-Burley, S. and Amos, A. ‘The new genetics: professionals’ discursive boundaries’ (1997) 45 The Sociological Review, 2, 279–303 CrossRef | Google Scholar

Kleinman, A. ‘Moral experience and ethical reflection: can ethnography reconcile them? A quandary for “the new bioethics”’ (1999) 128 Daedalus, 4, 69–97 Google Scholar

Kleinman, A.Writing at the Margin: Discourse Between Anthropology and Medicine (Berkeley: University of California Press, 1997) Google Scholar

Kon, A.A. ‘The role of empirical research in bioethics’ (2009) 6 American Journal of Bioethics, 3, 59–65 Google Scholar

Konrad, M.Narrating the New Predictive Genetics (Cambridge University Press, 2005) Google Scholar

Kopytoff, I. ‘The cultural biography of things: commoditization as process’, in A. Appadurai (ed.) The Social Life of Things: Commodities in Cultural Perspective (Cambridge University Press, 1986), pp. 64–94 Google Scholar

Law, J. and Urry, J. ‘Enacting the social’ (2004) 33 Economy and Society, 3, 390–410 CrossRef | Google Scholar

Lippman, A. ‘The genetic construction of prenatal testing: choice, consent or conformity for women?’, in K. Rothenberg and F. Thomsen (eds.) Women and Prenatal Testing (Ohio State University Press, 1991), pp. 9–34 Google Scholar

Lippman, A. ‘Led (astray) by genetic maps: the cartography of the human genome and health care’ (1992) 35 Social Science and Medicine, 12, 1469–1476 Google Scholar

Lucassen, A. and Parker, M. ‘Revealing false paternity: some ethical considerations’ (2001) 357 The Lancet, 1033–1035 Google Scholar

Lucassen, A., Wheeler, R. and Parker, M. ‘Implications of data protection legislation for family history’ (2006) 332 British Medical Journal, 299–301 CrossRef | Google Scholar | PubMed

Mandelbaum, M.Phenomenology of Moral Experience (Baltimore: Johns Hopkins Press, 1969) Google Scholar

Marcus, G.E. ‘The uses of complicity in the changing mis-en-scène of anthropological fieldwork’ in G.E. Marcus (ed.) Ethnography Through Thick and Thin (Princeton University Press, 1998), pp. 105–132 Google Scholar

Marcus, G.E. and Fischer, M.M.J.Anthropology as Cultural Critique: An Experimental Moment in the Human Sciences (University of Chicago Press, 1986) Google Scholar

Marshall, P.A. ‘Anthropology and bioethics’ (1992) 6 Medical Anthropology Quarterly, 1, 49–73 Google Scholar

Marteau, T. and Drake, H. ‘Attributions for disability: the influence of genetic screening’ (1995) 40 Social Science and Medicine, 1127–1132 CrossRef | Google Scholar | PubMed

Marteau, T., Drake, H. and Bobrow, M. ‘Counselling following diagnosis of a foetal abnormality: the differing approaches of obstetricians, clinical geneticists and genetic nurses’ (1994) 31 Journal of Medical Genetics, 864–867 CrossRef | Google Scholar | PubMed

McMillan, J. and Hope, A. ‘The possibility of empirical psychiatric ethics’, in G. Widdershoven, T. Hope, J. McMillan and L. van der Scheer (eds.) Empirical Ethics in Psychiatry (Oxford University Press, 2008), pp. 9–22 Google Scholar

Meskell, L. and Pels, P. (eds.) Embedding Ethics (Oxford: Berg, 2005) Google Scholar

Michaels, M. and Morgan, L. ‘Introduction: the fetal imperative’, in L. Morgan and M. Michaels (eds.) Fetal Subjects, Feminist Positions (Philadelphia: University of Pennsylvania Press, 1999), pp. 1–10 Google Scholar

Mol, A.The Body Multiple: Ontology in Medical Practice (Durham: Duke University Press, 2002) Google Scholar

Muller, J.H. ‘Anthropology, bioethics and medicine: a provocative trilogy’ (1994) 8 Medical Anthropology Quarterly, 4, 448–467 Google Scholar

Murphy, E. and Dingwall, R. ‘Informed consent, anticipatory regulation and ethnographic practice’ (2007) 65 Social Science and Medicine, 11, 2223–2234 Google Scholar

Newson, A.J. and Humphries, S.E. ‘Cascade testing in familial hypercholesterolaemia: how should family members be contacted?’ (2005) 13 European Journal of Human Genetics, 401–408 CrossRef | Google Scholar | PubMed

NHS National Genetics Education and Development Centre, Taking and Drawing a Family History (Birmingham: NHS National Genetics Education and Development Centre, 2008) Google Scholar

Novas, C. ‘Genetic advocacy groups, science and biovalue: creating political economies of hope’, in P. Atkinson, P. Glasner and H. Greenslade (eds.) New Genetics, New Identities (London: Routledge, 2006), pp. 11–27 Google Scholar

