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1 - Autonomy: variations on a principle

Published online by Cambridge University Press:  04 February 2011

Mary Donnelly
Affiliation:
University College Cork
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Summary

As originally used, the term ‘autonomy’, so central to bioethical debate, had nothing to do with health care or indeed with individuals. Rather, the term described the right of Greek city-states to self-government. With the Enlightenment, the principle of autonomy came to be associated with individuals as well as states and respect for autonomy now provides the philosophical underpinning for much of bioethics and law. While this book is concerned with autonomy in the relatively limited sphere of decisions about treatment, the status to be accorded to individual autonomy is central to many bioethical debates, ranging from access to euthanasia and reproductive technology to the sale of organs or body parts.

Although the importance of autonomy to healthcare ethics and law is clear, what the principle actually means is less so. As Gerald Dworkin notes, ‘[a]bout the only features held constant from one author to another are that autonomy is a feature of persons and that it is a desirable quality to have’. In fact, as this chapter shows, the concept of autonomy is more dynamic and complex than is sometimes appreciated in legal discussions of its role in healthcare decision-making. This chapter establishes the theoretical foundations for the legal discussion which follows in later chapters by exploring autonomy as a philosophical construct within ethical debate. This is important not least because, as Alasdair Maclean notes, the law tends to follow the dominant ethical arguments although with an extensive time lag.

Type
Chapter
Information
Healthcare Decision-Making and the Law
Autonomy, Capacity and the Limits of Liberalism
, pp. 10 - 48
Publisher: Cambridge University Press
Print publication year: 2010

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References

Callahan, D., ‘Can the Moral Commons Survive Autonomy?’ (1996) 26 Hastings Center Report 41Google Scholar
Schneider, C., The Practice of Autonomy (New York: Oxford University Press, 1998), p. 3Google Scholar
Wolpe, P., ‘The Triumph of Autonomy in American Bioethics: A Sociological View’ in R. de Vries and H. Subedi (eds.) Bioethics and Society: Constructing the Ethical Enterprise (Upper Saddle River, NJ: Prentice Hall, 1998), p. 43Google Scholar
O'Neill, O., Autonomy and Trust in Bioethics (Cambridge University Press, 2002), p. 2CrossRefGoogle Scholar
Dworkin, G., The Theory and Practice of Autonomy (New York: Cambridge University Press, 1988), p. 6CrossRefGoogle Scholar
Maclean, A., Autonomy, Informed Consent and Medical Law: A Relational Challenge (Cambridge University Press, 2009), p. 215CrossRefGoogle Scholar
Raz, J., The Morality of Freedom (Oxford: Clarendon Press, 1986), p. 204Google Scholar
Raz, J., Ethics in the Public Domain: Essays in the Morality of Law and Politics (Oxford: Clarendon Press, 1994)Google Scholar
Mackenzie, C. and Stoljar, N. ‘Autonomy Reconfigured’, in C. Mackenzie and N. Stoljar (eds.) Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self (New York: Oxford University Press, 2000), p. 4Google Scholar
Pelligrino, E. D. and Thomasma, D. C., For the Patient's Good (New York: Oxford University Press, 1988), p. 7Google Scholar
Keyserlingk, E., Sanctity of Life or Quality of Life in the Context of Ethics, Medicine and Law (Ottawa: Law Reform Commission of Canada, 1979), p. 12Google ScholarPubMed
