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Determinants of quality of life in adults with CHD: an Australian cohort*

Published online by Cambridge University Press:  27 June 2017

Sarah L. Eaton ,
QiFeng Wang  and
Samuel Menahem
Sarah L. Eaton
Affiliation:
Faculty of Medicine, Dentistry and Allied Health University of Melbourne, Melbourne, Victoria, Australia Melbourne Health, Royal Melbourne Hospital, Melbourne, VictoriaAustralia
QiFeng Wang
Affiliation:
School of Psychology and Psychiatry, Monash University, Melbourne, Victoria, Australia
Samuel Menahem*
Affiliation:
Faculty of Medicine, Nursing and Health Science, Monash University, Melbourne, Victoria, Australia
*
Correspondence to: Professor S. Menahem, MD, FRACP, FCSANZ, Emeritus Head, Paediatric Cardiology Unit, Monash Health, Monash University, 246 Clayton Road, Clayton, VIC 3168, Australia. Tel: +61 3 9594 6666; Fax: +61 3 9576 1352; E-mail: samuel.menahem@monash.edu
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Abstract

Background

Following improved survival rates in children with CHD, their quality of life and its determinants have become increasingly important. As part of a multicentre study entitled “Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart Disease – International Study”, this article reviews the relationships among quality of life, anxiety and depression, sense of coherence, and severity of disease in an Australian cohort of adults with CHD.

Methods and results

Adults with CHD were recruited from a single, community-based cardiology practice. All patients completed a self-reported questionnaire. A total of 135 patients, 71 males and 64 females, were recruited with a mean age of 26 years. The median quality of life in this cohort was 90; one-fifth of the patients experienced symptoms of anxiety. There was a significant negative correlation between quality of life and symptoms of anxiety and depression and a positive correlation between quality of life and sense of coherence.

Conclusions

The quality of life of this cohort was generally excellent; however, one-fifth of them experienced symptoms of anxiety. Those with less anxiety and depression symptoms appeared to have a better quality of life, as did those who reported a higher sense of coherence. Interestingly, there was no significant relationship between complexity of CHD and quality of life.

Keywords

AdultCHDquality of lifedepressionanxiety
Type
Original Articles
Information
Cardiology in the Young , Volume 27 , Issue 8 , October 2017 , pp. 1571 - 1576
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Copyright
© Cambridge University Press 2017 

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Footnotes

*

Presented in part at the Asia Pacific Paediatric Cardiac Society 5th Congress, New Delhi, India, February, 2014.

References

1. Moons, P, Bovijn, L, Budts, W, Belmans, A, Gewillig, M. Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium. Circulation 2010; 122: 2264–2272.CrossRefGoogle ScholarPubMed
2. Fteropoulli, T, Stygall, J, Cullen, S, Deanfield, J, Newman, SP. Quality of life of adult congenital heart disease patients: a systematic review of the literature. Cardiol Young 2013; 23: 473–485.CrossRefGoogle ScholarPubMed
3. Eagleson, K, Justo, R, Ware, R, Johnson, S, Boyle, F. Health-related quality of life and congenital heart disease in Australia. J Paediatr Child Health 2013; 49: 856–864.CrossRefGoogle ScholarPubMed
4. Horner, T, Liberthson, R, Jellinek, MS. Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc 2000; 75: 31–36.CrossRefGoogle ScholarPubMed
5. Ladouceur, M, Iserin, L, Cohen, S, Legendre, A, Boudjemline, Y, Bonnet, D. Key issues of daily life in adults with congenital heart disease. Arch Cardiovasc Dis 2013; 106: 404–412.CrossRefGoogle ScholarPubMed
6. Cohen, M, Daniela, M, Yalonetsky, S, Gagin, R, Lorber, A. Psychological functioning and health-related quality of life (HRQoL) in older patients following percutaneous closure of the secundum atrial septal defect (ASD). Arch Gerontol Geriatr 2010; 50: e5–e8.CrossRefGoogle ScholarPubMed
7. Gierat Haponiuk, K, Haponiuk, I, Chojnicki, M, Jaworski, R, Bakuła, S. Exercise capacity and the quality of life late after surgical correction of congenital heart defects. Kardiol Pol 2011; 69: 810–815.Google ScholarPubMed
8. Apers, S, Moons, P, Goossens, E, et al. Sense of coherence and perceived physical health explain the better quality of life in adolescents with congenital heart disease. Eur J Cardiovasc Nurs 2013; 12: 475–483.CrossRefGoogle ScholarPubMed
9. Bang, J, Jo, S, Kim, G, et al. The mental health and quality of life of adult patients with congenital heart disease. Int J Cardiol 2013; 170: 49–53.CrossRefGoogle ScholarPubMed
10. Silva, A, Vaz, Cu, Areias, MEG, et al. Quality of life of patients with congenital heart diseases. Cardiol Young 2011; 21: 670–676.CrossRefGoogle ScholarPubMed
11. Apers, S, Kovacs, AH, Luyckx, K, et al. Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart Disease – International Study (APPROACH-IS): rationale, design, and methods. Int J Cardiol 2015; 179: 334–342.CrossRefGoogle Scholar
12. Moons, P, Van Deyk, K, De Geest, S, Gewillig, M, Budts, W. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart 2005; 91: 1193–1198.CrossRefGoogle ScholarPubMed
13. Wang, Q, Hay, M, Clarke, D, Menahem, S. The prevalence and predictors of anxiety and depression in adolescents with heart disease. J Pediatr 2012; 161: 943–946.CrossRefGoogle ScholarPubMed
14. Loup, O, von Weissenfluh, C, Gahl, B, Schwerzmann, M, Carrel, T, Kadner, A. Quality of life of grown-up congenital heart disease patients after congenital cardiac surgery. Eur J Cardiothorac Surg 2009; 36: 105–111.CrossRefGoogle ScholarPubMed
15. Herrmann, C. International experiences with the Hospital Anxiety and Depression Scale – A review of validation data and clinical results. J Psychosom Res, 42: 17–41.CrossRefGoogle Scholar
16. Neuner, B, Busch, M, Singer, S, et al. Sense of coherence as a predictor of quality of life in adolescents with congenital heart defects: a register-based 1-year follow-up study. J Dev Behav Pediatr 2011; 32: 316–327.CrossRefGoogle ScholarPubMed
17. Apers, S, Kovacs, AH, Luyckx, K, et al. Quality of life in adults with congenital heart disease in 15 countries: integrating population measures and cultural dimensions in quality-of-life research. J Am Coll Cardiol 2016; 67: 2237–2245.CrossRefGoogle Scholar
18. Eriksson, M, Lindström, B. Validity of Antonovsky’s sense of coherence scale: a systematic review. J Epidemiol Community Health 2005; 59: 460–466.CrossRefGoogle ScholarPubMed
19. Berghammer, M, Karlsson, J, Ekman, I, Eriksson, P, Dellborg, M. Self-reported health status (EQ-5D) in adults with congenital heart disease. Int J Cardiol 2013; 165: 537–543.CrossRefGoogle ScholarPubMed
20. Wang, Q, Hay, M, Clarke, D, Menahem, S. Associations between knowledge of disease, depression and anxiety, social support, sense of coherence and optimism with health-related quality of life in an ambulatory sample of adolescents with heart disease. Cardiol Young 2014; 24: 126–133.CrossRefGoogle Scholar
21. Apers, S, Luyckx, K, Moons, P. Quality of life in adult congenital heart disease: what do we already know and what do we still need to know? Curr Cardiol Rep 2013; 15: 1–6.CrossRefGoogle ScholarPubMed