Hostname: page-component-cd9895bd7-p9bg8 Total loading time: 0 Render date: 2024-12-22T04:16:30.389Z Has data issue: false hasContentIssue false
  • English
  • Français

Importance of involving patients and public in health research in Bangladesh and Nepal

Published online by Cambridge University Press:  05 November 2020

Bibha Simkhada Open the ORCID record for Bibha Simkhada [Opens in a new window] ,
Edwin van Teijlingen ,
Aliya Naheed ,
Angela Warren  and
Sue Green
Bibha Simkhada*
Affiliation:
Department of Nursing and Midwifery, School of Human and Health Sciences, University of Huddersfield, Queensgate, HuddersfieldHD1 3DH, UK
Edwin van Teijlingen
Affiliation:
CMMPH, Bournemouth University, Bournemouth, UK
Aliya Naheed
Affiliation:
Health Systems and Population Studies Division, icddr,b, Dhaka, Bangladesh
Angela Warren
Affiliation:
Faculty of Health and Social Sciences, Bournemouth University, Bournemouth, UK
Sue Green
Affiliation:
Faculty of Health and Social Sciences, Bournemouth University, Bournemouth, UK
*
Author for correspondence: Bibha Simkhada, E-mail: b.d.simkhada@hud.ac.uk
Get access Rights & Permissions [Opens in a new window]

Abstract

Patient and public involvement/engagement (PPI/E) in public health research and health technology assessment (HTA) in high-income countries (HICs) have significantly increased over the past decade. PPI/E helps to improve research and HTA, ultimately benefitting patients and service users. PPI/E is a very new concept in many low- and middle-income countries (LMICs). This paper considers the importance of PPI in public health research and HTA in the development and implementation of technology in the health sector in South Asia. Currently, in this region, health technology is frequently adopted from HICs without local research and HTA. It also discusses the importance of local co-creation of technology to reflect the needs of users within a culturally appropriate setting. It is important for LMIC-based researchers to understand the potential of PPI/E and how it can contribute to it to improve health care and research, especially perhaps in the era of COVID-19.

Keywords

Health technology assessmentPatient–public involvement/engagement (PPI/E)South AsiaLMIC
Type
Perspective
Information
International Journal of Technology Assessment in Health Care , Volume 37 , Issue 1 , 2021 , e10
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Cook, N, Siddiqi, N, Twiddy, M, Kenyon, R. Patient and public involvement in health research in low and middle-income countries: A systematic review. BMJ Open. 2019;9:e026514. doi: 10.1136/bmjopen-2018-026514.CrossRefGoogle ScholarPubMed
Puerta, LL, Bartlam, B, Smith, H. Researchers’ perspectives on public involvement in health research in Singapore: The argument for a community-based approach. Health Expect. 2019;22:666–75.CrossRefGoogle Scholar
NIHR/INVOLVE. What is public involvement in research? 2019 [cited 2019 Nov]; Available from: https://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/.Google Scholar
IHRF. Public and patient involvement (PPI) in research. Irish Health Research Forum; 2015 [cited 2019 Nov]; Available from: https://www.who.int/health-technology-assessment/MD_HTA_oct2015_ final_web2.pdf?ua=1.Google Scholar
WHO. 2015 Global Survey on Health Technology Assessment by National Authorities 2017 [cited 2019 Nov]. Available from: https://www.who.int/health-technology-assessment/MD_HTA_oct2015_final_web2.pdf?ua=1.Google Scholar
Hailey, D, Babidge, W, Cameron, A, Davignon, LA. HTA agencies and decision makers: An INAHTA guidance document. INAHTA; 2010 [cited 2020 Feb]; Available from: http://www.inahta.org/wp-content/themes/inahta/img/HTA%20%20Decision%20Makers.pdf.Google Scholar
WHO. Universal health coverage (UHC) 2019 [cited 2020 Apr]; Available from: https://www.who.int/news-room/fact-sheets/detail/universal-health-coverage-(uhc).Google Scholar
Chalkidou, K, Marten, R, Cutler, D, Culyer, T, Smith, R, Teerawattananon, Y, et al. Health technology assessment in universal health coverage. Lancet. 2013;382:e48–9.CrossRefGoogle ScholarPubMed
Hughes, M, Duffy, C. Public involvement in health and social sciences research: A concept analysis. Health Expect. 2018;21. doi: 10.1111/hex.12825.CrossRefGoogle ScholarPubMed
Greenhalgh, T, Hinton, L, Finlay, T, Macfarlane, A, Fahy, N, Clyde, B, et al. Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot. Health Expect. 2019;22:785–801.CrossRefGoogle ScholarPubMed
Ball, S, Harshfield, A, Carpenter, A, Bertscher, A, Marjanovic, S. Patient and public involvement and engagement in research enabling meaningful contributions. RAND Corporation; 2019 [cited 2020 Jan]; Available from: https://www.rand.org/pubs/research_reports/RR2678.html.CrossRefGoogle Scholar
Turk, A, Boylan, AM, Locock, LA. Researcher's Guide to Patient and Public Involvement. 2017 [cited 2020 Mar]; Available from: https://oxfordbrc.nihr.ac.uk/wp-content/uploads/2017/03/A-Researchers-Guide-to-PPI.pdf.Google Scholar
RCN. RCN Factsheet: Continuing Professional Development (CPD) for nurses working in the United Kingdom. Royal College of Nursing UK; 2016 [cited 2020 Jan]; Available from: https://www.rcn.org.uk/about-us/policy-briefings/pol-1614.Google Scholar
Simkhada, B, Mackay, S, Khatri, R, Sharma, CK, Pokhrel, T, Marahatta, S, et al. Continual Professional Development (CPD): Improving quality of nursing care in Nepal. Health Prospect: J Pub Health. 2016;15:1–3.CrossRefGoogle Scholar
Jafar, TH, Jehan, I, de Silva, HA, Naheed, A, Gandhi, M, Assam, P, et al. Multicomponent intervention versus usual care for management of hypertension in rural Bangladesh, Pakistan and Sri Lanka: Study protocol for a cluster randomized controlled trial. Trials. 2017;18:272.CrossRefGoogle ScholarPubMed
Jafar, TH, Gandhi, M, de Silva, HA, Jehan, I, Naheed, A, Finkelstein, EA, et al. A community-based intervention for managing hypertension in rural South Asia. N Engl J Med. 2020;382:717–26.CrossRefGoogle ScholarPubMed
Brett, J, Staniszewska, S, Mockford, C, Herron-Marx, S, Hughes, J, Tysall, C, et al. Mapping the impact of patient and public involvement on health and social care research: A systematic review. Health Expect. 2012;17:637–50.CrossRefGoogle ScholarPubMed
Brett, J, Staniszewska, S, Mockford, C, Herron-Marx, S, Hughes, J, Tysall, C, et al. A systematic review of the impact of patient and public involvement on service users, researchers and communities. Patient. 2014;7:387–95.CrossRefGoogle ScholarPubMed