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What are the core elements of oncology spiritual care programs?

Published online by Cambridge University Press:  26 November 2009

Shane Sinclair ,
Marlene Mysak  and
Neil A. Hagen
Shane Sinclair*
Affiliation:
Tom Baker Cancer Centre, Calgary, Canada Division of Palliative Medicine, Department of Oncology, University of Calgary
Marlene Mysak
Affiliation:
Tom Baker Cancer Centre, Calgary, Canada
Neil A. Hagen
Affiliation:
Tom Baker Cancer Centre, Calgary, Canada Division of Palliative Medicine, Department of Oncology, University of Calgary
*
Address correspondence and reprint requests to: Shane Sinclair, Spiritual Care Services, Tom Baker Cancer Centre, 1331 29 Street NW, Calgary, Alberta T2N 4N2, Canada. E-mail: shane.sinclair@albertahealthservices.ca
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Abstract

Objective:

Tending to the spiritual needs of patients has begun to be formally recognized by professional spiritual care providers, health care councils, and health delivery systems over the last 30 years. Recognition of these programs has coincided with evidence-based research on the effect of spirituality on health. Palliative care has served as a forerunner to an integrated professional spiritual care approach, recognizing the importance of addressing the spiritual needs of the dying from its inauguration within Western medicine almost 50 years ago. Oncology programs have also begun to recognize the importance of spirituality to patients along the cancer continuum, especially those who are approaching the end of life. Although standards and best practice guidelines have been established and incorporated into practice, little is known about the actual factors affecting the practice of spiritual care programs or professional chaplains working within an oncology setting.

Methods:

Participant observation and interactive interviews occurred at five cancer programs after we conducted a literature search.

Results:

This study identified underlying organizational challenges, cultural and professional issues, academic program development challenges, administrative duties, and therapeutic interventions that determined the success of oncology spiritual care programs in practice.

Significance of results:

Although spiritual care services have developed as a profession and become recognized as a service within oncology and palliative care, organizational and operational issues were underrecognized yet significant factors in the success of oncology spiritual care programs. Spiritual care programs that were centrally located within the cancer care center, reported and provided guidance to senior leaders, reflected a multifaith approach, and had an academic role were better resourced, utilized more frequently, and seen to be integral members of an interdisciplinary care team than those services who did not reflect these characteristics.

Keywords

SpiritualityHealth services researchCancer program developmentChaplaincyOrganizational design
Type
Original Articles
Information
Palliative & Supportive Care , Volume 7 , Issue 4 , December 2009 , pp. 415 - 422
Copyright
Copyright © Cambridge University Press 2009

