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Chapter 7 - Informal Care for Persons with Dementia

Characteristics and Evidence-Based Support Interventions

Published online by Cambridge University Press:  26 May 2022

By
Anja Declercq ,
Rose-Marie Dröes ,
Mary Mittelman  and
Chantal Van Audenhove
Edited by
Mathieu Vandenbulcke ,
Rose-Marie Dröes  and
Erik Schokkaert
Mathieu Vandenbulcke
Affiliation:
KU Leuven, Belgium
Rose-Marie Dröes
Affiliation:
Amsterdam University Medical Centre
Erik Schokkaert
Affiliation:
KU Leuven, Belgium
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Summary

A vast majority of persons with dementia receive help and support from family members, friends and neighbours. Research shows a high reliance on informal long-term care for persons with dementia. In this chapter we discuss the role of informal care in dementia care and the sustainability of that role. Societal changes have an impact on the availability of informal carers and on the division of tasks between formal and informal care. Taking care of a family member can be rewarding as well as challenging. Depending upon the stage of the dementia process the challenges have differing characteristics and the burden changes. Evidence-based interventions have been developed to support either the person with dementia and their informal carer or the family network of the person with dementia. These interventions can alleviate challenges and support informal carers in their role.

Keywords

informal carefamily caredementiacare processevidence-based interventions
Type
Chapter
Information
Dementia and Society , pp. 129 - 152
Publisher: Cambridge University Press
Print publication year: 2022

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