Hostname: page-component-78c5997874-4rdpn Total loading time: 0 Render date: 2024-11-16T01:19:01.177Z Has data issue: false hasContentIssue false
  • English
  • Français

Vivre à l’intersection du VIH et du vieillissement : quelles répercussions sur les liens sociaux significatifs?

Published online by Cambridge University Press:  02 March 2016

Isabelle Wallach ,
Xuân Ducandas ,
Michel Martel  and
Réjean Thomas
Isabelle Wallach*
Affiliation:
Département de sexologie, Faculté des sciences humaines, Université du Québec à Montréal, Case postale 8888, succursale Centre-ville, Montréal (QC) H3C 3P8
Xuân Ducandas
Affiliation:
Université de Montréal, Montreal, Quebec, Canada
Michel Martel
Affiliation:
Université du Québec à Montréal – Sexologie, Montreal, Quebec, Canada
Réjean Thomas
Affiliation:
Clinique médicale l’Actuel, Montreal, Quebec, Canada
*
†La correspondance et les demandes de tirés-à-part doivent être adressées à: / Correspondence and requests for offprints should be sent to: Isabelle Wallach, Ph.D. Département de sexologie Faculté des sciences humaines Université du Québec à Montréal Case postale 8888 succursale Centre-ville Montréal, QC H3C 3P8 (wallach.isabelle@uqam.ca)
Get access Rights & Permissions [Opens in a new window]

Abstract

This research examines obstacles faced by older people living with HIV in maintaining their significant social ties (family, friends) in the light of a double theoretical framework, inter-sectionality and the course of life. Favoring a qualitative methodology, this research is based on in-depth, semi-directed interviews with a diverse sample of 38 people living with HIV, aged 50-73 years. Analysis reveals that a significant proportion of participants have experienced ruptures or deterioration of close ties with intimates at the level of family or friends. The principal factors behind these difficulties are the past and present stigma associated with HIV and /or other social positions, long-term effects of HIV, issues related to aging and crosscutting effects of HIV and aging.

Résumé

La présente recherche se propose d’examiner les obstacles rencontrés par les personnes âgées vivant avec le VIH dans le maintien de leurs liens sociaux significatifs (famille, amis) à la lumière d’un double cadre théorique, l’intersectionnalité et le parcours de vie. Privilégiant une méthodologie qualitative, cette recherche s’appuie sur des entrevues semi-directives approfondies réalisées avec un échantillon diversifié de 38 personnes vivant avec le VIH âgées de 50 à 73 ans. L’analyse des discours révèle qu’une proportion importante de participants ont vécu ou vivent des ruptures ou une détérioration des liens avec leurs proches au niveau familial et amical. Les principaux éléments à l’origine de ces difficultés sont la stigmatisation passée et présente du VIH et/ou d’autres positions sociales, les effets au long cours du passé avec le VIH, les enjeux reliés au vieillissement et les effets croisés du VIH et du vieillissement.

Keywords

intersectionalitysocial tieslife coursestigmatizationagingHIVintersectionnalitéliens sociauxparcours de viestigmatisationvieillissementVIH
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 35 , Issue 1 , March 2016 , pp. 42 - 54
Copyright
Copyright © Canadian Association on Gerontology 2016 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Références