Keown, J., ‘Restoring Moral and Intellectual Shape to the Law After Bland’ (1997) 113 Law Quarterly Review 481, 483Google ScholarPubMed
Rothman, D., Strangers at the Bedside: A History of How Law and Bioethics Transformed Medical Decision Making (New York: Basic Books, 1991), p. 9Google Scholar
Veatch, R.Autonomy's Temporary Triumph’ (1984) 14 The Hastings Center Report 38, 38CrossRefGoogle ScholarPubMed
Toulmin, S.How Medicine Saved the Life of Ethics’ (1982) 25 Perspectives in Biology and Medicine 736CrossRefGoogle Scholar
Kesey's, KenOne Flew Over the Cuckoo's Nest (New York: Viking Press, 1962)Google Scholar
Plath's, SylviaThe Bell Jar (London: Faber and Faber, 1971)Google Scholar
Jones, J., Bad Blood (New York: Free Press, 1981)Google Scholar
,National Commission for the Protection of Human Subjects of Biomedical and Behavioural Research, Ethical Principles and Guidelines for the Protection of Human Subjects of Research (Washington: Department of Health, Education, and Welfare, 1979)Google Scholar
Beauchamp, T. ‘The Origins and Evolution of the Belmont Report’ in J. Childress, E. Meslin and H. Shapiro (eds.) Belmont Revisited: Ethical Principles for Research With Human Subjects (Washington: Georgetown University Press, 2005), pp. 12–25Google Scholar
Beauchamp, T. and Childress, J., Principles of Biomedical Ethics (1st edn) (New York: Oxford University Press, 1979)Google Scholar
Beauchamp, T. and Childress, J., Principles (6th edn) (New York: Oxford University Press, 2008)Google Scholar
Spriggs, M.Autonomy and Patients' Decisions (Lanham, MD: Lexington Books, 2005), pp. 56–64Google Scholar
Gillon, R., ‘Ethics Needs Principles – Four can Encompass the Rest – and Respect for Autonomy should be “First Among Equals”’ (2003) 29 Journal of Medical Ethics 307CrossRefGoogle Scholar
Beauchamp, T. and Childress, J., Principles of Biomedical Ethics (4th edn) (New York: Oxford University Press, 1994), p. 272Google Scholar
Veatch, R., A Theory of Medical Ethics (New York: Basic Books, 1981)Google Scholar
Engelhardt, T., The Foundations of Bioethics (New York: Oxford University Press, 1986)Google Scholar
Callahan, D.Autonomy: A Moral Good, Not a Moral Obsession (1984) 14 The Hastings Centre Report 40CrossRefGoogle Scholar
Pelligrino, E. ‘The Four Principles and the Doctor-Patient Relationship: The Need for a Better Linkage’ in R. Gillon (ed.) Principles of Healthcare Ethics (London: John Wiley & Sons, 1995)Google Scholar
Holm, S.Not Just Autonomy – the Principles of American Biomedical Ethics’ (1995) 21 Journal of Medical Ethics 332CrossRefGoogle ScholarPubMed
Foster, C.Choosing Life, Choosing Death: The Tyranny of Autonomy in Medical Ethics and Law (Oxford: Hart Publishing, 2009)Google Scholar
Clouser, K. and Gert, B.A Critique of Principalism’ (1996) 15 Journal of Medical Philosophy 219Google Scholar
Gaylin, W. and Jennings, B.The Perversion of Autonomy: Coercion and Constraints in a Liberal Society (Washington: Georgetown University Press, 2003), pp. 47–57Google Scholar
Miola, J., Medical Ethics and Medical Law: A Symbiotic Relationship (Oxford: Hart Publishing, 2007), pp. 48–53Google Scholar
Kant, I., Critique of Practical Reason (1785) in M. Gregor (ed.) Kant, Practical Philosophy (Cambridge University Press, 1996)Google Scholar
Gillon, R., Philosophical Medical Ethics (Chichester: John Wiley, 1985), p. 64Google ScholarPubMed
Charlesworth, M., Bioethics in a Liberal Society (Cambridge University Press, 1993), pp. 12–13CrossRefGoogle Scholar
