Skip to main content Accessibility help
×
Hostname: page-component-848d4c4894-xm8r8 Total loading time: 0 Render date: 2024-06-27T20:43:06.720Z Has data issue: false hasContentIssue false

16 - Art as a way of improving participatory action research: an experience with youngsters with an intellectual disability and their families

Published online by Cambridge University Press:  13 October 2022

Ephrat Huss
Affiliation:
Ben-Gurion University of the Negev, Israel
Get access

Summary

This chapter describes the use of different artistic expression strategies in a participatory action research process. The protagonists of this project are young people with intellectual disabilities and their families in the context of a socio-occupational training programme at the university.

The main objective of the research is to explore themes around the overprotection– autonomy continuum from the participants’ perspectives. A set of artistic techniques from different disciplines (visual art, performing art, and music) were used as a means to discuss and define the terms and their implications. Critically, this was in a participatory manner. At the beginning, the young people and their parents worked separately and independently following the same research steps and performing similar activities. The process and the methodology created opportunities to bridge the gap and increase mutual understanding that would not be possible through the daily interactions of normal life.

Concrete examples are presented that highlight the benefits and difficulties of introducing activities not commonly found in a university environment. The analysis also includes a critical reflection about the possible use of art techniques in participatory action research projects with people with intellectual disabilities.

Introduction

Throughout history, people with intellectual disabilities have faced many socio-cultural barriers that have placed them in a position of inferiority in relation to the rest of society (Corrigan, 2014). The most common life plan for human beings is to achieve an adequate standard of living, have good relationships, have the freedom to make decisions based on personal convictions, and participate actively in family and community life. These aims are often unattainable dreams for people with disabilities (Abbott & McConkey, 2006). Despite the unquestionable progress in the conceptualisation and social recognition of the group (Roth et al., 2019), its social position and role clearly limit the possibility of living a full life. This fact is connected to access to education. People with disabilities experience great difficulties in finding supportive and inclusive spaces to eliminate the stigmas that promote exclusion (Madaus, 2011).

This research is part of the Univerdi programme, a University of Jaen certificate, managed and run by university lecturers. Its main objective is the social and professional training of people with intellectual disabilities.

The staff responsible for the programme asked the authors, who are specialised in group work research and intervention, to intervene in what appeared to be a case of ‘bullying’ among the participants.

Type
Chapter
Information
Publisher: Bristol University Press
Print publication year: 2022

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×