Agence de la santé publique du Canada (2010). L’infection à VIH et le sida chez les personnes âgées au Canada. Actualités en épidémiologie du VIH/sida, 6, 1–7.Google Scholar
Bilge, S. (2009). Théorisations féministes de l’intersectionnalité. Diogène, 225, 70–88.Google Scholar
Billette, V., et Lavoie, J.-P. (2010). Vieillissements, exclusions sociales et solidarités. In Charpentier, M., Guberman, N., Billette, V., Lavoie, J.-P., Grenier, A., & Olazabal, I. (Eds.), Vieillir au Pluriel: Perspectives Sociales (pp. 1–22). Québec: Presses de l’Université du Québec.Google Scholar
Blanco, J., Jarrin, I., Vallejo, M., Berenguer, J., Solera, C., Rubio, R., et al. (2012). Definition of advanced age in HIV infection: Looking for an age cut-off. Aids Research and Human Retroviruses, 28(9), 800–806.Google Scholar
Butler, R. N. (1969). Ageism: Another form of bigotry. The Gerontologist, 9, 243–246.Google Scholar
Burke Johnson, R. (1997). Examining the validity structure of qualitative research. Education, 118(2), 282–292.Google Scholar
Calasanti, T., & Slevin, K. (Eds.). (2006). Age matters: Realigning feminist thinking. New York: Routledge.Google Scholar
Cantor, M. H., Brennan, M., & Karpiak, S. E. (2009). The social support networks of older people with HIV. In Brennan, M., Karpiak, S. E., Shippy, R. A., & Cantor, M. H. (Eds.), Older adults with HIV: An in-depth examination of an emerging population (pp. 61–74). New York: Nova Science Publishers.Google Scholar
Caradec, V. (2008). Sociologie de la vieillesse et du vieillissement. Paris: Armand Colin.Google Scholar
Collins, P. (2000). Black feminist thought: Knowledge, consciousness, and the politics of empowerment. New York: Routledge.Google Scholar
Cornwell, B., Laumann, E., & Schumm, P. (2008). The social connectedness of older adults: A national profile. American Sociological Review, 73(2), 185–203.Google Scholar
Crenshaw, K. (1995). Mapping the margins: Intersectionality, identity politics, and violence against women of color. In Crenshaw, K., Gotanda, N., Peller, G., & Thomas, K. (Eds.), Critical race theory: The key writings that formed the movement. New York: The New Press.Google Scholar
Creswell, J. W. (2012). Qualitative inquiry and research design: Choosing among five approaches. California: SAGE Publications.Google Scholar
Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory Into Practice, 39(3), 124–130.Google Scholar
Dannefer, D. (2003). Cumulative advantage/disadvantage and the life course: Cross-fertilizing age and social science theory. Journal of Gerontology, 58B(6), S327–S337.Google Scholar
Dannefer, D., & Settersten, R. A. (2010). The study of the life course: Implications for social gerontology. In Dannefer, D., & Phillipson, C.. (Eds.), The SAGE handbook of social gerontology. (pp. 3–19). California: SAGE.Google Scholar
Earnshaw, V. A., & Chaudoir, S. R. (2009). From conceptualizing to measuring HIV stigma: A review of HIV stigma mechanism measures. AIDS Behavior, 13, 1160–1177.CrossRefGoogle ScholarPubMed
Effros, R. B., Flechter, C. V., Gebo, K., Halter, J. B., Hazzard, W. R., & Horne, F. M., et al. (2008). Aging and infectious diseases: Workshop on HIV infection and aging: What is known and future research directions. Clinical Infectious Disease, 47(4), 542–553.Google Scholar
Elder, G. (1994). Time, human agency, and social change: Perspectives on the life course. Social Psychology Quarterly, 57(1), 4–15.Google Scholar
Emlet, C. A. (2006a). You’re awfully old to have this disease: Experiences of stigma and ageism in adults 50 years and older living with HIV/AIDS. The Gerontologist, 46(6), 781–790.Google Scholar
Emlet, C. A. (2006b). An examination of the social networks and social isolation in older and younger adults living with HIV/AIDS. Health and Social Work, 31(4), 299–308.Google Scholar
Emlet, C. A. (2007). Experiences of stigma in older adults living with HIV/AIDS: A mixed-methods analysis. AIDS Patient Care and Studies, 21(10), 740–750.Google Scholar
Fritsch, T. (2005). HIV/AIDS and the older adult: An exploratory study of the age-related differences in access to medical and social services. The Journal of Applied Gerontology, 24(1), 34–54.Google Scholar
