Skip to main content Accessibility help
×
Hostname: page-component-77c89778f8-gvh9x Total loading time: 0 Render date: 2024-07-18T19:28:49.852Z Has data issue: false hasContentIssue false

6 - Who decides what? Relational ethics, genetics and well-being

Published online by Cambridge University Press:  02 February 2010

Sarah Wilson
Affiliation:
University of Central Lancashire
Heather Widdows
Affiliation:
University of Birmingham
Caroline Mullen
Affiliation:
University of Leeds
Get access

Summary

This chapter addresses issues relating to genetic information and genetic technologies by asking what principles should guide the framework for the development of appropriate governance mechanisms. The chapter considers individualist and communitarian accounts, and addresses both specific technologies and broad theoretical frameworks. Genetic information is considered in the context of health related genetic technologies, as being the ‘end point’ of genetic research, where the development of genetic technologies and interventions requires the collection of genetic samples, the extraction of and collection of genetic information, and the storage of such information.

There is evidence of an emerging (or converging) rhetoric of community and social solidarity in policy and politics, and in academic commentary. Discussions of genetic information and technologies are both reflecting and developing this rhetoric, in highlighting the concepts of the shared nature of genetic information and of the human genome as the common heritage of mankind, and using notions of public goods and of benefit sharing. The implication of this ‘relational turn’ for the governance of genetic technologies is itself problematic in that it has tended to manifest either as a privileging of the collective over the individual, or by extending individualist concepts outwards to the family or the community. The philosophical frameworks which may underpin these accounts remain largely unspecified and unexplored. This chapter explores the application of one such framework to the governance of genetic information and technologies, as contemporary moral and political philosophy also reflects a turn towards more relational accounts of central philosophical concepts.

Type
Chapter
Information
The Governance of Genetic Information
Who Decides?
, pp. 126 - 148
Publisher: Cambridge University Press
Print publication year: 2009

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×