Novas, C. and Rose, N. ‘Genetic risk and the birth of the somatic individual’ (2000) 29 Economy and Society, 4, 485–513 CrossRef | Google Scholar

Nugaka, Y. and Cambrosio, A. ‘Medical pedigrees and the visual production of family disease in Canadian and Japanese genetic counselling practice’, in M.A. Elston (ed.) The Sociology of Medical Science and Technology (Oxford: Blackwell, 1997), pp. 29–56 Google Scholar

Parens, E. and Asch, A. ‘The disability rights critique of prenatal testing: reflections and recommendations’ (2003) 9 Mental Retardation and Developmental Disabilities Research Reviews, 1, 40–47 CrossRef | Google Scholar

Parker, M. ‘Children who run: ethics and homelessness’, in B. Almond, Introducing Applied Ethics (Oxford: Blackwell, 1995), pp. 58–70 Google Scholar

Parker, M. ‘Deliberative bioethics’, in R.E. Ashcroft, A. Dawson, H. Draper and J. McMillan (eds.) Principles of Health Care Ethics, second edition (Chichester: John Wiley and Sons, 2007), pp. 185–191 Google Scholar

Parker, M. ‘Ethnography/ethics’ (2007) 65 Social Science and Medicine, 2248–2259 Google Scholar

Parker, M. ‘Genetic testing in children and young people’ (2009) 9 Familial Cancer, 1, 15–18 Google Scholar

Parker, M., Ashcroft, R., Wilkie, A. and Kent, A. ‘Ethical review of research into rare genetic disorders’ (2004) 329 British Medical Journal, 288–289 Google Scholar

Parker, M. and Dickenson, D.The Cambridge Medical Ethics Workbook (Cambridge University Press, 2001) Google Scholar

Parker, M. and Lucassen, A. ‘Concern for individuals and families in clinical genetics’ (2003) 29 Journal of Medical Ethics, 70–73 CrossRef | Google Scholar | PubMed

Parker, M. and Lucassen, A. ‘Genetic information: a joint account?’ (2004) 329 British Medical Journal, 165–167 CrossRef | Google Scholar | PubMed

Parker, M., Williamson, R. and Savulescu, J.Ethical Issues in Genetics Research: An Introduction for Members of Australian Human Research Ethics Committees (Melbourne: Cooperative Research Centre for the Discovery of Genes for Common Human Diseases, 2003) Google Scholar

Pels, P. ‘Professions of duplexity: a prehistory of ethical codes in anthropology’ (1999) 40 Current Anthropology, 2, 101–136 Google Scholar

Pels, P. ‘The trickster’s dilemma: ethics and the technologies of the anthropological self’, in M. Strathern (ed.) Audit Culture: Anthropological Studies in Accountability, Ethics, and the Academy (London: Routledge, 2000), pp. 135–172 Google Scholar

Pels, P. ‘ “Where there aren’t no ten commandments”: redefining ethics during the Darkness in El Dorado scandal’, in L. Meskell and P. Pels (eds.) Embedding Ethics (Oxford: Berg, 2005), pp. 69–99 Google Scholar

PFG Foundation, Genetics and Mainstream Medicine: Service Development and Integration (Cambridge: PFG Foundation, 2011) Google Scholar

Press, N. and Browner, C.H. ‘Why women say yes to prenatal diagnosis’ (1997) 45 Social Science and Medicine, 7, 979–989 CrossRef | Google Scholar

Rapp, R.Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America (New York and London: Routledge, 2000) Google Scholar

Rapp, R., Heath, D. and Taussig, K. ‘Genealogical disease: where heredity, abnormality, biomedical explanation, and family responsibility meet’, in S. Franklin and S. McKinnon (eds.) Relative Values: Reconfiguring Kinship Studies (Durham and London: Duke University Press, 2001), pp. 384–409 Google Scholar

Reed, S.C. ‘A short history of genetic counselling’ (1971) 21 Social Biology, 4, 332–339 Google Scholar

Rose, P. ‘Taking a family history’, in P. Rose and A. Lucassen, Practical Genetics for Primary Care (Oxford University Press, 1999), pp. 57–75 Google Scholar

Ruskin, J. ‘The Nature of Gothic’, in J. Ruskin, Unto this Last and Other Writings (London: Penguin Books, 1997), pp. 77–110 Google Scholar

Ryle, G. ‘The thinking of thoughts: What is “le Penseur” doing?’, in G. Ryle, Collected Papers II: Collected Essays 1929–1968 (London: Hutchinson, 1971) Google Scholar

Scheper-Hughes, N. ‘The primacy of the ethical: propositions for a militant anthropology’ (1995) 36 Current Anthropology, 3, 409–440 Google Scholar