Furlotte, C., Schwartz, K., Koornstra, J. J., & Naster, R. (2012). “Got a room for me?” Housing experiences of older adults living with HIV/AIDS in Ottawa. Canadian Journal on Aging, 31(1), 37–48.Google Scholar
George, L. (1993). Sociological perspectives on life transitions. Annual Review of Sociology, 19, 353–373.Google Scholar
Grenier, A. (2012). Transitions and the lifecourse. Challenging the constructions of “growing old”. Bristol: Policy Press.Google Scholar
Goffman, E. (1975). Stigmate: Les usages sociaux des handicaps. Paris: Éditions de Minuit.Google Scholar
Hancock, A.-M. (2007). Intersectionality as a normative and empirical paradigm. Politics & Gender, 3(2), 248–254.Google Scholar
Herek, G. M. (1999). AIDS and stigma. American Behavioral Scientist, 42(7), 1106–1116.Google Scholar
Hooyman, N. R., & Kiyak, H. A. (2008). Social gerontology. A multidisciplinary perspective. Boston: Pearson.Google Scholar
Krause, N. (2006). Social relationships in late life. In Binstock, R., & George, L.. (Eds.), Handbook of aging and the social sciences (pp. 181–200). San Diego, CA: Academic Press.CrossRefGoogle Scholar
Lagacé, M. (Ed.). (2010). L’âgisme. Comprendre et changer le regard social sur le vieillissement. Québec: Les Presses de l’Université Laval.Google Scholar
Maier, H., & Klumb, P. (2005). Social participation and survival at older ages: Is the effect driven by activity content or context? European Journal of Ageing, 2, 31–39.Google Scholar
McCall, L. (2005). The complexity of intersectionality. Journal of Women in Culture and Society, 30(3), 1771–1800.Google Scholar
Mendès-Leite, R., et Banens, M. (2006). Vivre avec le VIH. Paris: Calmann-Lévy.Google Scholar
O’Rand, A. (1996). The precious and the precocious: Understanding cumulative disadvantage and cumulative advantage over the life course. The Gerontologist, 36(2), 230–238.Google Scholar
Paillé, P. (1994). L'analyse par théorisation ancrée. Cahiers de recherche sociologique, 23, 147–181.Google Scholar
Paillé, P., et Mucchielli, A. (2012). L'analyse qualitative en sciences humaines et sociales. Paris: A. Collin.Google Scholar
Pierret, J. (2006). Vivre avec le VIH. Enquête de longue durée auprès des personnes infectées. Paris: Presses Universitaires de France.Google Scholar
Pillemer, K., & Glasgow, N. (2000). Social integration and aging. Background and trends. In Pillemer, K., Moen, P., Wethington, E., & Glasgow, N. (Eds.), Social integration in the second half of life (pp. 19–47). Baltimore and London: The Johns Hopkins University Press.Google Scholar
Pires, A. P. (1997). Échantillonnage et recherche qualitative: essai théorique et méthodologique. In Poupart, J., Deslauriers, J.-P., Groulx, L., Laperrière, A., Mayers, R., et Pires, A. (Eds.), La recherche qualitative: enjeux épistémologiques et méthodologiques (pp. 113–169). Montréal: Gaétan Morin.Google Scholar
Poindexter, C., & Shippy, R. A. (2008). Networks of older New Yorkers with HIV: Fragility, resilience, and transformation. AIDS Patient Care and STDs, 22(9), 723–733.Google Scholar
Schrimshaw, E., & Siegel, K. (2003). Perceived barriers to social support from family and friends among older adults with HIV/AIDS. Journal of Health Psychology, 8, 738–752.Google Scholar
Shippy, R. A., & Karpiak, S. E. (2005). The ageing HIV/AIDS population: Fragile social networks. Ageing and Mental Health, 9(3), 246–254.Google Scholar
Steward, W. T., Herek, G., Ramakrishna, J., Bharat, S., Chandy, S., Wrubel, J., et al. (2008). HIV-related stigma: Adapting a theoretical framework for use in India. Social Science & Medicine, 67, 1225–1235.Google Scholar
Roger, K. S., Mignone, J., & Kirkland, S. (2013). Social aspects of HIV/AIDS and aging: A thematic review. Canadian Journal of Aging, 32(3), 1–9.Google Scholar
Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: SAGE.Google Scholar
Turcotte, M., et Schellenberg, G. (2006). Un portrait des aînés au Canada. Ottawa: Statistique Canada.Google Scholar
Wallach, I., & Brotman, S. (2013). Ageing with HIV/AIDS: a scoping study among people aged 50 and over living in Quebec. Ageing & Society, 33(7), 1212–1242.Google Scholar
Supplementary material: File

Wallach supplementary material

Wallach supplementary material 1

Download Wallach supplementary material(File)
File 181.1 KB