Book contents
- Frontmatter
- Acknowledgements
- Foreword
- Introduction
- Immigration has completely changed the city. There’s a thriving community of Asian people.
- If you say Easterhouse to someone, the first thing they think of is normally gangs, violence and drugs.
- There was a family on my floor: a mum, dad, sister and two brothers. None of them made it out.
- The land was just sitting there and the idea came up about making an allotment on the bog land, so that the people in the community could grow their own fresh food.
- Living a life that is affected by austerity feels like a judgement from a Tory government of who I am. I don’t feel that there’s anybody looking out for my interests as a human being.
- When I first found out I had MND, Steph had just given birth to Ralphie, so we went from that amazing high to being told that I’d got something that could potentially kill me in two years.
- I felt like a little invisible shadow. People knew, but I couldn’t tell anyone, as I was so scared that my child would be taken away. I thought if I kept my mouth shut, then at least I had my daughter.
- Even as a kid going to school, I felt like teachers had a handbook on how to deal with particular kids when it came to race. They’re so quick to kick us out of school.
- Campaigning with DPAC – Disabled People Against Cuts – gave me direction. It kept me going when I would’ve given up.
- The cranes are like big guns aimed in on us. We are surrounded.
- I feel the country is more divided. Maybe because of Brexit, but it feels like the gap has widened between left and right.
- Emergency accommodation is supposed to mean anything from a week to six months. But I ended up being there for over a year.
- I think we are a great example that you can start your life over again at any age.
- A supervisor was bullying me, and when I confronted him he told me women are only here for having children, and called me a donkey.
- I think the EU got blamed for things it wasn’t responsible for, not that it was perfect. Some farmers saw the referendum as an opportunity to have change.
- There were nine of us, all musicians. I was the only one who could speak English, not good, but better than the others, so I volunteered to speak about asylum.
- It always seems to come down to money nowadays. And actually, what should be more important is what children need.
- I’ve been in trouble quite a lot in my life. Nothing too serious, and somehow I’ve only been to prison once.
- We don’t have to accept this attack on our living standards, we don’t have to accept the demonisation of the various minorities, be they disabled, poor, single parents, immigrants or refugees.
- I try and bring a sense of love, belonging and family to the women. I believe in every one of them and I will never stop.
- I’m passionate about young people knowing that everything is political.
- I just couldn’t move. I was on that many different opiates, my body couldn’t cope with it.
- The biggest thing for me about being a single parent is the fact that people do seem to think that it defines you in some way.
- Being a trans woman in the 70s was exceedingly difficult. We weren’t breaking Queen’s Regulations by being transgendered, but the military police thought that it could be used against us.
- Am I accepted because I’m the token black woman to make up a percentage of black artists, or for my hard work and talent?
- When I was selling drugs I was always thinking about the money. I didn’t actually see the effect it has on the users.
- Some people even say we might need a third referendum. What they really mean is we should keep voting until they get the answer they want.
- We need to look more widely at the contribution that black people have historically made to British society.
- The word ‘Islamophobia’ was something I learnt sometime after 9/11. Until then, I didn’t know what it was. I didn’t know that it was called Islamophobia until it formed into this thing that had a name.
- The state of the country is terrible. Don’t even get me started. Theresa May, she gets on my nerves when she goes on.
- I struggle every day. I struggle to get up and even make myself food, and so I skip meals quite often.
- At first I thought it was a good thing to go on strike, but it became clear that Maggie Thatcher was going to close us down all the same.
- We’re still dealing with feudal law when it comes to housing, so we’re really up against it.
- I’ve heard it described as a battle, but for a battle both sides had to be armed. They had riot gear, helmets, padding, gauntlets, shields, three-foot batons. There was only one side armed.
- At the Edinburgh Festival they did a play set in Govanhill called ‘Govanhell’. Why would people in Edinburgh even know about Govanhill?
- The recession started again, hitting the building trade, and there was lots of pressure trying to keep everything together for the family. Things started to go wrong.
- I think applying for benefits is made really hard just to put people off. It can be the most stressful, soul-destroying thing ever in your life.
- People here don’t want a border back because of all the trouble there was. There were a lot of bombs, over at the garage. The windows of this pub would be put in from the bang of the bombs.
- In my first week at the London School of Economics a student told me I was part of the underclass because my family received benefits, and a lecturer said ‘Poor people don’t come to LSE’.
- Mental illness isn’t universal. You can’t just give somebody one thing and they feel better. Everybody has their own way of coping.
- When you’re an immigrant you feel like an invisible part of Britain. Until you’re ingrained in the culture, you’re not seen or heard.
- Photographers’ Biographies
When I first found out I had MND, Steph had just given birth to Ralphie, so we went from that amazing high to being told that I’d got something that could potentially kill me in two years.
Published online by Cambridge University Press: 25 April 2023
Edited by
Book contents
- Frontmatter
- Acknowledgements
- Foreword
- Introduction
- Immigration has completely changed the city. There’s a thriving community of Asian people.
- If you say Easterhouse to someone, the first thing they think of is normally gangs, violence and drugs.
- There was a family on my floor: a mum, dad, sister and two brothers. None of them made it out.
- The land was just sitting there and the idea came up about making an allotment on the bog land, so that the people in the community could grow their own fresh food.
- Living a life that is affected by austerity feels like a judgement from a Tory government of who I am. I don’t feel that there’s anybody looking out for my interests as a human being.
- When I first found out I had MND, Steph had just given birth to Ralphie, so we went from that amazing high to being told that I’d got something that could potentially kill me in two years.