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References

REFERENCES

Association of Professional Chaplains. (2000). Association of Professional Chaplains Code of Ethics, retrieved fromhttp://www.professionalchaplains.org/uploadedFiles/pdf/code_of_ethics_2003.pdf.Google Scholar
Balboni, T., Vanderwerker, L., Block, S., et al. (2007). Religousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. Journal of Clinical Oncology, 25, 555–560.CrossRefGoogle Scholar
Boyle, J. (1994). Styles of ethnography. In Critical Issues in Qualitative Research Methods, Morse, J.M. (ed.), pp. 159–185. Thousand Oaks, CA: Sage.Google Scholar
Cadge, W., Freese, J., & Christakis, N.A. (2008). The provision of hospital chaplaincy in the United States: A national overview. Southern Medical Journal, 101, 626–630.CrossRefGoogle ScholarPubMed
Canadian Association for Pastoral Practice and Education (2008). CAPPE/ACPEP Handbook, retrieved from http://www.cappe.org/handbook/index.html.Google Scholar
Chochinov, H., Tataryn, D., Clinch, J., et al. (1999). Will to live in the terminally ill. The Lancet, 354, 816–819.CrossRefGoogle Scholar
Cohen, S. & Leis, A. (2002). What determines the quality of life of terminally ill cancer patients from their own perspective? Journal of Palliative Care, 18, 48–58.CrossRefGoogle ScholarPubMed
Ehman, J., Ott, B., Short, T., et al. (1999). Do patients want physicians to inquire about their spiritual or religious beliefs if they become gravely ill? Archives of Internal Medicine, 159, 1803–1806.CrossRefGoogle ScholarPubMed
Ferrell, B., Paice, J. & Koczywas, M. (2008). New standards and implications for improving the quality of supportive oncology practice. Journal of Clinical Oncology, 26, 3824–3831.CrossRefGoogle ScholarPubMed
Fisch, M.J., Titzer, M.L., Kristeller, J.L., et al. (2003). Assessment of quality of life in outpatients with advanced cancer: The accuracy of clinician estimations and the relevance of spiritual well-being—A Hoosier Oncology Group study. Journal of Clinical Oncology, 21, 2754–2759.Google Scholar
Freedman, O., Orenstein, S., Boston, P., et al. (2002). Spirituality, religion, and health: A critical appraisal of the Larson reports. Annals of the Royal College of Physicians and Surgeons of Canada, 35, 90–93.Google Scholar
Fryback, P. & Reinert, B. (1999). Spirituality and people with potentially fatal diagnosis. Nursing Forum, 34, 13–22.CrossRefGoogle Scholar
Germain, C. (1993). Ethnography: The method. In Nursing Research: A Qualitative Perspective, Munhall, P. & Oiler Boyd, C. (eds.), pp. 237–268. New York: National League for Nursing.Google Scholar
Harris, W., Gowda, M., Kolb, J., et al. (1999). A randomized, controlled trial of the effects of remote, intercessory prayer on outcomes in patients admitted to the coronary care unit. Archives of Internal Medicine, 159, 2273–2278.CrossRefGoogle Scholar
Hunt, J., Cobb, M., Keeley, V., et al. (2003). The quality of spiritual care: Developing a standard. International Journal of Palliative Nursing, 9, 208–214.CrossRefGoogle ScholarPubMed
Kearney, M. & Mount, B. (2000). Spiritual care of the dying patient. In Handbook of Psychiatry in Palliative Medicine, Chochinov, H. & Breitbart, W. (eds.), pp. 357–373. Oxford: Oxford University Press.Google Scholar
Koening, H., Hays, J., Larson, D., et al. (2000). Does religious attendance prolong survival? A six-year follow-up study of 3,968 older adults. Journal of Gerontology, 55, 400–405.Google Scholar
Larson, D. (1993). The Faith Factor: An Annotated Bibliography of Systematic Reviews and Clinical Research on Spiritual Subjects. Rockville, MD: National Institute for Healthcare Research.Google Scholar
Larson, D., Larson, S. & Koening, H. (2000). Research findings on religious commitment and mental health. Psychiatric Times, 17, 32.Google Scholar
Larson, D., Swyers, J. & McCullough, M. (1997). Scientific Research on Spirituality and Health: A Consensus Report. Rockville, MD: National Institute for Healthcare Research.Google Scholar
Larson, D. & Tobin, D. (2000). End-of-life conversations: Evolving practice and theory. JAMA, 284, 1573–1578.CrossRefGoogle Scholar
Lin, H. & Bauer-Wu, S. (2003). Psycho-spiritual well-being in patients with advanced cancer: An intergrative review of the literature. Journal of Advanced Nursing, 44, 69–80.CrossRefGoogle Scholar
Moadel, A., Morgan, C., Fatone, A., et al. (1999). Seeking meaning and hope: Self-reported spiritual and existential needs among an ethnically-diverse cancer patient population. Psycho-Oncology, 8, 378–385.Google Scholar
Morse, J. & Richards, L. (2002). Read Me First: A User's Guide to Qualitative Methods. Thousand Oaks, CA: Sage.Google Scholar
Mulhall, A. (2003). In the field: Notes on observation in qualitative research. Journal of Advanced Nursing, 41, 306–313.Google Scholar
National Cancer Institute. (2008). National Cancer Institute Cancer Centers List, retrieved from http://cancercenters.cancer.gov/cancer_centers/cancer-centers-names.html.Google Scholar
National Consensus Project. (2009). Home page, retrieved from www.nationalconsensusproject.org.Google Scholar
National Health Services Scotland. (2007). Spiritual and Religious Care Capabilities and Compentences for Healthcare Chaplains. Edinburgh: NHS Education for Scotland.Google Scholar
National Hospice and Palliative Care Organization. (2001). Guidelines for Spiritual Care in Hospice. Alexandria, VA: National Hospice and Palliative Care Organization.Google Scholar
Saunders, C. (1993). Introduction: History and Challenge. In The Management of Terminal Malignant Diseases (3rd ed.), Saunders, C. & Sykes, N. (eds.), pp. 1–15. London: Edward Arnold.Google Scholar
Saunders, C. (1986). The modern hospice. In In Quest of the Spiritual Component of Care for the Terminally Ill, Wald, F. (ed.), New Haven, CT: Yale University Press.Google Scholar
Sinclair, S., Pereira, J. & Raffin, S. (2006 a). A thematic review of the spirituality literature within palliative care. Journal of Palliative Medicine, 9, 464–479.CrossRefGoogle ScholarPubMed
Sinclair, S., Raffin, S., Pereira, J., et al. (2006 b). Collective soul: The spirituality of an interdisciplinary team. Palliative and Supportive Care, 4, 13–24.CrossRefGoogle Scholar
Tesch, R. (1990). Qualitative Research: Analysis Types and Software Tools. New York: Falmer.Google Scholar
The Pallium Project. (2005). Professional Hospice Palliative Care Spiritual Care Provider, retrieved from http://www.cappe.org/dacum/download/Pallium_DACUM_HPCSpiritCarePro_March2005FINALA.pdf.Google Scholar
VandeCreek, L. & Burton, L. (2001). Professional Chaplaincy: Its Role and Importance in Healthcare. Schaumburg, IL: Association of Professional Chaplains.Google Scholar
Wald, F. (1986). In search of the spiritual component of hospice care. In In Quest of the Spiritual Component of Care for the Terminally Ill, Wald, F. (ed.), New Haven, CT: Yale University Press.Google Scholar
World Health Organization. (2008). Definition of Palliative Care. Geneva: World Health Organization.Google Scholar
Zimmermann, C. & Rodin, G. (2004). The denial of death thesis: Sociological critique and implications for palliative care. Palliative Medicine, 18, 121–128.CrossRefGoogle ScholarPubMed