Kant, I., Groundwork of the Metaphysics of Morals (1785), p. 402, (from M. Gregor (ed.) Kant: Groundwork of the Metaphysics of Morals (Cambridge Texts in the History of Philosophy) (Cambridge University Press, 1997)Google Scholar
O'Neill, O., Constructions of Reason: Explorations of Kant's Practical Philosophy (Cambridge University Press, 1989)Google Scholar
Sullivan, R., An Introduction to Kant's Ethics (Cambridge University Press, 1994)CrossRefGoogle Scholar
Secker, B.The Appearance of Kant's Deontology in Contemporary Kantianism: Concepts of Patient Autonomy in Bioethics’ (1999) 24 Journal of Medicine and Philosophy 43CrossRefGoogle ScholarPubMed
Dan-Cohen, M., Harmful Thoughts: Essays on Law, Self, and Morality (Princeton University Press, 2002), p. 135Google Scholar
Dworkin, R., Life's Dominion: An Argument About Abortion, Euthanasia, and Individual Freedom (New York: Alfred A. Knopf, 1993), p. 224Google Scholar
Feinberg, J.The Moral Limits of the Criminal Law, Vol 3: Harm to Self (New York: Oxford University Press, 1986), pp. 44–7Google Scholar
Smith, A. McCall, ‘Beyond Autonomy’ (1997) 14 Journal of Contemporary Health Law and Policy 23, 30Google ScholarPubMed
White, B. Cox, Competence to Consent (Washington DC: Georgetown University Press, 1994)¸ p. 22Google Scholar
Atkins, K., ‘Autonomy and the Subjective Character of Experience’ (2000) 17 Journal of Applied Philosophy 71CrossRefGoogle ScholarPubMed
Mulhall, S. and Swift, A., Liberals and Communitarians (2nd edn) (Oxford: Blackwell Publishing, 1996)Google Scholar
Rawls, J., A Theory of Justice (Cambridge, MA: Harvard University Press, 1971)Google Scholar
Dworkin, R., A Matter of Principle (Oxford University Press, 1985)Google Scholar
Sandel, M., Liberalism and the Limits of Justice (2nd edn) (Cambridge University Press, 1997), p. 62Google Scholar
MacIntyre, A.After Virtue: A Study in Moral Theory (London: Duckworth, 1981)Google Scholar
Baier, A., Postures of the Mind: Essays on Mind and Morals (Minneapolis: University of Minnesota Press, 1985), p. 85Google Scholar
Jaggar, A., Feminist Politics and Human Nature (Totowa, NJ: Rowman & Littlefield, 1983)Google Scholar
Frankfurt, H.Freedom of the Will and the Concept of a Person’ (1971) 68 Journal of Philosophy 5CrossRefGoogle Scholar
Watson, G.Free Agency’ (1975) 72 Journal of Philosophy 202CrossRefGoogle Scholar
Christman, J.Constructing the Inner Citadel: Recent Work on the Concept of Autonomy’ (1988) 99 Ethics 109CrossRefGoogle Scholar
Christman, J. (ed.) The Inner Citadel: Essays on Individual Autonomy (New York: Oxford University Press, 1989)Google Scholar
Churchland, Paul, Neurophilosophy at Work (New York: Cambridge University Press, 2007)CrossRefGoogle Scholar
Dennett, DanielElbow Room: The Varieties of Free Will Worth Wanting (Cambridge, MA: MIT Press, 1984)Google Scholar
Honderich, T., How Free are You? The Determinism Problem (2nd edn) (Oxford University Press, 2002)Google Scholar
Kane, R.The Significance of Free Will (New York: Oxford University Press, 1996)Google Scholar
Koehler, D. and Harvey, N. (eds.) Blackwell Handbook of Judgment and Decision Making (Chichester: Wiley Blackwell, 2004)CrossRefGoogle Scholar
Thaler, R. and Sunstein, C.Nudge: Improving Decisions About Health, Wealth, and Happiness (New Haven: Yale University Press, 2008)Google Scholar
Tversky, A. and Kahneman, D.Availability: a Heuristic for Judging Frequency and Probability’ (1973) 5 Cognitive Psychology 207CrossRefGoogle Scholar