Schneider, D.Critique of the Study of Kinship (Ann Arbor: University of Michigan Press, 1984) Google Scholar

Schneider, D. ‘Kinship and biology’, in A.J. Coale, L.A. Fallers, M. Levy, D. Schneider and S. Tomkins (eds.) Aspects of the Analysis of Family Structure (Princeton University Press, 1965), pp. 83–101 Google Scholar

Sennett, R.The Craftsman (London: Penguin, 2008) Google Scholar

Shakespeare, T. ‘Back to the future? New genetics and disabled people’ (1995) 44 Critical Social Policy, 45, 22–35 CrossRef | Google Scholar

Shakespeare, T.Disability Rights and Wrongs (London: Routledge, 2006) Google Scholar

Shaw, A. ‘Interpreting images: diagnostic skill in the genetics clinic’ (2003) 9 Journal of the Royal Anthropological Institute, 1, 39–55 CrossRef | Google Scholar

Shaw, A.Kinship and Continuity: Pakistani Families in Britain (Amsterdam: Harwood Academic Publishers, 2000) Google Scholar

Shelton, W. ‘Empirical bioethics: present and future possibilities’ (2009) 9 American Journal of Bioethics, 6–7, 74–75 Google Scholar

Stacey, M. ‘The new genetics: a feminist view’, in T. Marteau and M. Richards (eds.) The Troubled Helix (Cambridge University Press, 1996), pp. 331–349 Google Scholar

Strathern, M. ‘Accountability and ethnography’, in M. Strathern (ed.) Audit Culture: Anthropological Studies in Accountability, Ethics, and the Academy (London: Routledge, 2000), pp. 279–304 Google Scholar

Strathern, M.After Nature: English Kinship in the Late Twentieth Century (Cambridge University Press, 1992) Google Scholar

Strathern, M.Kinship, Law and the Unexpected: Relatives Are Always a Surprise (Cambridge University Press, 2005) CrossRef | Google Scholar

Turner, L. ‘Anthropological and sociological critiques of bioethics’ (2009) 6 Bioethical Inquiry, 83–98 Google Scholar

van der Scheer, L. and Widdershoven, G. ‘Integrated empirical ethics: loss of normativity?’ (2004) 7 Medicine, Health Care and Philosophy, 71–79 Google Scholar

Vaughan, D. ‘The dark side of organizations: mistake, misconduct, and disaster’ (1999) 25 Annual Review of Sociology, 271–305 Google Scholar

Wachbroit, R. and Wasserman, D. ‘Patient autonomy and value-neutrality in nondirective genetic counselling’ (1995) 6 Stanford Law and Policy Review, 2, 103–111 Google Scholar

Wertz, D.C., Fletcher, J.C. and Mulvihill, J.J. ‘Medical geneticists confront ethical dilemmas: cross-cultural comparisons among 18 nations’ (1990) 46 American Journal of Human Genetics, 1200–1213 Google Scholar

Widdershoven, G., Abma, T. and Molewijk, B. ‘Empirical ethics as dialogical practice’ (2009) 23 Bioethics, 4, 236–248 CrossRef | Google Scholar

Williams, B.Ethics and the Limits of Philosophy (London: Penguin Books, 2006) Google Scholar

Williams, C. ‘Framing the fetus in medical work: rituals and practices’ (2005) 60 Social Science and Medicine, 2085–2095 Google Scholar

Williams, C., Alderson, P. and Farsides, B. ‘Is nondirectiveness possible within the context of antenatal screening and testing?’ (2002) 54 Social Science and Medicine, 339–347 Google Scholar

Williams, C., Alderson, P. and Farsides, B. ‘Too many choices? Hospital and community staff reflect on the future of prenatal testing’ (2002) 55 Social Science and Medicine, 743–753 CrossRef | Google Scholar

Yanagisako, S.J. and Collier, J.F. ‘Toward a unified analysis of gender and kinship’, in J.F. Collier and S.J. Yanagisako (eds.) Gender and Kinship: Essays Toward a Unified Analysis (Stanford University Press, 1987), pp. 14–50 Google Scholar

Ethical Problems and Genetics Practice

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Contents

Ethical Problems and Genetics Practice - Half title page
pp i-i

Series page
pp ii-iv

Ethical Problems and Genetics Practice - Title page
pp v-v

Copyright page
pp vi-vi

Contents
pp vii-vii

Acknowledgements
pp viii-x

1 - Introduction
pp 1-13

2 - The patient in the families
pp 14-36

3 - Elective affinities
pp 37-59

4 - Reproducing ethics
pp 60-87

5 - Multi-professional practices
pp 88-111

6 - Moral craft
pp 112-130

7 - Methodological reflections
pp 131-152

Glossary of medical terms
pp 153-158

Bibliography
pp 159-166

Index
pp 167-171

Bibliography

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Ethical Problems and Genetics Practice

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