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Introduction

Published online by Cambridge University Press:  20 January 2022

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Summary

In recent years, disabled parents have grown increasingly vocal in challenging the barriers that they face in fulfilling their parental role. They, and their organisations, have begun to place issues of importance to disabled parents on national and local policy agendas, often in collaboration with allies in academia and both statutory and voluntary sectors. They have also sought to transform public and professional perceptions of disabled people as the recipients (as opposed to providers) of ‘care’, which often reflect a deep-seated antipathy to the very idea of disabled people having children. Indeed, we deliberately chose this book's subtitle – Disabled parents’ experiences of raising children – because of the assumption that would inevitably be made in some quarters of a book entitled Parenting and disability: that it must be about disabled children and their (implicitly non-disabled) parents. An important aspect of these attempts to challenge dominant perceptions, and to raise the profile of the parental responsibilities of disabled people, is the development of a literature that views parenting and disability as essentially about equal opportunities. Others, often disabled parents themselves, have already begun this process and we hope that this book makes a contribution to the development of such a literature.

Our book is the result of a research project entitled ‘Parenting and disability: the role of formal and informal networks’, funded by the Department of Health as part of its Supporting Parents research programme, and carried out at the Nuffield Community Care Studies Unit, University of Leicester, between 1997 and 2000. The Supporting Parents programme followed on from previous research initiatives funded by the Department of Health, which had pointed to the ways in which child protection work, as opposed to family support work, had dominated the post-Children Act environment. Therefore our research, with a ‘normative’ group of disabled parents (that is, a group not defined by their use of a particular service), was very timely in that it looked at access to support for a group of disabled parents who were not predetermined in some sense as a ‘social problem’, or already identified as having ‘failed’ for any reason. This made a research study informed by a social model perspective on disability possible from the outset.

Type
Chapter
Information
Parenting and Disability
Disabled Parents' Experiences of Raising Children
, pp. xi - xiv
Publisher: Bristol University Press
Print publication year: 2003

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