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Health-related quality-of-life instruments for Alzheimer's disease and mixed dementia

Published online by Cambridge University Press:  11 January 2013

Jaime Perales ,
Theodore D. Cosco ,
Blossom C. M. Stephan ,
Josep Maria Haro  and
Carol Brayne
Jaime Perales*
Affiliation:
Parc Sanitari Sant Joan de Déu, Universitat de Barcelona, Sant Boi de Llobregat, Barcelona, Spain Department of Public Health and Primary Care, Cambridge Institute of Public Health, University of Cambridge, Cambridge, UK
Theodore D. Cosco
Affiliation:
Department of Public Health and Primary Care, Cambridge Institute of Public Health, University of Cambridge, Cambridge, UK
Blossom C. M. Stephan
Affiliation:
Department of Public Health and Primary Care, Cambridge Institute of Public Health, University of Cambridge, Cambridge, UK
Josep Maria Haro
Affiliation:
Parc Sanitari Sant Joan de Déu, Universitat de Barcelona, Sant Boi de Llobregat, Barcelona, Spain Instituto de Salud Carlos III, Centro de Investigación Biomédica en Red de Salud Mental. CIBERSAM, Spain
Carol Brayne
Affiliation:
Department of Public Health and Primary Care, Cambridge Institute of Public Health, University of Cambridge, Cambridge, UK
*
Correspondence should be addressed to: Jaime Perales, Department of Public Health and Primary Care, Cambridge Institute of Public Health, University Forvie Site, Robinson Way, Cambridge CB20SR, UK. Phone: +34 936406350 ext 12546; Email: jaume.perales@pssjd.org.
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Abstract

Background: Over the last 20 years, a number of instruments developed for the assessment of health-related quality of life (HRQL) in dementia have been introduced. The aim of this review is to synthesize evidence from published reviews on HRQL measures in dementia and any new literature in order to identify dementia specific HRQL instruments, the domains they measure, and their operationalization.

Methods: An electronic search of PsycINFO and PubMed was conducted, from inception to December 2011 using a combination of key words that included quality of life and dementia.

Results: Fifteen dementia-specific HRQL instruments were identified. Instruments varied depending on their country of development/validation, dementia severity, data collection method, operationalization of HRQL in dementia, psychometric properties, and the scoring. The most common domains assessed include mood, self-esteem, social interaction, and enjoyment of activities.

Conclusions: A number of HRQL instruments for dementia are available. The suitability of the scales for different contexts is discussed. Many studies do not specifically set out to measure dementia-specific HRQL but do include related items. Determining how best to operationalize the many HRQL domains will be helpful for mapping measures of HRQL in such studies maximizing the value of existing resources.

Keywords

systematic reviewpsychometric propertiesdimensionsoperationalizationscalesmood
Type
Review Article
Information
International Psychogeriatrics , Volume 25 , Issue 5 , May 2013 , pp. 691 - 706
Copyright
Copyright © International Psychogeriatric Association 2013

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