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26 - Enhancement technologies and children

from Section 4 - Ethical issues posed by advances in medical technology and science

Published online by Cambridge University Press:  07 October 2011

Douglas S. Diekema
Affiliation:
Seattle Children's Research Institute
Mark R. Mercurio
Affiliation:
Yale University School of Medicine
Mary B. Adam
Affiliation:
Department of Pediatrics, University of Arizona School of Medicine, Tucson
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Summary

Case narrative

Kyle is a 4-year-old patient in your primary care practice. He is the third son born to Dara and Max, a couple you know well because you have been their family’s pediatrician for 12 years. Dara and Max are both highly educated professionals who consistently emphasize dedication to school work and scholastic achievement in their parenting. Kyle’s parents raise no concerns about Kyle’s physical health but they express frustration about his behavior. As compared with their other sons, Dara and Max feel that Kyle is less able to focus on “educational activities” such as puzzles and books; he seems to favor more active play and prefers activities where he can run and climb. He can be “very oppositional” when they try to redirect him towards “educational activities.” Dara and Max worry that Kyle’s behavior may indicate attention-deficit/hyperactivity disorder (ADHD). Although his preschool teachers do not suspect ADHD and express no concerns about Kyle’s behavior at school, Kyle’s parents request a trial of Ritalin. Dara says “Kyle is so unlike our other sons. I just want to see if the medicine can help him focus and behave differently.” You respond by asking what she means by “differently,” to which Max replies “We would like him to behave … better.”

The quest for “better”: defining enhancement

The desires of Dara and Max may resonate with many parents. Many large and small decisions of parenthood are usually guided by the parents’ desire to help their children live better lives. Parents are expected to maximize their children’s opportunities for success by making thoughtful choices for their children in the home, in the classroom, in the pediatrician’s office, and in all domains of life.

Type
Chapter
Information
Clinical Ethics in Pediatrics
A Case-Based Textbook
, pp. 148 - 153
Publisher: Cambridge University Press
Print publication year: 2011

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References

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Daniels, N. 2000 Normal functioning and the treatment-enhancement distinctionCambridge Quarterly of Healthcare Ethics 9 309Google Scholar
Diekema, D.S. 1990 Is taller really better? Growth hormone therapy in short childrenPerspectives in Biology and Medicine 34 109Google Scholar
Diller, L.H. 1996 The run on Ritalin. Attention deficit disorder and stimulant treatment in the 1990sHastings Center Report 26 12Google Scholar
Drug and Therapeutics Committee, Lawson Wilkins Pediatric Endocrine Society 1995 Guidelines for the use of growth hormone in children with short stature. A report by the Drug and Therapeutics Committee of the Lawson Wilkins Pediatric Endocrine SocietyJournal of Pediatrics 127 857Google Scholar
President’s Council on Bioethics 2002 http://bioethics.georgetown.edu/pcbe/background/humanflourish.html
President’s Council on Bioethics 2003 http://bioethics.georgetown.edu/pcbe/reports/beyondtherapy/beyond_therapy_final_webcorrected.pdf
Wyatt, D. 2004 Lessons from the national cooperative growth studyEuropean Journal of Endocrinology 151 S55Google Scholar

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