- I felt like a little invisible shadow. People knew, but I couldn’t tell anyone, as I was so scared that my child would be taken away. I thought if I kept my mouth shut, then at least I had my daughter.
- Even as a kid going to school, I felt like teachers had a handbook on how to deal with particular kids when it came to race. They’re so quick to kick us out of school.
- Campaigning with DPAC – Disabled People Against Cuts – gave me direction. It kept me going when I would’ve given up.
- The cranes are like big guns aimed in on us. We are surrounded.
- I feel the country is more divided. Maybe because of Brexit, but it feels like the gap has widened between left and right.
- Emergency accommodation is supposed to mean anything from a week to six months. But I ended up being there for over a year.
- I think we are a great example that you can start your life over again at any age.
- A supervisor was bullying me, and when I confronted him he told me women are only here for having children, and called me a donkey.
- I think the EU got blamed for things it wasn’t responsible for, not that it was perfect. Some farmers saw the referendum as an opportunity to have change.
- There were nine of us, all musicians. I was the only one who could speak English, not good, but better than the others, so I volunteered to speak about asylum.
- It always seems to come down to money nowadays. And actually, what should be more important is what children need.
- I’ve been in trouble quite a lot in my life. Nothing too serious, and somehow I’ve only been to prison once.
- We don’t have to accept this attack on our living standards, we don’t have to accept the demonisation of the various minorities, be they disabled, poor, single parents, immigrants or refugees.
- I try and bring a sense of love, belonging and family to the women. I believe in every one of them and I will never stop.
- I’m passionate about young people knowing that everything is political.
- I just couldn’t move. I was on that many different opiates, my body couldn’t cope with it.
- The biggest thing for me about being a single parent is the fact that people do seem to think that it defines you in some way.
- Being a trans woman in the 70s was exceedingly difficult. We weren’t breaking Queen’s Regulations by being transgendered, but the military police thought that it could be used against us.
- Am I accepted because I’m the token black woman to make up a percentage of black artists, or for my hard work and talent?
- When I was selling drugs I was always thinking about the money. I didn’t actually see the effect it has on the users.
- Some people even say we might need a third referendum. What they really mean is we should keep voting until they get the answer they want.
- We need to look more widely at the contribution that black people have historically made to British society.
- The word ‘Islamophobia’ was something I learnt sometime after 9/11. Until then, I didn’t know what it was. I didn’t know that it was called Islamophobia until it formed into this thing that had a name.
- The state of the country is terrible. Don’t even get me started. Theresa May, she gets on my nerves when she goes on.
- I struggle every day. I struggle to get up and even make myself food, and so I skip meals quite often.
- At first I thought it was a good thing to go on strike, but it became clear that Maggie Thatcher was going to close us down all the same.
- We’re still dealing with feudal law when it comes to housing, so we’re really up against it.
- I’ve heard it described as a battle, but for a battle both sides had to be armed. They had riot gear, helmets, padding, gauntlets, shields, three-foot batons. There was only one side armed.
- At the Edinburgh Festival they did a play set in Govanhill called ‘Govanhell’. Why would people in Edinburgh even know about Govanhill?
- The recession started again, hitting the building trade, and there was lots of pressure trying to keep everything together for the family. Things started to go wrong.
- I think applying for benefits is made really hard just to put people off. It can be the most stressful, soul-destroying thing ever in your life.
- People here don’t want a border back because of all the trouble there was. There were a lot of bombs, over at the garage. The windows of this pub would be put in from the bang of the bombs.
- In my first week at the London School of Economics a student told me I was part of the underclass because my family received benefits, and a lecturer said ‘Poor people don’t come to LSE’.
- Mental illness isn’t universal. You can’t just give somebody one thing and they feel better. Everybody has their own way of coping.
- When you’re an immigrant you feel like an invisible part of Britain. Until you’re ingrained in the culture, you’re not seen or heard.
- Photographers’ Biographies
Summary
We were on a family holiday when I noticed that my hands were starting to curl and lose feeling. When we got back we went to the doctor, who took me to a hand specialist. I was seen by a neurologist at Doncaster Royal Infirmary. My reflexes were off the scale, which is a common thing in Motor Neurone Disease (MND). The old analogy with the doctor banging the hammer on your knee? My reflexes were off the chart.
I worked in the gas and electric metering industry, on the smart metering side. I’d good prospects: I went from office manager to business development manager, had a good salary and a company car on its way. But everything was taking double the effort. Stephanie had to help me get dressed in the morning.
I was told by the nurse there were benefits. We started the process in November 2017. You think, oh, super. Then they say, ‘We’re going to send you an application form’. Yep, fair enough. But to be hit with a nearly 40-page document, it’s eye-opening. The document is exactly the same for everyone. Twelve questions classed as ‘daily living’, from getting dressed, getting washed and bathed, to toilet needs, cooking. Then there’s a mobility aspect, asking how far you can walk, do you still use a car to get about, can you still drive? There’s a guideline booklet which says, ‘Don’t just say “I cannot button up my shirt”, go into detail as to why you can’t button up your shirt.’ We went into as much detail as possible. We thought it’d be a case of, yes, he’s got MND, he needs to be awarded.
We received a letter from the Department for Work and Pensions (DWP) saying we needed to go to an assessment in Doncaster, which, for people with MND, shouldn’t happen.
The DWP guidelines state that anybody with a terminal illness should be granted benefits straight away. The assessor said he’d worked in nursing for 10 years, but it was obvious from the outset that he didn’t know what MND was, what it did, and what it affected. We gave him an outline.
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- Invisible BritainPortraits of Hope and Resilience, pp. 24Publisher: Bristol University PressPrint publication year: 2018