Redelmeier, D.et al., ‘Understanding Patients’ Decisions: Cognitive and Emotional Perspectives' (1993) 279 Journal of the American Medical Association 72Google Scholar
Redelmeier, D. and Shafir, E., ‘Medical Decision Making in Situations that Offer Multiple Alternatives’ (1995) 273 Journal of the American Medical Association 302Google ScholarPubMed
Sunstein, C. and Thaler, R., ‘Libertarian Paternalism Is Not an Oxymoron’ (2003) 70 University of Chicago Law Review 1159CrossRefGoogle Scholar
MacKinnon, C.Feminism Unmodified: Discourses on Life and Law (Cambridge, MA: Harvard University Press, 1987)Google Scholar
Wells, C., ‘Patients, Consent and Criminal Law’ (1994) 16 Journal of Social Welfare and Family Law 65, 69CrossRefGoogle Scholar
Wells, C., ‘On the Outside Looking In: Perspectives on Enforced Caesareans’ in S. Sheldon and M. Thompson (eds.) Feminist Perspectives on Health Care Law (London: Cavendish Publishing, 1998), p. 255Google Scholar
Sherwin, S. (ed.) The Politics of Women's Health: Exploring Agency and Autonomy (Philadelphia: Temple University Press, 1998), pp. 27–8Google Scholar
Luker, K., Taking Chances: Abortion and the Decision not to Contracept (Berkeley: University of California Press, 1975)Google Scholar
Oshana, M., ‘Personal Autonomy and Society’ (1998) 29 Journal of Social Philosophy 81, 83CrossRefGoogle Scholar
Nozick, R.Anarchy, State and Utopia (New York: Basic Books, 1974), p. 33Google Scholar
Mackenzie, C.Abortion and Embodiment’ (1992) 70 Australian Journal of Philosophy 136CrossRefGoogle ScholarPubMed
Fletcher, R.et al., ‘Legal Embodiment: Analysing the Body of Healthcare Law’ (2008) 16 Medical Law Review 321CrossRefGoogle ScholarPubMed
Cassell, E., Leon, A. and Kaufman, S.Preliminary Evidence of Impaired Thinking in Sick Patients’ (2001) 134 Annals of Internal Medicine 1120CrossRefGoogle ScholarPubMed
Wicclair, M., Ethics and the Elderly (New York: Oxford University Press, 1993), p. 55Google Scholar
Brody, B., Life and Death Decision Making (New York: Oxford University Press, 1988)Google Scholar
Cassell, E., ‘Unanswered Questions: Bioethics and Human Relationships’ (2007) 37 (5) Hastings Center Report 20, 23CrossRefGoogle ScholarPubMed
Spriggs, M.Autonomy in the Face of a Devastating Diagnosis’ (1998) 24 Journal of Medical Ethics 123CrossRefGoogle ScholarPubMed
Christman, J., ‘Relational Autonomy, Liberal Individualism, and the Social Construction of Selves’ (2004) 117 Philosophical Studies 143, 147CrossRefGoogle Scholar
Herring, J., ‘Relational Autonomy and Rape’ in S. Sclater et al. (eds.) Regulating Autonomy: Sex, Reproduction and Family (Oxford: Hart Publishing, 2009), pp. 56–8Google Scholar
Hill, T., Autonomy and Self-Respect (Cambridge University Press, 1991)CrossRefGoogle Scholar
Glendon, M. A., Rights Talk: The Impoverishment of Political Discourse (New York: Free Press, 1991), p. 47Google Scholar
Frazer, E. and Lacey, N., The Politics of Community: A Feminist Critique of the Liberal-Communitarian Debate (London: Harvester Wheatsheaf, 1993)Google Scholar
Callahan, D., ‘Individual Good and Common Good: A Communitarian Approach to Bioethics’ (2003) 46 Perspectives in Biology and Medicine 496CrossRefGoogle ScholarPubMed
Brazier, M., ‘Do No Harm – Do Patients Have Responsibilities Too?’ (2006) 65 Cambridge Law Journal 397, 400CrossRefGoogle Scholar
Gilligan, C., In a Different Voice: Psychological Theory and Women's Development (Cambridge, MA: Harvard University Press, 1982)Google Scholar
