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A qualitative study of the emotional and spiritual needs of Hispanic families in hospice

Published online by Cambridge University Press:  02 May 2017

Alicia Nuñez ,
Jason M. Holland ,
Lisa Beckman ,
Abbie Kirkendall  and
Nora Luna
Alicia Nuñez
Affiliation:
Department of Psychology, University of Nevada, Las Vegas, Nevada
Jason M. Holland*
Affiliation:
Department of Clinical Psychology, William James College, Newton, Massachusetts
Lisa Beckman
Affiliation:
Department of Psychology, University of Nevada, Las Vegas, Nevada
Abbie Kirkendall
Affiliation:
School of Social Work, University of Nevada, Las Vegas, Nevada
Nora Luna
Affiliation:
Nathan Adelson Hospice, Las Vegas, Nevada
*
Address correspondence and reprint requests to: Jason M. Holland, 1 Wells Avenue, Newton, Massachusetts 02459, USA. E-Mail: jmhollnd@gmail.com.
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Abstract

Background:

As the older U.S. population becomes more ethnically diverse, there will be an increased need for culturally sensitive hospice care services. Hispanics often experience multiple barriers to quality end-of-life care services.

Objective:

To address the underlying disparities in the cultural, emotional, and spiritual aspects of hospice care, the objective of the present qualitative study was to examine the emotional and spiritual needs of Hispanic patients' families while in hospice.

Method:

Semistructured in-person interviews were conducted with 29 Hispanic patients' families regarding their perceived experience of the hospice-based emotional and spiritual support received. Demographic information was collected on both the family member and the patient. Interviews were digitally recorded, transcribed, and analyzed using thematic content analysis.

Results:

Participant narratives fell into five main themes: (1) the influence of Hispanic culture in the relationship with hospice care providers; (2) types of social support received from hospice; (3) barriers to receiving support; (4) lack of health literacy regarding hospice care; and (5) cultural preferences for religious/spiritual support in hospice.

Significance of Results:

Our results provide insight into the specific emotional and spiritual needs of Hispanic families receiving hospice services. Our findings highlight that cultural values play an important role in the hospice care experiences of Hispanic families.

Keywords

HispanicHospiceEnd of lifeEmotional supportSpirituality
Type
Original Article
Information
Palliative & Supportive Care , Volume 17 , Issue 2 , April 2019 , pp. 150 - 158
Copyright
Copyright © Cambridge University Press 2017 

