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PerCEN trial participant perspectives on the implementation and outcomes of person-centered dementia care and environments

Published online by Cambridge University Press:  26 August 2015

Lynn Chenoweth ,
Yun-Hee Jeon ,
Jane Stein-Parbury ,
Ian Forbes ,
Richard Fleming ,
Janet Cook ,
Seong Cheah ,
Stephanie Fletcher  and
Leonie Tinslay
Lynn Chenoweth*
Affiliation:
Aged and Extended Care Nursing, Faculty of Health, University of Technology Sydney, Sydney, New South Wales, Australia Centre for Healthy Brain Ageing, School of Psychiatry, University of New South Wales, Sydney, New South Wales, Australia
Yun-Hee Jeon
Affiliation:
Sydney Nursing School, The University of Sydney, Sydney, New South Wales, Australia
Jane Stein-Parbury
Affiliation:
Aged and Extended Care Nursing, Faculty of Health, University of Technology Sydney, Sydney, New South Wales, Australia
Ian Forbes
Affiliation:
Faculty of Design, Architecture and Building, University of Technology Sydney, Sydney, New South Wales, Australia
Richard Fleming
Affiliation:
Dementia Training Study Centre, University of Wollongong, Wollongong, New South Wales, Australia
Janet Cook
Affiliation:
Aged and Extended Care Nursing, Faculty of Health, University of Technology Sydney, Sydney, New South Wales, Australia
Seong Cheah
Affiliation:
Aged and Extended Care Nursing, Faculty of Health, University of Technology Sydney, Sydney, New South Wales, Australia
Stephanie Fletcher
Affiliation:
Public Health Department, South Western Sydney Local Health District, Liverpool, New South Wales, Australia
Leonie Tinslay
Affiliation:
Aged and Extended Care Nursing, Faculty of Health, University of Technology Sydney, Sydney, New South Wales, Australia
*
Correspondence should be addressed to: Prof. Lynn Chenoweth, Aged Care and Extended Practice Nursing, Faculty of Health, University of Technology Sydney, PO Box 222, Lindfield, Sydney, New South Wales 2070, Australia. Phone: +61-2-9514-5710; Fax: +61-2-9369-0285. Email: Lynnette.Chenoweth@uts.edu.au.
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Abstract

Background:

Well-being and various forms of agitation in people with dementia can be improved in a person-centered long-term care setting. Data obtained during the Person-Centered Dementia Care and Environment (PerCEN) randomized controlled trial shed light on the factors that influenced the adoption and outcomes of person-centered interventions in long-term care from the perspective of study participants.

Methods:

Data were obtained from PerCEN participants: individual semi-structured interviews with care managers (29), nurses and care staff (70); telephone surveys with family members (73); staff reports of care approaches; and 131 field note entries recorded by the person-centered care and environment facilitators. Data were interpreted inductively using content analysis, code building, theme development, and synthesis of findings.

Results:

All data sources confirmed that, when adopted, the person-centered model increased the number and variety of opportunities for resident interaction, improved flexibility in care regimens, enhanced staff's attention to resident needs, reduced resident agitation, and improved their well-being. Barriers and enablers for the person-centered model related to leadership, manager, staff and family appreciation of the model, staff's capacity, effective communication and team work among direct care staff, care service flexibility, and staff education on how to focus care on the person's well-being.

Conclusions:

Successful knowledge translation of the person-centered model starts with managerial leadership and support; it is sustained when staff are educated and assisted to apply the model, and, along with families, come to appreciate the benefits of flexible care services and teamwork in achieving resident well-being. The Australian New Zealand Clinical Trials Registry number is ACTRN 12608000095369.

Keywords

Key words: dementianursingquality of lifeperson-centered carecare environment
Type
Research Article
Information
International Psychogeriatrics , Volume 27 , Issue 12 , December 2015 , pp. 2045 - 2057
Copyright
Copyright © International Psychogeriatric Association 2015 

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