West, R., ‘Jurisprudence and Gender’ (1988) 55 University of Chicago Law Review 1CrossRefGoogle Scholar
Noddings, N., Caring: A Feminine Approach to Ethics and Moral Education (Berkeley: University of California Press, 1984)Google Scholar
Held, V., Feminist Morality: Transforming Culture, Society and Politics (Chicago: University of Chicago Press, 1993)Google Scholar
Scales, A., ‘The Emergence of Feminist Jurisprudence: An Essay’ (1986) 95 Yale Law Journal 1373, 1381CrossRefGoogle Scholar
MacKinnon, C.et al, ‘Feminist Discourse, Moral Values and the Law – A Conversation’ (1985) 34 Buffalo Law Review 11, 74Google Scholar
Scott, R.Rights, Duties and the Body: Law and Ethics of the Maternal-Fetal Conflict (Oxford: Hart Publishing, 2002), p. 87Google Scholar
Hardwig, J., ‘Is there a Duty to Die?’ (1997) 27 Hastings Center Report 34, 36Google Scholar
Callahan, D., ‘Our Burden Upon Others: A Response to John Hardwig’ in J. Hardwig with N. Hentoff et al. Is there a Duty to Die? and Other Essays in Medical Ethics (New York: Routledge, 2000), pp. 139–44Google Scholar
Gunderson, M.Being a Burden: Reflections on Refusing Medical Care’ (2004) 34 Hastings Center Report 37Google ScholarPubMed
George, K.A Woman's Choice?: The Gendered Risks of Voluntary Euthanasia and Physician-Assisted Suicide’ (2007) 15 Medical Law Review 1CrossRefGoogle ScholarPubMed
Blackhall, L.et al., ‘Ethnicity and Attitudes Towards Patient Autonomy’ (1995) 274 Journal of American Medical Association 820CrossRefGoogle Scholar
Kitamura, F.et al., ‘Image of Psychiatric Patients’ Competency to Give Informed Consent to Treatment in Japan' (1999) 22 International Journal of Law and Psychiatry 45CrossRefGoogle ScholarPubMed
Kara, M.Applicability of the Principle of Respect for Autonomy: The Perspective of Turkey’ (2007) 33 Journal of Medical Ethics 627CrossRefGoogle ScholarPubMed
Shore, D. (ed.) The Trust Crisis in Healthcare: Causes, Consequences, and Cures (New York: Oxford University Press, 2007)Google Scholar
Davies, M.Medical Self-Regulation: Crises and Change (Aldershot: Ashgate, 2007), pp. 93–4Google Scholar
Kmietovicz, Z.R.E.S.P.E.C.T – Why Doctors are Still Getting Enough of it’ (2002) 324 British Medical Journal 11CrossRefGoogle Scholar
Manson, and O'Neill, , Rethinking Informed Consent in Bioethics (Cambridge University Press, 2007), p. 166CrossRefGoogle Scholar
Lawrence, R. E. and Curlin, F. A.Autonomy, Religion, and Clinical Decisions: Findings from a National Physician Survey’ (2009) 35 Journal of Medical Ethics 214CrossRefGoogle ScholarPubMed
Quinlan, C. and O'Neill, C.Practitioners' Narrative Submissions (Unpublished) (Dublin: Irish Hospice Foundation, 2008)Google Scholar
Green, L., ‘Un-American Liberalism: Raz's “Morality of Freedom”’ (1988) 38 University of Toronto Law Journal 317CrossRefGoogle Scholar
Nedelsky, J., ‘Reconceiving Autonomy: Sources, Thoughts and Possibilities’ (1989) 1 Yale Journal of Law and Feminism 7, 10Google Scholar
Nussbaum, M. and Sen, A. (eds.) The Quality of Life (Oxford: Clarendon Press, 1993)CrossRefGoogle Scholar
Nussbaum, M., Women and Human Development: The Capabilities Approach (Cambridge University Press, 2000)CrossRefGoogle Scholar
Myers, D., Self, Society and Personal Choice (New York: Columbia University Press, 1989), p. 76Google Scholar
Fox, R., ‘The Evolution of American Bioethics: A Sociological Perspective’ in G. Weisz (ed.) Social Science Perspectives on Medical Ethics (Philadelphia: University of Philadelphia Press, 1990), p. 209Google Scholar

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