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References

REFERENCES

Balcazar, H., Alvarado, M., Hollen, M.L., et al. (2006). Salud para su Corazon–NCLR: A comprehensive Promotora outreach program to promote heart-healthy behaviors among Hispanics. Health Promotion Practice, 7(1), 68–77.Google Scholar
Bradley, E.H., Curry, L.A. & Devers, K.J. (2007). Qualitative data analysis for health services research: Developing taxonomy, themes, and theory. Health Services Research, 42(4), 1758–1772. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1955280/pdf/hesr0042-1758.pdf.Google Scholar
Campesino, M. & Schwartz, G.E. (2006). Spirituality among Latinas/os: Implications of culture in conceptualization and measurement. Advances in Nursing Science, 29(1), 69–81. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2758774/.Google Scholar
Carrion, I.V. (2010). When do Latinos use hospice services? Studying the utilization of hospice services by Hispanics/Latinos. Social Work in Health Care, 49(3), 197–210.Google Scholar
Cohen, J. (1960). A coefficient of agreement for nominal scales. Educational and Psychological Measurement, 20, 37–46. Available from http://www.garfield.library.upenn.edu/classics1986/A1986AXF2600001.pdf.Google Scholar
Cohen, L.L. (2008). Racial/ethnic disparities in hospice care: A systematic review. Journal of Palliative Medicine, 11(5), 763–768.Google Scholar
Colon, M. (2005). Hospice and Latinos: A review of the literature. Journal of Social Work in End-of-Life & Palliative Care, 1(2), 27–43.Google Scholar
Colon, M. (2012). Acculturation and attitudes of Latinos toward hospice. Journal of Social Work in End-of-Life & Palliative Care, 8(3), 229–248.Google Scholar
Colon, M. & Lyke, J. (2003). Comparison of hospice use and demographics among European Americans, African Americans, and Latinos. The American Journal of Hospice & Palliative Care, 20(182), 182–190.Google Scholar
Crawley, L.M., Marshall, P.A., Lo, B., et al. (2002). Strategies for culturally effective end-of-life care. Annals of Internal Medicine, 136(9), 673–679.Google Scholar
Cruz-Oliver, D.M., Talamantes, M. & Sanchez-Reilly, S. (2014). What evidence is available on end-of-life (EoL) care and Latino elders? A literature review. The American Journal of Hospice & Palliative Care, 31(1), 87–97. Epub ahead of print Mar 15, 2013.Google Scholar
Cruz-Oliver, D.M., Malmstrom, T.K., Fernández, N., et al. (2015). Education intervention “Caregivers Like Me” for Latino family caregivers: Improved attitudes toward professional assistance at end-of-life care. The American Journal of Hospice & Palliative Care, 33(6), 527–536. Epub ahead of print May 27.Google Scholar
Del Gaudio, F., Hichenberg, S., Eisenberg, M., et al. (2013). Latino values in the context of palliative care: Illustrative cases from the family focused grief therapy trial. The American Journal of Hospice & Palliative Care, 30(3), 271–278. Epub ahead of print Jun 5, 2012.Google Scholar
Elder, J.P. (2003). Reaching out to America's immigrants: Community health advisors and health communication. American Journal of Health Behavior, 27(Suppl. 3), S196–S205.Google Scholar
Empeño, J., Raming, N.T., Irwin, S.A., et al. (2013). The impact of additional support services on caregivers of hospice patients and hospice social workers. Omega, 67(1–2), 53–61. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4041323/.Google Scholar
Evans, B.C. & Ume, E. (2012). Psychosocial, cultural, and spiritual health disparities in end-of-life and palliative care: Where we are and where we need to go. Nursing Outlook, 60(6), 370–375. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3496155/.Google Scholar
Flora, C. (1982). The fotonovela in America. Studies in Latin American Popular Culture, 6, 15–26.Google Scholar
Glaser, B.G. & Strauss, A.L. (1967). The Discovery of Grounded Theory: Strategies for Qualitative Research. New York: Aldine de Gruyter.Google Scholar
Gonzalez, P., Nuñez, A., Wang-Letzkus, M., et al. (2015). Coping with breast cancer: Reflections from Chinese American, Korean American, and Mexican American women. Health Psychology, 35(1), 19–28. Epub ahead of print Sep 21. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4695243/.Google Scholar
Hinojosa, M.S., Nelson, D., Hinojosa, R., et al. (2011). Using fotonovelas to promote healthy eating in a Latino community. American Journal of Public Health, 101(2), 258–259. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3020205/.Google Scholar
Holland, J., Keene, J., Kirkendall, A., et al. (2015). Family evaluation of hospice care: Examining direct and indirect associations with overall satisfaction and caregiver confidence. Palliative & Supportive Care, 13(4), 901–908. Epub ahead of print Jul 3, 2014.Google Scholar
Hsieh, H. & Shannon, S.E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.Google Scholar
Huang, R. (2014). RQDA: R-Based Qualitative Data Analysis. R Package, Version 0.2–7. Available from http://rqda.r-forge.r-project.org/.Google Scholar
Johnson, K.S. (2013). Racial and ethnic disparities in palliative care. Journal of Palliative Medicine, 16(11), 1329–1334. Epub ahead of print Sep 27. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3822363/.Google Scholar
Kreling, B., Selsky, C., Perret-Gentil, M., et al. (2010). “The worst thing about hospice is that they talk about death”: Contrasting hospice decisions and experience among immigrant Central and South American Latinos with U.S.-born white, non-Latino cancer caregivers. Palliative Medicine, 24(4), 427–434. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3570252/.Google Scholar
Levine, E.S. & Padilla, A.M. (1980). Crossing Cultures in Therapy. Belmont, CA: Wadsworth.Google Scholar
Ortman, J.M. & Velkoff, V.A. (2014). An Aging Nation: The Older Population in the United States. Publication No. P25–1140. Washington, DC: U.S. Census Bureau. Available from https://www.census.gov/prod/2014pubs/p25-1140.pdf.Google Scholar
Periyakoil, V.S., Neri, E. & Kraemer, H. (2015). Patient-reported barriers to high-quality, end-of-life care: A multiethnic, multilingual, mixed-methods study. Journal of Palliative Medicine, 19(4), 373–379. Epub ahead of print Nov 17.Google Scholar
Poag, G.O. (2010). On the Border: Cultural Competency with Hispanics in Hospice. Eau Claire, WI: PHC Publishing Group.Google Scholar
Quinones-Gonzalez, S. (2013). Bridging the communication gap in hospice and palliative care for Hispanics and Latinos. Omega, 67(1–2), 193–200.Google Scholar
Ritter, L. & Hoffman, N. (2010). Multicultural Health. Burlington, MA: Jones & Bartlett Learning.Google Scholar
Smith, A.K., Sudore, R.L. & Pérez-Stable, E.J. (2009). Palliative care for Latino patients and their families: Whenever we prayed, she wept. The Journal of the American Medical Association, 301(10), 1047–1057. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2782583/.Google Scholar
Sue, D.W. & Sue, D. (2016). Counseling the Culturally Diverse: Theory and Practice, 7th ed. New York: John Wiley & Sons.Google Scholar
Suro, R., Escobar, G., Livingston, G., et al. (2007). Changing Faiths: Latinos and the Transformation of American Religion. Washington, DC: Pew Research Center. Available from http://www.pewforum.org/2007/04/25/changing-faiths-latinos-and-the-transformation-of-american-religion-2/.Google Scholar
Taxis, J.C., Keller, T. & Cruz, V. (2008). Mexican Americans and hospice care: Culture, control, and communication. Journal of Hospice & Palliative Nursing, 10(3), 133–141.Google Scholar
Teno, J.M., Clarridge, B.R., Casey, V., et al. (2004). Family perspectives on end-of-life care at the last place of care. The Journal of the American Medical Association, 291(1), 88–93. Available from http://jamanetwork.com/journals/jama/fullarticle/197944.Google Scholar
Unger, J.B., Cabassa, L.J., Molina, G.B., et al. (2013). Evaluation of a fotonovela to increase depression knowledge and reduce stigma among Hispanic adults. Journal of Immigrant and Minority Health, 15(2), 398–406. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3602405/.Google Scholar